Aa
Tallblonde
hi, hate to be so public in telling you this, but I have no other way really.....you and I have always been in "somewhat" the same boat in terms of how we've been dealing with our disease, anyway, I had a fibroscan today, like a few other members here....and I think it would be great for you to get one too, great relief off my mind and there are no big gauge needles to deal with! You probably know it's a scanning procedure, that gives you images of the entire liver...anyway, don't know if you do, but if so, Ina has my info and I could get you in touch with the good doctor, it's here in Los Angeles in a fairly beutiful setting...hope youre well...
Just taking a chance, don't even know if youre still reading...maybe so...
Just taking a chance, don't even know if youre still reading...maybe so...
Forseegood , I would think really hard on what your going to do, When I found out I went from stage 1 to stage 2 in only 3 years ,I made my choice, and at my 3and 1/2 month post was negative, what is your viral load ? Your a 1a right and your pretty healthy, Well just think about it some people go through tx with hardly no sides at all.....
Goldie: I agree with you for the most part, though I know Jim and some others think I should wait, I'm just thinking that I don't know that I'd get into the next trial of Vertex cause I think they'll be focusing on relapsers no? I'm treatment naive...
And I do't know if i'm the trial type...I might eat my words though, at some future date...also, the kid I take care of is in her senior year at high school, and might move out after graduation, and I wouldn't have a gofer here to help me out, steppin and fetchin, ha ha! Although it works out that I'm picking up her underwear from the floor half the time, you know how that is, why can't she make it that extra 20 inches to the hamper? no one knows...I'm sick of the fatigue, though of course there's no for sure thing that I'll get energy back, even if I do clear, I try to get a handle on my expectations, expectations do it to you every time...
Tallblond: I'm so very, very glad that youre still taking such good care of yourself with your diet and supplements, I know genetics has something to do with it, but I also think these other facets play into your overall health with this disese...good for you, yeah, I'd definitely wait if I were you, maybe at some point in the not to distant future, you could treat with Vertex and the SOC, maybe for just 3 months or so, wouldnt that be grand? Or even wait for better then that, I remember your some years younger then me anyway...
I agree with your doc, with the fibroscan, youre getting the whole enchilada, I could see that you could have whole parts of your liver perfectly okay, and just a few parts sub par, and then the biopsy takes just the sub par parts for some patient? The fibroscan gives you the full story...what an amazing machine...I think that along with all the blood marker tests, fibrosure, fibrospect, some other things, really gives you a pretty good overall picture...
Jim: always like to hear you take on my situation...and I will get back to that relacore, was discussing it with a certain person, and HR, I'll post what they say, I just have to look at it more carefully and I've been super busy...
And I do't know if i'm the trial type...I might eat my words though, at some future date...also, the kid I take care of is in her senior year at high school, and might move out after graduation, and I wouldn't have a gofer here to help me out, steppin and fetchin, ha ha! Although it works out that I'm picking up her underwear from the floor half the time, you know how that is, why can't she make it that extra 20 inches to the hamper? no one knows...I'm sick of the fatigue, though of course there's no for sure thing that I'll get energy back, even if I do clear, I try to get a handle on my expectations, expectations do it to you every time...
Tallblond: I'm so very, very glad that youre still taking such good care of yourself with your diet and supplements, I know genetics has something to do with it, but I also think these other facets play into your overall health with this disese...good for you, yeah, I'd definitely wait if I were you, maybe at some point in the not to distant future, you could treat with Vertex and the SOC, maybe for just 3 months or so, wouldnt that be grand? Or even wait for better then that, I remember your some years younger then me anyway...
I agree with your doc, with the fibroscan, youre getting the whole enchilada, I could see that you could have whole parts of your liver perfectly okay, and just a few parts sub par, and then the biopsy takes just the sub par parts for some patient? The fibroscan gives you the full story...what an amazing machine...I think that along with all the blood marker tests, fibrosure, fibrospect, some other things, really gives you a pretty good overall picture...
Jim: always like to hear you take on my situation...and I will get back to that relacore, was discussing it with a certain person, and HR, I'll post what they say, I just have to look at it more carefully and I've been super busy...
As long as forsee has started airing her dirty laudry in this thread (or more precisely, her houseguest's) let me continue in that vein.
I generaly sway pretty far towards the watch-in-wait camp. Forsee will corect me if I'm wrong, but I have the impression that while her average may be catagorized as a two, much of her tissue was a one. So watching and waiting would seem a no-brainer.
But there are more things to weigh. Namely, forsee complains of fatigue that has severely impacted her QOL. She is unable to engage in many activities that she wishes she could. The likelyhood of SVR improving that situation is hard to quantify - but it ain't getting better watching and waiting.
To me though, an even more compelling reason for her to consider treating in the immediate future is the anxiety she has surrounding the disease and the specter of treating. This is not a case where she watches and waits while enjoying an otherwise normal lifestyle. Were it that simple, holding off on treatment would seem like a pretty attractive option. But to me, in this instance, grabbing the bull by the horns (or maybe the tofu by the rice paper wrapper would be a better metaphor), might be the best course of action.
It's of course a personal decision, and I hope forsee doesn't mind me sicking my nose where it doesn't belong (so to speak). But as long as were going to discuss it, let's get those undies out in the open, skid marks and all.
I generaly sway pretty far towards the watch-in-wait camp. Forsee will corect me if I'm wrong, but I have the impression that while her average may be catagorized as a two, much of her tissue was a one. So watching and waiting would seem a no-brainer.
But there are more things to weigh. Namely, forsee complains of fatigue that has severely impacted her QOL. She is unable to engage in many activities that she wishes she could. The likelyhood of SVR improving that situation is hard to quantify - but it ain't getting better watching and waiting.
To me though, an even more compelling reason for her to consider treating in the immediate future is the anxiety she has surrounding the disease and the specter of treating. This is not a case where she watches and waits while enjoying an otherwise normal lifestyle. Were it that simple, holding off on treatment would seem like a pretty attractive option. But to me, in this instance, grabbing the bull by the horns (or maybe the tofu by the rice paper wrapper would be a better metaphor), might be the best course of action.
It's of course a personal decision, and I hope forsee doesn't mind me sicking my nose where it doesn't belong (so to speak). But as long as were going to discuss it, let's get those undies out in the open, skid marks and all.
(only some of it was a one, a high one, almost two.... most of it was a two)...I think this brings up a good point...I see now that many of us have livers with weird archetectures, or maybe most of us? I don't know all that much about this, HR sure would though...
A scanning procedure such as fibroscan begs the question...that it's really hard to quantify a "grade" or an average, if the disparity between the samples is so pronounced...say a lot of a liver is graded a 2, some graded a 3, and some graded at 4, (could happen, and does) how would you grade that then? With pretty low damage, and high damage in the same liver? If youre looking at a biopsy, they are just grading the relatively small samples they are getting, if I'm not mistaken, and extrapolating those out to your whole liver...but I think it gets confusing if youre able to scan the whole liver, and there isn't uniform damage, like my example...But then youre the numbers guy, numbers make my head swim...
A scanning procedure such as fibroscan begs the question...that it's really hard to quantify a "grade" or an average, if the disparity between the samples is so pronounced...say a lot of a liver is graded a 2, some graded a 3, and some graded at 4, (could happen, and does) how would you grade that then? With pretty low damage, and high damage in the same liver? If youre looking at a biopsy, they are just grading the relatively small samples they are getting, if I'm not mistaken, and extrapolating those out to your whole liver...but I think it gets confusing if youre able to scan the whole liver, and there isn't uniform damage, like my example...But then youre the numbers guy, numbers make my head swim...
Hi Susan,
I have the mother of all colds, and didn't read for several days.
I only read here and there now... one of the side effects of SVR.
It took Ivette 2 years to wean herself of the board, but she finally made it. She did it cold turkey though, while I choose "tapering off" :)
Anyway, you can repost here, or privately.
So they just take individual posts now, as opposed to the entire thread.
Hm, last year I mistakinly posted some copywrited material from Dr.C, and they zapped every post I made, going back weeks...for all I know in archives too.
When I complained, the answer was...we don't have time to check every thread you posted to find the offending one.
Whatever...
I am curious what Dr.C says about your situation.
_______________________________
Jim,
in regards to the laser. I did ask the tech about IPL, but the way she explained it, if I remember correctly, they use IPL on slightly larger veins. Also with IPL only one vein at a time can be zapped.
V-beam covers one square inch at a time, and is a one time shot. They use it for those tiny spider veins that are just beneath the surface of the skin, and are only 1-5 mm long.
I don't know what your spiders look like, maybe yours are differnt, even though both of ours came from Rosacea, and lets not forget, which came from Interferon :)
Haha, your diet...well I asked you once to give me a typical day of your eating habits...you didn't...which let me to think, that you are hiding some Kentucky fried chicken and Salami in the closet :)
Ina
I have the mother of all colds, and didn't read for several days.
I only read here and there now... one of the side effects of SVR.
It took Ivette 2 years to wean herself of the board, but she finally made it. She did it cold turkey though, while I choose "tapering off" :)
Anyway, you can repost here, or privately.
So they just take individual posts now, as opposed to the entire thread.
Hm, last year I mistakinly posted some copywrited material from Dr.C, and they zapped every post I made, going back weeks...for all I know in archives too.
When I complained, the answer was...we don't have time to check every thread you posted to find the offending one.
Whatever...
I am curious what Dr.C says about your situation.
_______________________________
Jim,
in regards to the laser. I did ask the tech about IPL, but the way she explained it, if I remember correctly, they use IPL on slightly larger veins. Also with IPL only one vein at a time can be zapped.
V-beam covers one square inch at a time, and is a one time shot. They use it for those tiny spider veins that are just beneath the surface of the skin, and are only 1-5 mm long.
I don't know what your spiders look like, maybe yours are differnt, even though both of ours came from Rosacea, and lets not forget, which came from Interferon :)
Haha, your diet...well I asked you once to give me a typical day of your eating habits...you didn't...which let me to think, that you are hiding some Kentucky fried chicken and Salami in the closet :)
Ina
Have an Answer?
You are reading content posted in the Hepatitis Social Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
