Aa
mauilady relapsed
I read in one of the other threads that 'mauilady' relapsed. Something is wrong with her computer and for some reason she can't open a thread - only can post within a thread, so I asked her if she would want me to open one for her to let you guys know of her relapse.
As most of you will remember, mauilady was finished with tx about the same time I was. She was here alot offering support and encouragement and I knew you guys would all want to give here a word of encouragement concerning the bad news she has received.
MO
As most of you will remember, mauilady was finished with tx about the same time I was. She was here alot offering support and encouragement and I knew you guys would all want to give here a word of encouragement concerning the bad news she has received.
MO
Hey lady! So sorry to hear about your relapse. I did too. I didn't want anyone to know either. Actually there are a few I haven't mentioned the fact to! Ya know the ones who look at you like a leper anyway? Rather have them think I cleared....lol
How come you did 24 weeks as a 1a? I don't remember that part of your story....
Good to see you again!
How come you did 24 weeks as a 1a? I don't remember that part of your story....
Good to see you again!
I am so sorry to hear this news. I think I was in the group that stopped around the same time 6/15. I have been wondering how everyone is doing. I am glad you are feeling well. I agree about the perspective, mine has changed dramatically since tx. Take care! ;-)
Thanks everyone for all your support; life is good!! Or should I say GREAT? I can't tell you how much fun I have being sober, and being able to enjoy all that I do. Before, in my past drinking life, it seems that I missed so much. Guess you could say that it is a good thing that I was diagnosed with HepC; it's given me the chance to look at life from a new perspective.
We just have to make the most out of what we've got, good or bad. As JP Souza once said:
Dance as though no one is watching,
Love as though you've never been hurt before,
Sing as though no one can hear you,
Live as though heaven is on earth.
YEAH!!
We just have to make the most out of what we've got, good or bad. As JP Souza once said:
Dance as though no one is watching,
Love as though you've never been hurt before,
Sing as though no one can hear you,
Live as though heaven is on earth.
YEAH!!
Thanks for letting us know myown
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Sure, no problem. I knew you all would want to know and Maui needs the support as we all do when hearing bad news such as that.
Hugs
MO
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Sure, no problem. I knew you all would want to know and Maui needs the support as we all do when hearing bad news such as that.
Hugs
MO
I am so sorry to hear your news. Not what anyone wants to hear after going thru tx.
Enjoy your doggies, and mandolin playing. And enjoy your life!! Plenty of time to decide how to re treat should you decide.
Wishing you the best of everything!
Enjoy your doggies, and mandolin playing. And enjoy your life!! Plenty of time to decide how to re treat should you decide.
Wishing you the best of everything!
ML: I'm curious to see what advice your hepatologist gives you.
You know how sorry I am that we have to commiserate about something like this. We hoped to be celebrating instead. . .
zazza: You have a good memory. She is geno 1, RVR and did 24 weeks.
You know how sorry I am that we have to commiserate about something like this. We hoped to be celebrating instead. . .
zazza: You have a good memory. She is geno 1, RVR and did 24 weeks.
So sorry, mauilady! If my memory does not fail me, there were some special details which made me notice you while you were tx'ing. Genotype 1 with a low baseline viral load and RVR doing 24 weeks? Could that be it? Please refresh my memory on your stats.
Dag Nabbit!! Tell me it ain't so Mauilady!! Thats a bummer. I'm really sorry to hear. I think there was a group of us that finished kinda close to each other and as time went on and the news of relapsing diminished, hopes were high that those few left were reaching SVR. Don't give up the ship yet though. Enjoy your well deserved rest before making any decisions. Putting it into perspective, time really is on our side. Take care!
(Hmmm...ya think maybe I'd just forget that I had to pee or something??? LMAO!) ...
Oh, too funny! LMAO! Very possible :}
On the leg pain..... many of us seem to have that. That is what led me to keep going to Dr.s and got dx'd. And much worse on tx! Yet , never get an answer on what cause's it!
Let me know if you ever get an answer for it.
Good attitude. Happy mandolin playing, and enjoying your life!
LL
Oh, too funny! LMAO! Very possible :}
On the leg pain..... many of us seem to have that. That is what led me to keep going to Dr.s and got dx'd. And much worse on tx! Yet , never get an answer on what cause's it!
Let me know if you ever get an answer for it.
Good attitude. Happy mandolin playing, and enjoying your life!
LL
Thanks, MO, for doing this.
When I first found out I had relapsed (1 1/2 mos. ago) I was sort of reluctant to tell people; I felt like I was letting my friends down. LOL.... But then after a while, I tried posting, and every time I tried, my browser crashed. In fact, it wants to crash every time I try tweaking anything on this forum. I have no problems with other websites.
As far as retreating, I'm straddling the fence. I won't see my hepatologist for two more weeks, at which time I will find out what more of my options are. Like maybe trying the new meds, should I decide to treat again. I've made a note to ask him about Alinia.
Honestly, though, the thought of going through TX again completely turns me off. My WBCs are still way low (2.8). But I feel great, other than a lot of pain in my legs, which may or may not be related to TX/HCV. (Old age?!) The worst aspects of TX for me were the itching and loss of muscle tone, which also began to include loss of bladder/bowel control. No one seems to want to talk about THAT one, but it became a reality for me; thank god I can put it into PAST tense, but it took 4 months to finally resolve itself. I guess the loss of my mental faculties was also a big minus. (Hmmm...ya think maybe I'd just forget that I had to pee or something??? LMAO!)
Since ending TX, aside from getting my life back, my mandolin playing has greatly improved and I'm having so much fun now with it, I can't bear the thought of jeopardizing that major part of my life. So...... I'll try to keep you all posted. If you don't hear from me for a while, it'll be because of this #!%&*!?! new format.
Hang in there, everyone!
Hugs, Michelle
When I first found out I had relapsed (1 1/2 mos. ago) I was sort of reluctant to tell people; I felt like I was letting my friends down. LOL.... But then after a while, I tried posting, and every time I tried, my browser crashed. In fact, it wants to crash every time I try tweaking anything on this forum. I have no problems with other websites.
As far as retreating, I'm straddling the fence. I won't see my hepatologist for two more weeks, at which time I will find out what more of my options are. Like maybe trying the new meds, should I decide to treat again. I've made a note to ask him about Alinia.
Honestly, though, the thought of going through TX again completely turns me off. My WBCs are still way low (2.8). But I feel great, other than a lot of pain in my legs, which may or may not be related to TX/HCV. (Old age?!) The worst aspects of TX for me were the itching and loss of muscle tone, which also began to include loss of bladder/bowel control. No one seems to want to talk about THAT one, but it became a reality for me; thank god I can put it into PAST tense, but it took 4 months to finally resolve itself. I guess the loss of my mental faculties was also a big minus. (Hmmm...ya think maybe I'd just forget that I had to pee or something??? LMAO!)
Since ending TX, aside from getting my life back, my mandolin playing has greatly improved and I'm having so much fun now with it, I can't bear the thought of jeopardizing that major part of my life. So...... I'll try to keep you all posted. If you don't hear from me for a while, it'll be because of this #!%&*!?! new format.
Hang in there, everyone!
Hugs, Michelle
I remember her well, please tell her I wish her all the best, and I hope she has garnered some good things from treating anyway, better histology, etc etc...many do...and that she feels better and better as the time passes and better things are on the way....
Sooooo sorry, mlady. We're hearing too many of these the past few days.
Keep reading, there are several new things coming up, Willy posted on other side on one looking good (haven't been 'over there' much, keeping the brain light right now) but read a few. I know it's got to be so hard to hear :{
Feel better, there's time and hope!
LL
Keep reading, there are several new things coming up, Willy posted on other side on one looking good (haven't been 'over there' much, keeping the brain light right now) but read a few. I know it's got to be so hard to hear :{
Feel better, there's time and hope!
LL
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