Aa
UND at Week 6 AM&Azing
I posted this in the R1626 thread for those that venture in there but wanted to post this all on it's own
Week 6 results today - UND to a sensitivity of <15
I know the war isn't quite over yet .. but UND is sure one big battle victory in that war.
There is no way I would have managed nearly as well without the support, knowledge, patience and understanding of everyone here on this forum. No better cohorts could there be than on this forum right here. You all are like gold to me.
I get to tell my kids now. How lovely is that.
And having said all that ..... I have to say that Andiamo's UND is still the sweetest news I've heard all day...just not the sweetest news my kids will hear today. :)
Bless you all. You all have surely blessed me.
Regards,
Trish
Week 6 results today - UND to a sensitivity of <15
I know the war isn't quite over yet .. but UND is sure one big battle victory in that war.
There is no way I would have managed nearly as well without the support, knowledge, patience and understanding of everyone here on this forum. No better cohorts could there be than on this forum right here. You all are like gold to me.
I get to tell my kids now. How lovely is that.
And having said all that ..... I have to say that Andiamo's UND is still the sweetest news I've heard all day...just not the sweetest news my kids will hear today. :)
Bless you all. You all have surely blessed me.
Regards,
Trish
DT .. I'm in the Hoffman LaRoche R1626 trial, it's another PI, only a polymerase inhibitor whereas Telaprevir is a protease inhibitor.
The thread I referred to is here: http://www.medhelp.org/posts/show/465519 - we've been sharing results and info about our trial experiences with each other as we go along and it's been a great help to sort through things as they come up.
So no .. I'm not on regular treatment. I'm taking Peg but not sure if it's at half dose or full. I'm taking ribavirin and it's at full dose. Then there's the trial drug, and however much of that I'm on. All will be revealed to us at the end.
Alternative tx's .. by that if you mean are there alternatives to interferon and ribavirin, that's the main treatment. If you were going to treat, that's your core. Then there are ways of approaching that treatment and then there are other things people are starting to add to the mix and ways to tweak your traditional treatment to a certain extent depending on your own circumstances and the attitude of the docs taking care of you.
Trials are another matter. There are trial drugs being tested at the moment and others coming along that we're hoping will improve treatment regimens and outcomes for all of us and those coming after us.
I hope some of that helps?
Thanks for the kind words ... with treatment, we deal with the cards we're dealt and I've been dealt a reasonably good hand so far. I'm able to keep working and keep pushing through a number of other things. I have my bad days too like everyone else and this forum and the people in it are a good support.
Good luck to you starting treatment in June. You're a 2a I see so short(er) treatment regimen for you .. although treatment is treatment! How are you doing with getting all the information you need from your doctors? Keep posting and asking questions. :)
Take care.
Trish
The thread I referred to is here: http://www.medhelp.org/posts/show/465519 - we've been sharing results and info about our trial experiences with each other as we go along and it's been a great help to sort through things as they come up.
So no .. I'm not on regular treatment. I'm taking Peg but not sure if it's at half dose or full. I'm taking ribavirin and it's at full dose. Then there's the trial drug, and however much of that I'm on. All will be revealed to us at the end.
Alternative tx's .. by that if you mean are there alternatives to interferon and ribavirin, that's the main treatment. If you were going to treat, that's your core. Then there are ways of approaching that treatment and then there are other things people are starting to add to the mix and ways to tweak your traditional treatment to a certain extent depending on your own circumstances and the attitude of the docs taking care of you.
Trials are another matter. There are trial drugs being tested at the moment and others coming along that we're hoping will improve treatment regimens and outcomes for all of us and those coming after us.
I hope some of that helps?
Thanks for the kind words ... with treatment, we deal with the cards we're dealt and I've been dealt a reasonably good hand so far. I'm able to keep working and keep pushing through a number of other things. I have my bad days too like everyone else and this forum and the people in it are a good support.
Good luck to you starting treatment in June. You're a 2a I see so short(er) treatment regimen for you .. although treatment is treatment! How are you doing with getting all the information you need from your doctors? Keep posting and asking questions. :)
Take care.
Trish
Wow! What wonderful news to turn on to! I have been away and not online for a couple weeks. I come back to hear such a blessing has occured! 2 blessings indeed!!!
Great inspiration for we newbies! I start treatment in June. With inspiration like this all around me I feel confident I will beat this thing more with a positive attitude like yours Trish than the drugs!
I was wondering Trish, someone mentioned a trial? I missed all that.. did you not take the traditional Peg/Ribavirin tx. Are there other alternative tx's? How can find that thread about the trial?
Congratulations again!!!! :) :) :)
Dragon Tamer
Great inspiration for we newbies! I start treatment in June. With inspiration like this all around me I feel confident I will beat this thing more with a positive attitude like yours Trish than the drugs!
I was wondering Trish, someone mentioned a trial? I missed all that.. did you not take the traditional Peg/Ribavirin tx. Are there other alternative tx's? How can find that thread about the trial?
Congratulations again!!!! :) :) :)
Dragon Tamer
That is ab. fab,( Absolutely Fabulose ) I don't think I've ever written that last word before. I probably had it on a spelling list in fourth grade, but that was like a century ago. So, This all shortens up to- Congrats. Hooray, Yipee, Yay, Thank Heaven. you sure deserve a big squeezie hug, well done, I am sure you know by now, how happy am for you. ( Not so short, but sincere).
Andiamo, same to you, but more of it. Such tenacity, courage, Bravo, Bravisimo!Hugs, Ant B
Andiamo, same to you, but more of it. Such tenacity, courage, Bravo, Bravisimo!Hugs, Ant B
Fantastic news Trish.
dointime
dointime
You know I am just smiling --- and you know I'm like totally giving the cheers sign!
I think it's almost time to pop that Apple Cider Champagne.
*G*
I think it's almost time to pop that Apple Cider Champagne.
*G*
Mikki .. thanks so much .. I'm hoping for good results from you soon too!
Willing .. yes, a long ways to go yet but that is certainly a big motivator. I actually forget the qualifier on that .. but it does date me, doesn't it. :) And you for that matter..lol :)
Thanks Mike, your thoughts are always appreciated.
Bobby...thank you! and I hope we're celebrating SVR together. :)
Elaine ... thank you so much for your thoughts and your note. You have much on your mind and yet you take time to celebrate with me. Your nickname suits you well. I'll continue to keep you and Nick in my thoughts and prayers.
Trish
Willing .. yes, a long ways to go yet but that is certainly a big motivator. I actually forget the qualifier on that .. but it does date me, doesn't it. :) And you for that matter..lol :)
Thanks Mike, your thoughts are always appreciated.
Bobby...thank you! and I hope we're celebrating SVR together. :)
Elaine ... thank you so much for your thoughts and your note. You have much on your mind and yet you take time to celebrate with me. Your nickname suits you well. I'll continue to keep you and Nick in my thoughts and prayers.
Trish
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