Aa
Why
As you all know Im starting tx end of year. Make a long story short every person I spoke to said why give up a year or two of the best years of your life for tx. Why be a guinea pig? Just to add on a few years to your life when your older? Now is the time to enjoy them.
Im so confused they all claim I will get other illnessess from tx and be sorry I ruined the best years.
Im pretty sure I know the answers to all of this but hearing this from people that love me are very disheartening.
Im so confused they all claim I will get other illnessess from tx and be sorry I ruined the best years.
Im pretty sure I know the answers to all of this but hearing this from people that love me are very disheartening.
I am sorry you lost your friend - My Son In Law lost his Father last year to Alcoholic ESLD - they discovered it a few months before he died - He never stopped drinking, so sad...
*dip*
*dip*
as i have heard so often before on this forum...its your liver..its your life...so do what you feel is best for your liver,not what your friends think is best for your life....ultimately it is your liver and your life
Just ask your friends, if the shoe was in the other foot,how would they proceed? Irrespective of what they respond, i am sure they would take the same direction you are taking
the time on treatment will hopefully go fast for you once you start,just pray in the Lord and things will work out for you
just one word of caution...I reiterate what mremeet has to save above..be prepared and knowledgable before going for any trial or before starting tx..it will make your treatment more managable
Wishing you the best
Just ask your friends, if the shoe was in the other foot,how would they proceed? Irrespective of what they respond, i am sure they would take the same direction you are taking
the time on treatment will hopefully go fast for you once you start,just pray in the Lord and things will work out for you
just one word of caution...I reiterate what mremeet has to save above..be prepared and knowledgable before going for any trial or before starting tx..it will make your treatment more managable
Wishing you the best
I was 50 when I was dx w/HCV. I am now (almost) 56 and now in week 26 of tx. I was asymptomatic...no side effects, good bloodwork, stage 1, VL 4 mil, great energy activity, etc. I knew a lot of folks who had treated. Some beat it, some didn't. The disease progresses along, although differently for everyone. Some folks will pass from old age before the dragon rears its head. In others the disease will move rapidly. I figured I will not be any healthier than I am now and decided to take the tx through a clinical study (HCV 796). The study drug has since been stopped due to adverse liver function results in some patients (ALT/AST in the 400's). So far I have been very fortunate. I was UND at week 6 and my AST/ALT is now 17/23 and still UND. I have gone (and going) through most of the sx's..severe body rash, depression, fatigue, brain phog, anemia... I was on Procrit since week 8. My HGB is 10.1 and I am aware of the FDA Black Box Warning. My brother passed from HCV/liver cancer 4 years ago (he was 55), fueled by drinking. I stopped drinking, etc. twenty years ago, which I am sure saved my butt and my liver. If you can, find a local HCV support group. Some hospitals/clinics support them. I found one in my area just by using Google. Good luck.
Everyone has to do this alone...
No matter how much family or support they have - no one else can possibly understand.
Do not listen to anyone who has not been there! Because they cannot understand the feelings, both emotionally and physically.
You need to do what is right for you.
No matter if you have friends or family --- the only person you have to wake up to in the morning is yourself.
You have to decide for your own life --- and either way is right - if it is the right decision for you.
Once a grieving mother told me --- when I told her I understood what she was going thru... she said "Until you have lost a child, you cannot understand - until it is you - in my shoes, you cannot see or feel the depth of the loss that I have - but I thank you for taking the time to think about me and my loss."
I don't think I fully understood what she meant until HCV interrupted my life.
In a way - what she said - fits precisely in the same manner.
No one can understand the feelings, the turmoil, the decisions that need to be made - until they have gone through it all.
No matter how close they are to you - they have no idea what it is like.
So you will have to take your own life in your own hands - and carefully choose.
Both paths hold uncertainties - both paths have good points and bad points.
May your choice be right for you --- and you alone.
Hugs,
Meki
No matter how much family or support they have - no one else can possibly understand.
Do not listen to anyone who has not been there! Because they cannot understand the feelings, both emotionally and physically.
You need to do what is right for you.
No matter if you have friends or family --- the only person you have to wake up to in the morning is yourself.
You have to decide for your own life --- and either way is right - if it is the right decision for you.
Once a grieving mother told me --- when I told her I understood what she was going thru... she said "Until you have lost a child, you cannot understand - until it is you - in my shoes, you cannot see or feel the depth of the loss that I have - but I thank you for taking the time to think about me and my loss."
I don't think I fully understood what she meant until HCV interrupted my life.
In a way - what she said - fits precisely in the same manner.
No one can understand the feelings, the turmoil, the decisions that need to be made - until they have gone through it all.
No matter how close they are to you - they have no idea what it is like.
So you will have to take your own life in your own hands - and carefully choose.
Both paths hold uncertainties - both paths have good points and bad points.
May your choice be right for you --- and you alone.
Hugs,
Meki
I have to say that some of my closest friends I have met through this forum. I'm lucky because I have a large family and had support...but know one but the people here know what it's like. Whether they are txing or not, the many wonderful people here have been a lifeline to me. Many who have a family and friends do not have the support they need.
People will surprise you, perhaps your own strength will surprise you even more. It's disappointing that your friend doesn't agree with you, but hopefully will be there for support anyhow.
My father's girlfriend (he's 81!) did not approve of the choices he made for end stage renal disease, but she's still with him and still loves him.
Good luck sorting this out...
Bug
People will surprise you, perhaps your own strength will surprise you even more. It's disappointing that your friend doesn't agree with you, but hopefully will be there for support anyhow.
My father's girlfriend (he's 81!) did not approve of the choices he made for end stage renal disease, but she's still with him and still loves him.
Good luck sorting this out...
Bug
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