Aa
anything positive outthere
Ready to begin hep c interferon and ribv. Is there anyone out there that got through this without a problem. Im a geno type 1 and a nervous wreck since ive been reading comments on this web site. any one care to give up lifting info??
I have a couple of positives. I don't have to shave my leg or arms anymore. And, my eyelashes grew!
not really great getting around the computer, but would love to have someone to talk with.im in my 5th week and unfortunlaly feeling kinda lousy. I am positive minded and intend on continuing through. I have an gi appt comming up and cant wait to see the blood work. I cont to work everry weekend 12hr shifts at the hospital. Im a nurse in med/surg and rehab units. work has been tiring but im still able to cont. let me know how your dojjing. My first 4 weeks were ok; no real problems. Now im starting to feel the effects.
Have you started treatment yet? I am also Genotype 1a/1b and I am starting treatment 5/14/09. Perhaps we can commiserate together. Since you probably started a couple of weeks ahead of me, can you let me know how things are going for you. Actually, I would love to hear from anyone who has information, advice etc. Thank you.
2 months viral free so far!!!!! How are you doing? havent heard from you in a while?
this is my first week also, I'm experiencing burning throat and chest, i dont know if this normal... im contenplaiting whether i should have waited till 2010 for new or improved treatment
Haven't heard anyone say it is a day at the spa! I agree with Trish about being amazed at the people who get through this. Some have had other challenges to deal with besides the Hep C. Yet, I have seen many successes since I have been here. Some folks have treated multiple times. I have only treated once, but for a long period. I can't say it was fun. It was pretty bad, but I am glad I had the opportunity to get rid of the disease and give myself some good odds for relatively healthy years to come.
The people here on this forum are certainly the most uplifting thing about treatment. I see you have heard from many of them already.
Good luck, don't despair.
The people here on this forum are certainly the most uplifting thing about treatment. I see you have heard from many of them already.
Good luck, don't despair.
The uplifting thing is that there are many people here who are managing to get through the challenges of a tough treatment. We've all experienced lesser and greater difficulties and the uplifting thing is that we discovered how resilient we can be when faced with difficult circumstances, we've found that we can laugh when things are grim and we discovered a strength in each other's shared experience here. The uplifting thing is that we found out that we can be truthful about the really frustrating days and find encouragement and support here. The really uplifting thing is the people who make it through this difficult treatment and then post that their final test result indicates they're cured. That is the most uplifting thing at all. Truth is though, you don't get to that point without putting your time in. The uplifting thing .. is that despite how difficult it is there are people here from all walks of life and circumstances who are doing it and getting that cure.
Everybody's story is different. I worked all the way through treatment. I used weekends to rest up and did the same on week nights if I had to and at different times through treatment I had to. I still managed to take an evening course pretty much all the way through treatment and managed to get out and involved in various things. You learn strategies on how to get by. It's all in the attitude, baby.
The fear was definitely there before treatment but the desire to beat this thing was bigger than the fear. So get your fight on, you can do it too.
Good luck.
Trish
Everybody's story is different. I worked all the way through treatment. I used weekends to rest up and did the same on week nights if I had to and at different times through treatment I had to. I still managed to take an evening course pretty much all the way through treatment and managed to get out and involved in various things. You learn strategies on how to get by. It's all in the attitude, baby.
The fear was definitely there before treatment but the desire to beat this thing was bigger than the fear. So get your fight on, you can do it too.
Good luck.
Trish
I have to agree the fear was the worst for me. I've had the basic itchies and scratchies, but nothing too bad yet.
I am in week 39 of 48. I work part time and go to school part time. Right now I am just sick on being on treatment. So, if that is the worst I am dealing with this far in...I feel fortunate.
I had some problems with my white and red blood counts from week 6 to about week 13..but nothing too bad...just fatigued and had to stay away from sick ppl. I have had only slight hair loss, but have really funky eyebrows that grow straight out...I have grown to like them....they blow in the breeze.
I do find that light excercise helps with the bad days. Bad days for me are fatigue.The biggest problem is getting off the couch. But it always, always makes me feel better. Fresh air and endorphins.
Also, drinking lots of water is pretty much a cure-all for me. The days I feel krappy, I usually have not had enough.
The best thing I can tell you is to take full advantage of all the great people here. Lots of good info and advice. Great shoulders for leaning on.
Good luck. I wish you the best. Please keep us posted.
Isobella
I am in week 39 of 48. I work part time and go to school part time. Right now I am just sick on being on treatment. So, if that is the worst I am dealing with this far in...I feel fortunate.
I had some problems with my white and red blood counts from week 6 to about week 13..but nothing too bad...just fatigued and had to stay away from sick ppl. I have had only slight hair loss, but have really funky eyebrows that grow straight out...I have grown to like them....they blow in the breeze.
I do find that light excercise helps with the bad days. Bad days for me are fatigue.The biggest problem is getting off the couch. But it always, always makes me feel better. Fresh air and endorphins.
Also, drinking lots of water is pretty much a cure-all for me. The days I feel krappy, I usually have not had enough.
The best thing I can tell you is to take full advantage of all the great people here. Lots of good info and advice. Great shoulders for leaning on.
Good luck. I wish you the best. Please keep us posted.
Isobella
I treated 55 weeks am also am genotype I will be 6 months post tx 6-12.
The good news for me is that MANY people gets cured from this slowly progressive disease~
I started having sx after week 6 and had a very hard time with fatigue, hair loss, low hemoglobin, etc. It was tough but I sit here almost 6 months later and I made it thru !
I live alone and ONLY had support from this wonderful forum and a very dear friend.
I managed== NOT easy but I did it! I was UND at three months.post tx. There are MANY sx and I had most, however I knew what I was in for before tx and was mentally ready for the challenge. If I ever had to go thru it again ( TX) I would knowing that I could possibly get rid of this progressive illness, there is HOPE. And I would do it all over again if I had to.....It beats the alternative of this horrible disease.
We can all set our minds to anything we want!
I want to get well!
Please get educated and get as much info as you can.
We will all help you thru it if you decide to tx.
CHARM27
P.S.- Treatment is a journey not a pleasant one at all however some peoples sx's go from mild to severe. Everyone is different..Please remember that!
PEACE - TRY not to have fear- The fear alone can destroy you.
I wish you the very best!
The good news for me is that MANY people gets cured from this slowly progressive disease~
I started having sx after week 6 and had a very hard time with fatigue, hair loss, low hemoglobin, etc. It was tough but I sit here almost 6 months later and I made it thru !
I live alone and ONLY had support from this wonderful forum and a very dear friend.
I managed== NOT easy but I did it! I was UND at three months.post tx. There are MANY sx and I had most, however I knew what I was in for before tx and was mentally ready for the challenge. If I ever had to go thru it again ( TX) I would knowing that I could possibly get rid of this progressive illness, there is HOPE. And I would do it all over again if I had to.....It beats the alternative of this horrible disease.
We can all set our minds to anything we want!
I want to get well!
Please get educated and get as much info as you can.
We will all help you thru it if you decide to tx.
CHARM27
P.S.- Treatment is a journey not a pleasant one at all however some peoples sx's go from mild to severe. Everyone is different..Please remember that!
PEACE - TRY not to have fear- The fear alone can destroy you.
I wish you the very best!
The uplifting thing is that you have found a good website for support. No one can predict how you will react to the treatment but, if you are committed to the treatment and face any side effects head on, you will do okay. You will find a lot of excellent information here to help with any side effects that you might have.
I will do shot number 34 tonight (out of 48) and I am still working full time. Treatment has not been a piece of cake for me but I have ridden out the bad days and enjoyed the good days along the way. The main thing is to remember that if you do have a bad day, just ride it out and it will eventually turn into a better day. Treatment is quite like a box of chocolates -- you never know what you're going to get. :)
But, seriously, once you get your first shot out of the way...you will kick into gear and ride the treatment wave just like the rest of us and you will be okay. :)
I will do shot number 34 tonight (out of 48) and I am still working full time. Treatment has not been a piece of cake for me but I have ridden out the bad days and enjoyed the good days along the way. The main thing is to remember that if you do have a bad day, just ride it out and it will eventually turn into a better day. Treatment is quite like a box of chocolates -- you never know what you're going to get. :)
But, seriously, once you get your first shot out of the way...you will kick into gear and ride the treatment wave just like the rest of us and you will be okay. :)
I learned that I could lean and depend other people. This forum is a great place to go for respite, venting and advice.
I made the 48 weeks and cleared. I made it to the end due to the people on this site. If they could do it, so could I.
I made the 48 weeks and cleared. I made it to the end due to the people on this site. If they could do it, so could I.
Its not a picnic. for me I feel sick 2 days prior to shot .there are things you will read here will make you nervous . but youll read things that will make you laugh .but most of all {for me } youll be right here in real time ,and might find a couple of shoulders to lean on .I get overwhelmed somtimes but just for me I take small bites of imfo at a time ,use what you can . Its helped me . good luck
Uplifting.,..hmmmmmm. Probably the fact that there are forums like MH where you can find others that are in the same situation and willing to share from their experiences. It's been invaluable to me.
I am 17 weeks into tx and have good days and not-so-good days, but each day I tell myself it's one more day that my liver has a chance to beat this virus and start healing. And I keep moving forward.......
Pam
I am 17 weeks into tx and have good days and not-so-good days, but each day I tell myself it's one more day that my liver has a chance to beat this virus and start healing. And I keep moving forward.......
Pam
I'm not sure what you would consider "uplifting." You are about to embark on a long course of treatment for a serious disease. The treatment is difficult and involves drugs with potential side effects that can range from mildly annoying to life threatening. It remains to be seen which ones you will experience, however if you want to get rid of Hep C there is really no alternative. You may as well adopt a philosophical attitude about it.
Perhaps you will find it uplifting to know that I treated 48 weeks for genotype 1a and successfully cleared the virus on my first treatment. It was difficult, but worth it in the end.
Best of luck to you. I hope your side effects will be few and mild, and that you respond quickly to the meds. Meanwhile, keep coming to the forum for information and to vent. You are in good company here, and we will help you all we can.
jd
Perhaps you will find it uplifting to know that I treated 48 weeks for genotype 1a and successfully cleared the virus on my first treatment. It was difficult, but worth it in the end.
Best of luck to you. I hope your side effects will be few and mild, and that you respond quickly to the meds. Meanwhile, keep coming to the forum for information and to vent. You are in good company here, and we will help you all we can.
jd
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