Aa
can-do-man couldn't this time
Hello all, not around here much anymore so most people might not remember me. And most people who do try to forget me. :) Just found out that i relapsed. Disappointed sure, shocked no. As i'm sure not alone in the relapse class. knew the odds was very much against me. Time to figure out plan B now.
Hope the gals around here have been behaving. (not really)
For all the people who is in tx. or getting ready to start don't let this discourage you as alot of people beat this thing. And soon i think we all will.
Now back to misbehaving as i have more fun that way.
Can-do who can but couldn't this time but will.
Hope the gals around here have been behaving. (not really)
For all the people who is in tx. or getting ready to start don't let this discourage you as alot of people beat this thing. And soon i think we all will.
Now back to misbehaving as i have more fun that way.
Can-do who can but couldn't this time but will.
Cando: Jim, good to see your still around. Hope all is well, hope you gave up creame de what stuff, You had be worried. Any suggestions?
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Any suggestions?
It depends on your skin texture and coloring. I actually did give up the "creame de what" but would glad to give you my overstock. Thought you would be the last to visit the otherside, but ya never know.
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Or maybe you were asking for tx suggestions, wasn't sure. Let me know and I'll be glad to share whatever I know, but I did forget most of your treatment history and stats except that you were stage 4.
-- Jim
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Any suggestions?
It depends on your skin texture and coloring. I actually did give up the "creame de what" but would glad to give you my overstock. Thought you would be the last to visit the otherside, but ya never know.
---------------
Or maybe you were asking for tx suggestions, wasn't sure. Let me know and I'll be glad to share whatever I know, but I did forget most of your treatment history and stats except that you were stage 4.
-- Jim
The dreaded post. Darn it. Zach. It was not supposed to happen. I guess that means you will have to keep on popping in occasionally to see if anyone has come up with a new treatment.
Like Jim said, you have probably done a world of good for your liver. I think you said you printed off the thread about all the vitamins and such recommened by HR that would help fibrois. Are you going to take that to your happy hepo and get his take?
I guess all you can do right now is heal from the treatment and take a breather.
frijole
Like Jim said, you have probably done a world of good for your liver. I think you said you printed off the thread about all the vitamins and such recommened by HR that would help fibrois. Are you going to take that to your happy hepo and get his take?
I guess all you can do right now is heal from the treatment and take a breather.
frijole
Sorry to hear the news. I hope you can take a little more recovery time and come up with good advice and a good plan. For me (and still don't have 3 month pcr yet) it was a matter of longer and stronger with the emphasis on stronger. Hope you have some breathing room to possibly include other ingredients with soc. Take care cdm.
It depends on your skin texture and coloring. I actually did give up the "creame de what" but would glad to give you my overstock. Thought you would be the last to visit the otherside, but ya never know.
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Thanks but no thanks on the cream de what stuff, Still on my side of the tracks andd have no plans on going to the other side. If i do i have left orders for people to just shoot me.:) Like they wouldn't like to anyway.
Geno type 1b, stage 4... Slow responder, didn't clear until around week 24 had a 3 and a half log drop at week 12. Extended from 72 weeks to 86. Had a script for 12 weeks more at week 72 plus a extra two weeks that was given to me at week 48 in case my insurance gave me trouble.
Waited for 14 weeks post tx. to have my PCR done. Found out today my viral load was 470,000 was unde from week 24 though the end of tx.
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Thanks but no thanks on the cream de what stuff, Still on my side of the tracks andd have no plans on going to the other side. If i do i have left orders for people to just shoot me.:) Like they wouldn't like to anyway.
Geno type 1b, stage 4... Slow responder, didn't clear until around week 24 had a 3 and a half log drop at week 12. Extended from 72 weeks to 86. Had a script for 12 weeks more at week 72 plus a extra two weeks that was given to me at week 48 in case my insurance gave me trouble.
Waited for 14 weeks post tx. to have my PCR done. Found out today my viral load was 470,000 was unde from week 24 though the end of tx.
Speaking of vitamins/supplements and such, an interesting recent thread on HCV friendly botanicals. And, as you may know, good ole' Coffee has shown to potentially have protective properties with the liver.
http://www.medhelp.org/posts/show/373346
http://www.medhelp.org/posts/show/373346
The relapse isn't surprising given your slow response combined with stage 4. I'm assuming this was the first time you treated?
Suggestions other than "Creme de What":
(1) I always believe in getting as much info as possible before moving on. In your case that might be another biopsy and/or Fibroscan to see what's going on inside. I'd suggest both if feasible. Fibroscan mostly in trial here in the U.S. but you can check with the following center:
http://clinicaltrials.gov/ct2/show/NCT00125762?term=fibroscan&rank=1
Also, Dr. Eugene Schiff in Florida has a private scan and "HR" also has scanned folks here. A post or private mail to "Forseegood" should put you in touch.
(2) More brainpower also helps. Not familiar with who you were treated with. GI? Hepatologist? Ice Cream maker? Never know.
But it really doesn't matter who, I'd still get another opinion -- or two or three -- depending on logistics, resources and energy. The more brains you get working for you the better. At this point, think of each of these doctors as consults, not doctors, and collect as much info and ideas as you can. Of course, bring along your entire medical history, organized up a bit, along with all blood and procedure reports and the original biopsy slide set, not just the biopsy report. What part of the country are you in btw?
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Anyway, that would be how I personally would start to approach things. First, find out where you're at now in terms of histology and speak to as many experienced clinicians as feasible looking for ideas. I would limit my list to hepatologists. Here's a short list of some very good ones and a day or two spent traveling might just be worth it.
Dr. Nezam Afdhal -- Beth Israel Hospital, Boston. (Has a Fibroscan)
http://tinyurl.com/nbavn
Dr. Ira Jacobsen, NY Hospital, NY (Will not take insurance, around $600 for consult but well worth it by all accounts. NYGirl saw him and gave a big thumbs up)
http://www.cornellphysicians.com/imjacobson/
Dr. Douglas Dieterich, Mount Sinai Hospital NY.
http://directory.mssm.edu/faculty/facultyInfo.php?id=21794&deptid=18
Dr. John Mchutchison, MD, Duke
http://www.dukemednews.org/experts/detail.php?id=356
(3) There are lots of new (and old) things to consider when treating again I could go into, with the new PI's (like Vertex/Telaprevir) leading the list. Other things worth mentioning are: Alinia, phlebotomy, double-dosing, pre-dosing ribavirin, etc, etc, -- but I really think that is putting the cart before the horse. The horse again being to collect information -- biopsy and/or Fibroscan -- and then get some good input from the brains in the field who will have the advantage of having your entire medical records in front of them.
(4) Take that job as "Pool Boy" you've been looking for. Find the right pool and nothing else will probably matter.
-- Jim
Suggestions other than "Creme de What":
(1) I always believe in getting as much info as possible before moving on. In your case that might be another biopsy and/or Fibroscan to see what's going on inside. I'd suggest both if feasible. Fibroscan mostly in trial here in the U.S. but you can check with the following center:
http://clinicaltrials.gov/ct2/show/NCT00125762?term=fibroscan&rank=1
Also, Dr. Eugene Schiff in Florida has a private scan and "HR" also has scanned folks here. A post or private mail to "Forseegood" should put you in touch.
(2) More brainpower also helps. Not familiar with who you were treated with. GI? Hepatologist? Ice Cream maker? Never know.
But it really doesn't matter who, I'd still get another opinion -- or two or three -- depending on logistics, resources and energy. The more brains you get working for you the better. At this point, think of each of these doctors as consults, not doctors, and collect as much info and ideas as you can. Of course, bring along your entire medical history, organized up a bit, along with all blood and procedure reports and the original biopsy slide set, not just the biopsy report. What part of the country are you in btw?
--------------
Anyway, that would be how I personally would start to approach things. First, find out where you're at now in terms of histology and speak to as many experienced clinicians as feasible looking for ideas. I would limit my list to hepatologists. Here's a short list of some very good ones and a day or two spent traveling might just be worth it.
Dr. Nezam Afdhal -- Beth Israel Hospital, Boston. (Has a Fibroscan)
http://tinyurl.com/nbavn
Dr. Ira Jacobsen, NY Hospital, NY (Will not take insurance, around $600 for consult but well worth it by all accounts. NYGirl saw him and gave a big thumbs up)
http://www.cornellphysicians.com/imjacobson/
Dr. Douglas Dieterich, Mount Sinai Hospital NY.
http://directory.mssm.edu/faculty/facultyInfo.php?id=21794&deptid=18
Dr. John Mchutchison, MD, Duke
http://www.dukemednews.org/experts/detail.php?id=356
(3) There are lots of new (and old) things to consider when treating again I could go into, with the new PI's (like Vertex/Telaprevir) leading the list. Other things worth mentioning are: Alinia, phlebotomy, double-dosing, pre-dosing ribavirin, etc, etc, -- but I really think that is putting the cart before the horse. The horse again being to collect information -- biopsy and/or Fibroscan -- and then get some good input from the brains in the field who will have the advantage of having your entire medical records in front of them.
(4) Take that job as "Pool Boy" you've been looking for. Find the right pool and nothing else will probably matter.
-- Jim
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