Aa
cancer chemo
anybody know how the cancer chemotherapies compare with ours? Any body know exactly what lance armsrong went through?
Thanks for the well wishes, it does get tough at times, but you have to just keep going. He goes for Pet Scan this morning to see if the 2 weeks of chemo has shrunk the tumors. Friday he will go to Dr. Schiller at UCLA for a re-evaluation before stem cell and to meet with our co-ordinator at the Stem Cell Transfusion center and she will show us all that will take place with him on his stay there. We are waiting for the insurance to approve the procedures of stem cell. They now have all the results to the test they required from my husband before authorizing coverage. Keeping the fingers crossed on that outcome.
Hope all had a nice Easter Sunday.
Cajun
Hope all had a nice Easter Sunday.
Cajun
wow - so hubby started chemo already. My best hopes for the two of you on this. And yes I agree on the marinol - I'd never heard of it - didn't even know what it was - but I've been taking it for quite some time now and find it DOES help me eat. It's a wonderful drug.
Hey *BEAMER*.... {{{HUGS}}} Great To See You!!! Welcome Back!
Cruel... I can tell you "first hand"... Cancer & Radiation TX makes this TX seem like a walk in the park!
;)
Cruel... I can tell you "first hand"... Cancer & Radiation TX makes this TX seem like a walk in the park!
;)
i did 12 weeks of radiation treatmnts after testicular cancer surgery,but no chemo...at one point trx was stopped by low w blood cell count for 5 days...kicked the stuffin outa my energy levels & nausea was a constant problem(trx that w/ a bit of puff) BUT,48 weeks of trx for hep-C was far more difficult and i have decided against entering the race in france this year!..my reactions to trx drugs included incredible mind melting,depression and a general decline in faculties..Today @ 6 months post-trx i am feeling altogethr better,stronger & HAPPY...I wish y'all the best!!!...hello Friole& Flaguy!!!!!!! (-:
thanks for the info, thats just what i needed to hear to quit feeling sorry for myself and be a man! I had mistakenly assumed that our ordeal was obout as bad as it gets. I guess i was wrong and glad to find out. im signing into the daily strenght chemo forum to see what its all about. also im finally having a good day for the first time in a week or two, what a thrill to feel almost normal for a minute! i have you on my chart as 56/72 on the 2nd go round, is this accurate at all? thanks
i am AOK!!!!...tho they have decided my leg pain,sciatica is really a ruptured disc....now that i finished trx i am gettin a few odd body parts rebuilt....i will soon be a like new classic!!..more importantly,how goes your trx?? i visited hollywood fla. this past month thot of you& that tree to be..but the traffic&leg pain kept me hotel bound..How do you manage daily traffic deluge??
Things are ok here too. Acutally, work not far from Hollywood. Trick is drive early and late, avoid the peak times. Makes for a long work day though. Nice weather here, huh?
cruel -- oh oh - chart, huh? Sounds like me when I came on board. I have a little notebook with tons of info of forum folks and a word file with profiles. Now, I am more or less lost, there are so many new folks. Nope. I am not 56/72. I am done. I (stupidly) chose to do 36 weeks after my first sensitive non-detectible PCR whch was at 20 weeks. I was clear by sensitive PCR from that point to the end, but after off treatment in AUgust, my viral load is right back up to the pretreatment levels of about 1.4 million IU/mL. Currently on hold until I decide what to do. Little liver damage.
I am so glad you have had a good day. We deserve a few of them.
Beamer - how the heck are you? Did you just pull out from r that rock you've been hiding under? When is the 6 month PCR or did I miss the post? Fishdoc is done - stopped at 60 -- don't know if you saw that post. Have you thawed out yet in the frozen north?
frijole
I am so glad you have had a good day. We deserve a few of them.
Beamer - how the heck are you? Did you just pull out from r that rock you've been hiding under? When is the 6 month PCR or did I miss the post? Fishdoc is done - stopped at 60 -- don't know if you saw that post. Have you thawed out yet in the frozen north?
frijole
I watched an episode of House where they thought the guy (bike racer) was giving himself shots of epo to help with his racing...of course he wasn't and he had brain cancer but...I would never have known people willingly give themself this drug cause it's so powerful without needing it you know?
Gosh I learn alot from House, tv is a good thing ;)
Gosh I learn alot from House, tv is a good thing ;)
Hey great to see you! Glad to hear you are going to deal with that rupture, I know from experience that once you fix it things will dramatically improve ( I hope I hope) They took those busted up pieces of disc out of me and things started looking up, back pain is now down to a low roar comparitively.Hope you have the best neurosurgeon working on you!
If they start up talking about doing a fusion WAIT on that one, but the disc clean up is a must to try to alleviate that pain you are having. Mine left me with left leg/foot numbness but hey, it beats pain! Are they putting in parts when they clean up the rupture? If so, which ones?
Sounds like things are improving for you but with that rupture I feel for ya. I can relate to the fatigue issue too, we just have to keep in mind this too SHALL PASS. Eventually. You sure have been through a LOT. I miss your happy quirky self around here. Hope the depression is lifting and you are on the mend.Your 6 month PCR was clear???? Big congrats on that one, so very glad you beat it.
I think about you and wonder how you are doing and dream about that PIE. My son is moving back to Berkeley next month so I will be up to see Califia soon! We can compare supplements again LOL
I'll be done txing on the 4th of July! Send up some fireworks to celebrate.
Where'd you go on your vacation?
If they start up talking about doing a fusion WAIT on that one, but the disc clean up is a must to try to alleviate that pain you are having. Mine left me with left leg/foot numbness but hey, it beats pain! Are they putting in parts when they clean up the rupture? If so, which ones?
Sounds like things are improving for you but with that rupture I feel for ya. I can relate to the fatigue issue too, we just have to keep in mind this too SHALL PASS. Eventually. You sure have been through a LOT. I miss your happy quirky self around here. Hope the depression is lifting and you are on the mend.Your 6 month PCR was clear???? Big congrats on that one, so very glad you beat it.
I think about you and wonder how you are doing and dream about that PIE. My son is moving back to Berkeley next month so I will be up to see Califia soon! We can compare supplements again LOL
I'll be done txing on the 4th of July! Send up some fireworks to celebrate.
Where'd you go on your vacation?
Yea, I'd want House for my Dr., too. But, can we put some Dr. McDreamy and Dr. McSteamy in there, too? How about a George Clooney type? I suppose you guys would want some good looking female docs around, too. I mean, they need to be smart, but nice to look at isn't a bad bonus is it? :)
Susan
Susan
I couldn't care less about gender or what my doctor looks. I care about competence, focus and communication. Mike
House is so brilliant in his obnoxious odd ways that it makes me adore him much more than a McDreamy who is just a regular old doctor. House on the other hand can diagnose rare rare rare disorders that nobody has heard of in 100 years spot on, make you love him and hate him all at onceLOL.
Did you see the one with the lady with rabies? That one made me cry more than just about any tv show I've ever seen...who would have figured rabies?
Did you see the one with the cute old lady with syphillis? That one made me laugh.
Gotta love House. Give me the brilliant but oddball guy to fix my hep please!
Did you see the one with the lady with rabies? That one made me cry more than just about any tv show I've ever seen...who would have figured rabies?
Did you see the one with the cute old lady with syphillis? That one made me laugh.
Gotta love House. Give me the brilliant but oddball guy to fix my hep please!
I hate to admit it but I have seen every episode of House. I love that show. He is brilliant and equally quirky. What I didn't know until recently is that Hugh Laurie was born in Oxford to the son of a real doctor. He disguises his English accent so well that even now that I know he's British I cannot detect an accent. Mike
Hubby had the ruptured disk twice and had surgery, went great both times and back to work in 3 weeks, on a roof. Not sure if you are here in NE, but if so I can recommend one of the top surgeons in the country.
Good to hear from you!
Good to hear from you!
How are you, long time no hear. Hope all is well with you, sounds like by your post. Get that disc fixed and you will feel a whole lot better. Like you said NEW CLASSIC!!!
Hubby's done with the 5 day 24 hr. chemo sessions and now we wait for the Insurance to okay all the test they required from him in order to authorise the Stem Cell Transfusion. Once they authorise, he starts harvesting stem cell to freeze and then Extremely strong Chemo and then replacing his stem cell with what was frozen. I know he misses his plastering, he has not worked since Thanksgiving. I just went through a round of Sterilizing my room for when he returns from UCLA.
The Chemo's are soooooooo different from this one and the one we do on tx and yet the same in many ways. He gets really really sick after the week stay in the hospital. The only thing that worked on his neasua was MARINOL, cannabis in a pill form. Like day and night. The other very very expensive pill did not work. GO FIGURE!!!!!!!!!!
Good to see you post.
Have a great weekend holiday.
Cajun
Hubby's done with the 5 day 24 hr. chemo sessions and now we wait for the Insurance to okay all the test they required from him in order to authorise the Stem Cell Transfusion. Once they authorise, he starts harvesting stem cell to freeze and then Extremely strong Chemo and then replacing his stem cell with what was frozen. I know he misses his plastering, he has not worked since Thanksgiving. I just went through a round of Sterilizing my room for when he returns from UCLA.
The Chemo's are soooooooo different from this one and the one we do on tx and yet the same in many ways. He gets really really sick after the week stay in the hospital. The only thing that worked on his neasua was MARINOL, cannabis in a pill form. Like day and night. The other very very expensive pill did not work. GO FIGURE!!!!!!!!!!
Good to see you post.
Have a great weekend holiday.
Cajun
Boy you sure do have your hands full. I keep you guys in my prayers.
Sometimes you gotta wonder, how much more? But he won't give you more than you can handle! Take care of yourself too!
Sometimes you gotta wonder, how much more? But he won't give you more than you can handle! Take care of yourself too!
My you are on top of it this morning. Didn't some of those bikers inject their own blood cells too?
cruel - I had my weekly bloodwork done in the oncology department of the hospital which was where the hemotologist officed. Sitting there week after week and seeing the same faces and seeing the decline of some of them put a lot of things in perspective for me. I was particularly drawn to the face of one beautiful hispanic woman who was there every week with her loving husband. As time went by, she was less attentive, and then asleep in her wheelchair, and then I saw her no more. I had my blood drawn one day with a young woman who shared my birthday. (we have to tell our birthdays for identification each time). She was so young and had a scarf to cover her bald hair. After we both had our blood drawn I saw her smiling with her mom and pointing to me and I was moved.
No, cruel, it is not the same. Hep C is not life threatening (for most) to the extent that cancer is, and the drugs, although similar and in fact sometimes the same, do not have nearly the dreadful side effects. I have a friend right now dying of lung cancer - she is 55. We shared stories, and maybe I can identfy with her more than others, but believe me, cruel, we have it easy.
That is not to say this is not chemotherapy. That is not to say our side effects aren't awful - and for some worse than others. I think you can confidently tell others you are going through chemotherapy.
frijole
cruel - I had my weekly bloodwork done in the oncology department of the hospital which was where the hemotologist officed. Sitting there week after week and seeing the same faces and seeing the decline of some of them put a lot of things in perspective for me. I was particularly drawn to the face of one beautiful hispanic woman who was there every week with her loving husband. As time went by, she was less attentive, and then asleep in her wheelchair, and then I saw her no more. I had my blood drawn one day with a young woman who shared my birthday. (we have to tell our birthdays for identification each time). She was so young and had a scarf to cover her bald hair. After we both had our blood drawn I saw her smiling with her mom and pointing to me and I was moved.
No, cruel, it is not the same. Hep C is not life threatening (for most) to the extent that cancer is, and the drugs, although similar and in fact sometimes the same, do not have nearly the dreadful side effects. I have a friend right now dying of lung cancer - she is 55. We shared stories, and maybe I can identfy with her more than others, but believe me, cruel, we have it easy.
That is not to say this is not chemotherapy. That is not to say our side effects aren't awful - and for some worse than others. I think you can confidently tell others you are going through chemotherapy.
frijole
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