Sweeeeeeeeeeeeeeeeet ! LOL
Tammy
Hi all :) Was in the mtns., business/pleasure.
Thanks for asking Tammy. I have been stirring up a little dust around here, just not as much ;)
Yes, getting back to life leaves much less time to keep up with forums, sites. I'm on another also, Harley site, runs, meets, friends, etc and on tx I was home bound and this little lap top saved my sanity! (along with many here, saved my sanity). Friends used to joke that I had more social life sick in bed than they do in 'the real world', lol. But I am a social butterfly ;) I'm also a mile a minute, 24/7 girl and back to that, tho it took 7-8 mths, post tx. I want a couple 'sick days' to relax, lol!
Will ALWAYS check in here, breeze thru. It was my life line thru H*LL!
Mikkimoe.....glad to see you, think of you more often than you know in my back to TOO busy life.
My best to all you special people, LL
Got some relief today with "Consorta" - took a few docs but wow what a difference with the fatigue level. Funny never needed it on tx - the Riba seemed to buzz me - was up all night on the forums (hard to believe I would think those were the good ole days) yikes
Deb - the fires came close but we mostly just got the ashes and smoke - my lungs still hurt - felt sorry for the horses - tried to invent a horses dust mask - wasn't to successful
4C-Good started tx? Good for her and I hope she is doing well.
OOOOOH how I wish I could dance like that!!!!!!!!!!!!!!! I'd be out there tearing it up!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Okay Let's Dance http://uk.youtube.com/watch?v=Zdz88MBWomo
U first
Mikkimoe-------------- Thank You.
spcecst2, I agree.If someone offends you and the post is starting to get to you.Stop, don't read, ignore, move on.I also pray for all to reach SVR.
Tammy
I really don’t see any names on this forum that have been coming here longer than I have, so I can say that this stuff has always gone on, fake poster’s, poster’s who get off on stirring things up etc… etc….. etc….. , and I can say that I’ve read a lot of post that I’ve grabbed info from that helped me put together my latest plan of attack (I did independently research the info gathered here) and I’ve personally taken pleasure in the old days cranking people up, I can’t understand how people take anything personally on this forum, it’s just a forum, take the good and just ignore the rest, take the good and play with the people who come here to stir the pot, but don’t take things personally, just don’t take anything personally!!!!!!!!!!!!!!!!!!!!!!!!! Have fun and blow it off!!!!!!!!! I pray for everyone who struggles with this dragon!!!!!!!!!! And don’t take life on here so serious!!!! Peace Love and What ever turns!!!!!!!!!!!!!!!!! And if anyone wants to go at it, lets dance!!!!!!!!!!!!!!!!! Cause it don't bother meeeeeeeee!!!!!!!!!!!!!!! I got the gold a couple of weeks ago!!!!!!!!!!!!!
I was thinkin' about you too. Hope you start feelin better. Did any docs mention cymbalta? It worked really well for me. Hope the horses are doin' good!!
Denise
How are you and the horses from the fires? Been so worried about you! Can't find number again!
Love you honey, know its hard to cope, I know its one slow day at a time. huge hugs,
Deb
It's so good to hear from you. So sorry to hear that your suffering is still ongoing. It's really heart breaking that you have been and still are going through so much pain. I sincerely pray that you will soon get a break.
Thanks for taking the time to let us know how you are.
Hugs, marcia
Hi - I'm here - well whats left of me is...looks like I got dealt the trifecta on my post tx (SEVERE RA flare, nueropathy, Fibromalgia and now Chronic Fatigue)
There is some light at the end of the tunnel though - my RA has gotten better with the Rituxan infusions but I have become so fatigued that I can neither mentally or physically keep up with the forums or even the laundry for that matter (Thank God I'm on disability huh?) But I had a blast of insomnia tonight and was happy to see that my buds were asking about me. I have heard stories of miraculous recoveries at 6 and 12 months post from these dreeded hepta-manifistations - keep them coming - I so need to believe it can happen to me. I really miss my life and would really like it back now.
I love you guys and think of you often...was so good to hear from you..oh and our buddy 4cgood is doing fine... so far, it's early in her treatment. We'll keep her in our thoughts and prayers.
If I can get something for this fatigue and depression I'd like to get online more often - still seeing lotsa Docs. Hope I'm still UND - I'm waiting till Jan (my 6 mo post) to find out. Don't want to ruin the holidays,
mega hugs,
mikkimoe
I too have been following the HCV Forums and various member's journals for some time and wondered about Forseegood & LadyLauri.
LAgirl is the only other I recall offhand who comes to mind that is still around and contributes.
I can appreciate that folks get on with their lives and hold that against no one.
Still, it is encouraging to hear from others who have SVR and got their lives
back. :)
I sent them messages and when I hear I'll let ya's know how they are.Thanks Again
Tammy
Meki posted on the c community I think this morning.Thanks for the information.I'll also send them a note.
Tammy
LL is totally enjoying svr life! imagine her zooming around on that big harley, I hear from, Mikkie she was UND but had to stop, her poor body couldn't hang, she still is struggling, but getting a bit better, her RA even before tx was pretty bad,
I am worried about Mekkie, will try and call her,
Thanks for all the comments.I have seen Lady Lauri and Meki post in the past week but was wondering about mikkimoe.I know she's had one hxxx of a ride and was just wondering...
All, I understand where one would need a break after grasping SVR !
Holding it in your hands.Slowly letting the meds leave your body with alot of people the sides it leaves behind.It's really sad that hepatitis is what bonds us.
I remember Nov 07, when I found out I had this and reading about some of you guys meeting in other States, if only for lunch.If people could reach in their pockets and spend money doing that I thought it was more than a bond.
So I hope these Ladies didn't leave with bitterness that bothers them.
I wish they have SVR and live their lives to the FULLEST.
I want to Thank the people whom have helped me and that is many.
I wish the best for ALL !
Willy you hit the nail on the head with your post.I agree .You do understand people.
Maybe someday the Ladies will come back and I'm sure this forum will Welcome them with Open Arms.
Good Luck To All and Again, Thank You !
Tammy
I was like that in the begining JD, I find i go in spurts. I always answer pms, but find myself drifting sometimes. I am trying to spend less time. i also rarely read anything over a paragraph or two long, So tend to read people who are short and sweet!
I cannot speak for anyone else, but while I was txing this forum was my lifeline and I spent a lot of time online. I got great information and felt less isolated because I could reach out to you fine people. I find that now I have finished treatment and resumed working it is hard to find time to keep up with the forum. I check in now and then but there is so much catching up to be done in other areas of my life that I have to limit my participation somewhat.
" Sometimes any of us spend time here when we should be partaking in other endeavors. It's possible that many of us spend too much time on line neglecting our other *real* life. "
Very true words Willy. I have a life and not much time between working and home to dwell on myself. This is great place to seek knowledge and comfort, but I am ultimately responsible for my own happiness and in order to be happy, I must take the initiative to make that happen. Can't depend on a public forum for that even though I have made some great friends.
If I chose to leave, it will not be because someones anger has driven me away. I don't hold grudges. I know how to ignore those that don't have a positive impact on my life.
Trinity
People change, find it is healthier sometimes to get away from this., I have seen enough spite on here to breath different air,
I am worried about Mikki, the fires have been in her area, hope she is ok,
I know exactly what you mean. I haven't been on this site long enough to have known the people you listed but I also visit another Hep C site that I have been on longer and I got to know the "regulars" really well on that site. Then some of them just dropped out of site after some trivial arguments on the board. I too think of the "missing" quite often (though my missing are different than yours) and wonder how they are. It's human nature to bond and it human nature to miss it when it's gone.
I can't speak for other people but people come and go for various reasons.
A very common one is that people who SVR may simply drift away since they may have less need of the board. I don't think that is a bad thing. We all have the goal of getting a cure and almost forgetting we were ever sick. Sometimes too.....following treatment one may have a need to get caught up financially.... or pick up on ones housekeeping, ones fitness, relationship or job that may have been back burnered during TX. Once again; this is a type of recovery that I hope for everybody.
For people who simply decide to take a break. I still say good for them too. Sometimes any of us spend time here when we should be partaking in other endeavors. It's possible that many of us spend too much time on line neglecting our other *real* life.
Sometimes people leave because it can be an unhealthy place. If one has ever been treated shabbily it can still leave a type of hurt. People have different comfort levels about communication. We may feel that we "know" each other and can be informal but really we do not. Underneath it all we (most of us) still have Hep C and we have to take care of ourselves. It could be that some threads impose a type of stress that we just don't need......and so some people could opt out. Basically....even the toughest of us try to avoid negativity and move towards the happy or positive. I'm just speaking generally and not about any one person or one thread....or even this forum.
best,
Willy