Jim, have you seen this?

[Myown]

Well, here's another g2 study to add to the 'easy geno." Have you seen this study? (I don't want to take credit for finding it, mike sent it to me the other day.) I am throwing it out to you incase you have any specific questions you think I should ask my doctor.

But anyhow, what do you think about it? I am hoping I can get tested somehow to see if I fall into this category rather than going through another tx for nothing if that be the case.
I have never heard of this mentioned before (some not cureable) - not here on forum nor any of my doctors.
If you fail first tx, they just say 'well next time should hopefully clear it cause your T cells have memory."

When I talk to my doc about studies, sometimes he says "oh don't worry about it, you can't believe every study."

But anyhow, do you have any opinion? This is definitely one to stump doctors with. I bet very few are aware of this study.
To tell you the truth if I didn't have all the meds and stuff, I think I would skip tx because I think I would take another route after researching some things - not talking about alternative, but more towards drugs to help my immune system switch over. I really - really would try to talk my doc into trying something on me. He'd probably do it too - anything to shut me up. j/k - well actually I am serious and not kidding:)

So if you have any thought about this study, I would appreciate your input.
MO

http://tinyurl.com/29abkb

[Myown]

Hi Elaine,
Yes I am definitely txing - you read right. I am already txing (pre-dosing) but I am looking into different things which really have my interest the more I tap into them.

Thanks for wishing me well. I hope and pray that things work out real soon for Nick.
Hugs back to you,
MO

[Myown]

You rode your bike, you faker you. Me and FlGuy tiptoed into your garage last night and he installed a "Nanny Cam" on your bike. Please slow down. Maybe when you watch yourself on film, you will wake up and stop this speeding nonsense.
MO

http://www.youtube.com/watch?v=SetgRrdJiGs&feature=related

[Myown]

Have an Insulin test done.
Then Calc your Insulin Resistance. It might surprise you.
-----------------------------------
hi CS, did the test already - thanks.


Dointime!! No I never heard of that drug, BUT IT PROVES I am onto something!
MO
I'll talk to my hep doc about that drug - thanks!!  No wonder they all look at me like they are suprised I know this stuff (on my own),,,,I am on to something. I probably will have to just do the regular tx, but no doubt I will be having a long discussion with my hep doc about all of this. Thanks again.

[dointime]

I'm dredging up old stuff now but remember Zadaxin?  I believe the whole idea of that drug was to help the immune system switch from th2 to th1 response.  It did not get good results for hcv and nobody talks about it now, but I wonder if maybe it could get good results in some particular cases and with the right usage.  Not advising you try it though.  

dointime      

[nygirl7]

That is something that has popped up numerous times over the years that definitely bares looking in to.

"immune system and since we all know the immune system seems to be the reason why some relapse etc...."

Myown the singular pupose of treatment is TO train our immune system to beat this thing down and hold it down. It's not like the interferon "kills" the virus and then the riba "wont let it replicate" in laymans terms like we always say.  It's ALL about the immune system.

While I was on treatment I didn't get one virus of flubug or anything at all like that. This last time everyone in my company had the WORST flu I've ever seen in my life = even my boss was out for almost ten days. I had nothing not even a sniffle.

I think once we do 'switch that flip' we are left with some heck of an immune system to deal with silly little viruses and things like that.

It's worth trying to get there just for that - let alone for the rest of all your troubles and problems which it could probably help as well.

Don't give up. It's not like you at all.

[CockSparrow]

Have an Insulin test done.
Then Calc your Insulin Resistance. It might surprise you.

CS

[mikesimon]

I'm scared to ride. There is too much silt and gravel still on the road and I really don't want to wreck again. I doubt I would live through another so I will wait for a huge rain to wash the roads clean and safe. Mike, the timid biker

[Myown]

Yes that more like me, guess it was a typo - good eye simon.

bye, its tooooooo nice to be inside, stuck inside all day - getting labs then sitting with my mother gettting her tx and now here at the computer, so ANYHOO, time to go.

You should be riding your bike instead of working.

MO

[mikesimon]

"But anyhow if my doc says to go thru with tx -as I am sure he will, I will first see if I can get that amino test - whatever that is."

Did you mean to say: "But anyhoo..........."?

It just sounds more like you. Mike

[Myown]

Thanks for your response Jim. Uhm, I think that even as a relapser that this test would show if there was a problem in this area - not that I have any idea what this test is, but I figure if there is a red flag - then there is a red flag whether naive or relapser(?)- whatever marker they are looking for would be present in either case - if its there its there...but I'm just guessing of course.

As far as a different approach - I have been reading as much as I possibly can on the immune system and since we all know the immune system seems to be the reason why some relapse etc....but anyhow, I have ideas that pop into my head and then I google and I have found lots of interesting stuff - Dr. Paul Cheney and his approach to getting the immune system to go from a TH2 response to TH1... He uses drugs and in some cases natural stuff, but from what I have read >IMO< I can see why some that have or had CFID can fail tx. Some peoples immune system seems to be stuck in a Th2 mode and I have to find out if ALL HEPPERS are in a TH2 or just some. I know that I am - in humoral response mode but at the time my Rheumy told me, it made no sense to me and I can't remember whether he said that all heppers are in this mode or some or what,,,but I will find out. As I told a doc that I went to the other day,...if I don't look at myself as a science project, I panic or get depressed. Right now I feel good - thank God because I am in "science project mode," and have been for a while. The doctor laughed when I said that, but said he understood. But anyhow if my doc says to go thru with tx -as I am sure he will, I will first see if I can get that amino test - whatever that is. And if he thinks it is not a good study for some reason, I will take his word and start tx. He says you can always find a study on anything and everything - one contradicts the next. Not his exact words, (my memory problems) but the jist.

So thats the story - gotta run - so nice out today!
Thanks again Jim,
MO

[jmjm530]

I understand you're still trying to understand why you relapsed, but at least by the abstract, not sure this particular amino acid test is developed/predictive enough to be helpful in your case, especially since it was I believe used with tx naives and you are a relapser.

Not sure what you mean by "more towards drugs to help my immune system switch over", but I'll guess you talking about treating lingering symptons from the treatment drugs -- mainly interferon -- as opposed to concentrating on going into combat again against the virus? In any event, there are lots of reasons to treat -- same with not to treat -- but "having all the meds and stuff" is not a good reason in my book. If you stick with your decision to treat, then by all means treat. But if you think you'd be better off waiting, then return the drugs, and wait. My two cents.

-- Jim