Aa
Treatment date set...
Well, I did it...I'm starting hep tx on Feb 25...got the pegsys and pegintron ordered...Gave the workplace a "heads up"...Anything else to do except wait? I've really appreciated the inside "scoop" on this....Any survival info is welcome! ( Ha! A new theme for a Survivor series? lol)
Read my post Hope it did not sound negative. I worked 3 doubles back to back. Been of meds a couple months still a little tired. Trying to pay of my Harley and SUV before starting tx again. I forgot to say some psitive things. I know you are in the med field and have worries. I am a nurse altough I had brain fog it seemed to be with bills appt. dates tings like that. Only told a few coworkers. Know one seemed to notice just kept asking what great diet had I found. When the anemia set in people did notice i looked tired than usual. Work seemed to be were i really get it together the most. You know what you I when back to my school days did an extra check on myself with med administrations and calculations. Caring for ill people seemed to help my mental downs and physical downs to. The issues were may more intense than mine.
Good luck Take the advice to learn as much as possible before tx. I wish I would have. There was alot going on in my life at time of dx. It all seemed to happen so fast maybe I was in a little denial. Before I knew it brain fog was there. I tied to work away my sides and woorries and completely exhausted myself. Take it easy one day at a time. I have a great husband but he says he wishes he would have learned more prior to tx. It was hard on my family to see me go from workaholic and supermom to just doing what had to be done. I did not resond to tx Peg/Riba. Going to try infergen this time next year. Going to plan a little better this time. I suggest having a plan for if you have sides you know like all the day to days that seem little but keep a home and family running. Have a good friend and this site to vent. As wonderful as your husband may it might be hard for him at times to understand what you feeling you might not even know. i dont think that alot of people understand how crappy this tx. can be. Stay positive DONT give up GOOD LUCK!!!!!
Wow! Thank you so much! It's really nice to hear from "one who knows"...Some of the guys at work already think I'm a bit of an airhead...Maybe they wouldn't notice a bit of brain fog...Lol You're right about the preparing thing...I think I've covered my bases as much as I can...and I'm prepared for this "dragon hunt"...Yup...got my sword...got my posse (you all) :) ...I'm sure I'm making the correct decision for me...Time to "Git-R-Done" !
( Ha! A new theme for a Survivor series? lol) ....................
Now that would be funny! Bunch of people on tx on an island! Than get it down to one shot left and see who get's it, lol!
Of course, that may not be a bad idea! We deal well with each other :}
Good luck to you! PLEASE do not stress on that 1st dose. It caused me so much anxiety (a bit drug phobic already) and was , for me, no big deal at all. Many of my shots have been 'okay', some rough and so on, but, even looking back on a whiny day, all doable and I think the biggest thing is when -IF- you have a bad day, know the next may be better and let yourself rest, TLC yourself.
I did, as others, make my room into 'my space' (not the site,lol) in new curtains, pillows, fluffy blankets, new sheets (organic sheets!!), candles, heating pad, (why does that make me think of someone ?, lol!) etc. Bought a lap top for any lazy days and sat my family down and let them know how it could, or could not, be. Bought ginger ale, apricot nectar-GREAT for nausea, crackers, p-nut butter, carnation instant breakfast and BREYERS, lot's of that! Prepared work, as you did and so on. Preparing gives us that sense of some control. I prepared for the worst, not in negativity, so than when I didn’t get the ‘worst’, felt better :}
I went from dx to bx to tx in a short time, so I had to learn a LOT in a hurry! Tx is easy for some, rough for some, h*ll for some. For most tho, I think it fall’s in the middle. You may not be up to your usual routine, but you adjust your life to it. You’ll do fine and we’re all here for questions, good days, bad days, and venting days :} Number ONE from this point on…is YOU! Just thru tx and getting SVR. If it’s not a dire emergency, the world will revolve if you can’t help or get it done. (taught to me by those here!)
Cheers to your start on beating these critters, getting ‘em GONE!
LL
Now that would be funny! Bunch of people on tx on an island! Than get it down to one shot left and see who get's it, lol!
Of course, that may not be a bad idea! We deal well with each other :}
Good luck to you! PLEASE do not stress on that 1st dose. It caused me so much anxiety (a bit drug phobic already) and was , for me, no big deal at all. Many of my shots have been 'okay', some rough and so on, but, even looking back on a whiny day, all doable and I think the biggest thing is when -IF- you have a bad day, know the next may be better and let yourself rest, TLC yourself.
I did, as others, make my room into 'my space' (not the site,lol) in new curtains, pillows, fluffy blankets, new sheets (organic sheets!!), candles, heating pad, (why does that make me think of someone ?, lol!) etc. Bought a lap top for any lazy days and sat my family down and let them know how it could, or could not, be. Bought ginger ale, apricot nectar-GREAT for nausea, crackers, p-nut butter, carnation instant breakfast and BREYERS, lot's of that! Prepared work, as you did and so on. Preparing gives us that sense of some control. I prepared for the worst, not in negativity, so than when I didn’t get the ‘worst’, felt better :}
I went from dx to bx to tx in a short time, so I had to learn a LOT in a hurry! Tx is easy for some, rough for some, h*ll for some. For most tho, I think it fall’s in the middle. You may not be up to your usual routine, but you adjust your life to it. You’ll do fine and we’re all here for questions, good days, bad days, and venting days :} Number ONE from this point on…is YOU! Just thru tx and getting SVR. If it’s not a dire emergency, the world will revolve if you can’t help or get it done. (taught to me by those here!)
Cheers to your start on beating these critters, getting ‘em GONE!
LL
Thanks! My optimism is high! My liver doc has even issued a letter to my work requesting that I be on light duty for the first week just in case I need it! I'm most worried about "brain fog" interfering with my decision making...I'm so afraid of potentially making a mistake while injecting patient meds...I guess I just won't know about the sides until I start...sigh...With brain fog, you are aware that your thinking is compromised, right? I hope so..Well, thanks again! :)
Congratulations on your decision! I hope it will go well for and that you experience very few sx. I will tell you that I worked myself into a crazy, bumbling, ranting and hysterical woman before starting tx. I really built myself up and actually came very close to backing out. But, I didn't and I'm glad. Sxs have not been too bad for me and sometimes I even feel really good. The fatigue is probably the worst but even that is not horrendous. I just sleep when I can and it helps tremendously. I work 10 hours per day in the health field and I notice I'm much more tired towards the end of the day. But, I have my bed to look forward to and my wonderful husband who deserves a nobel piece prize for his generosity and patience.I am here for you as well as everyone else. So you are not alone.
The only thing that is important is to learn as much about this disease as possible before the brain fog hits.And order two weeks at a time and maintain the temperature in the fridge at about 5-8 c.
Goodluck and be strong it's not as bad as most make out.
Harry
Goodluck and be strong it's not as bad as most make out.
Harry
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