Aa
thinking out loud here
For those of us who have been on here for more than a couple of months and also, the long term experts......
Does it seem like the anxiety level about Hep C has heightened lately? We are seeing a lot more folks who are worried about exposure and it makes me wonder.....why?
On the one hand I think it is GREAT that there is more attention to HepC which will get cases diagnosed earlier, hopefully and more SVRs, hopefully.
On the other hand, ribarage has me going....oh jeez, quit worrying so danged much when you don't have anything to worry about....
Has anyone else noticed this trend or am i just being a rude jerk for "the other hand" comment above? Sometimes I lose patience when I know I shouldn't - but I really think there's a lot of "new action" going on, huh?
Your thoughts?
Deb
Does it seem like the anxiety level about Hep C has heightened lately? We are seeing a lot more folks who are worried about exposure and it makes me wonder.....why?
On the one hand I think it is GREAT that there is more attention to HepC which will get cases diagnosed earlier, hopefully and more SVRs, hopefully.
On the other hand, ribarage has me going....oh jeez, quit worrying so danged much when you don't have anything to worry about....
Has anyone else noticed this trend or am i just being a rude jerk for "the other hand" comment above? Sometimes I lose patience when I know I shouldn't - but I really think there's a lot of "new action" going on, huh?
Your thoughts?
Deb
Hi sweetie - Hope you are doing okay and have few sides today - Me, I feel like regergatated (sp) doggie doo doo today LOL
There were 3500 people infected in Canada with the HCV, from blood that was sold to this country for the USA - Bill Clinton sold blood from prisoners, full well knowing he could not use it in the USA - so he decided to make money off people's lives - what a guy!! Any whooo - the Government here has passed law to make monetary resititution to those infected with the tainted blood - I am not sure how much money will be given to each person...The Health Unit here (similar to our Health Department) kept records of all persons receiving blood transfusions during a certain time frame and those people have been notified (at least that is what the press tells us)...When I was diagnosed with HCV, I had to register with the Health Unit (all infectious diseases need to register - it's the Doctor's responsibilty to do this) they wanted to assure me that I would be compensated for this...I quickly refused saying I was an American and it was my country that "served" me the tainted cocktail I received in a transfusion, not their's..
So to answer your question (I know I am long winded and ramble these days) all of those infected have been notified, according to the press, and I beleive the final count was 3500...
*dippity do do*
There were 3500 people infected in Canada with the HCV, from blood that was sold to this country for the USA - Bill Clinton sold blood from prisoners, full well knowing he could not use it in the USA - so he decided to make money off people's lives - what a guy!! Any whooo - the Government here has passed law to make monetary resititution to those infected with the tainted blood - I am not sure how much money will be given to each person...The Health Unit here (similar to our Health Department) kept records of all persons receiving blood transfusions during a certain time frame and those people have been notified (at least that is what the press tells us)...When I was diagnosed with HCV, I had to register with the Health Unit (all infectious diseases need to register - it's the Doctor's responsibilty to do this) they wanted to assure me that I would be compensated for this...I quickly refused saying I was an American and it was my country that "served" me the tainted cocktail I received in a transfusion, not their's..
So to answer your question (I know I am long winded and ramble these days) all of those infected have been notified, according to the press, and I beleive the final count was 3500...
*dippity do do*
See, that's what I'm talking about....i had NO IDEA about the Canadian blood taint. This forum is really so incredibly educational for me. I know I'm a better self-care-manager because of it and also a better advocate.
The US government does have its head in the sand....think about the movie "The Band Played On", which is an object lesson for the feds when it comes to HCV.
But the one thing that upsets me is the perception. Sure, some of us got it through IVDU. Some of us didn't. In any case, it is terrible that we can't be all that "open" about our disease because we'll have to spend so much time educating and explaning. I went to a dentist a couple of weeks ago with a boutique implant practice who declined to treat me because of HCV. True story.
I think I am becoming a grump about what's happening with this disease. When I hear about waiting lists for treatment I get scared for those who aren't in the cycle yet. What will happen to them?
The US government does have its head in the sand....think about the movie "The Band Played On", which is an object lesson for the feds when it comes to HCV.
But the one thing that upsets me is the perception. Sure, some of us got it through IVDU. Some of us didn't. In any case, it is terrible that we can't be all that "open" about our disease because we'll have to spend so much time educating and explaning. I went to a dentist a couple of weeks ago with a boutique implant practice who declined to treat me because of HCV. True story.
I think I am becoming a grump about what's happening with this disease. When I hear about waiting lists for treatment I get scared for those who aren't in the cycle yet. What will happen to them?
I think you're absolutely right. I think that's really sad.
I know I'm taking it personally but it makes me feel so weird that folks are so terrified by something I (we) have that they go off like that. I believe in trying to help calm those folks down but afterwards, it's like......ewww......they are so scared of what you have that they lose their minds.
And we have it.
I guess all we can do is be patient and educate.
I know I'm taking it personally but it makes me feel so weird that folks are so terrified by something I (we) have that they go off like that. I believe in trying to help calm those folks down but afterwards, it's like......ewww......they are so scared of what you have that they lose their minds.
And we have it.
I guess all we can do is be patient and educate.
I think you're referring to some of the recent posts where someone expresses fear of contracting hep c when in reality there is no risk.
I've been here for two years now and these types of post are pretty common. You may see a bunch for awhile, then they disappear and then they come back. Some speculate that these posts are a form of internet 'trolling" and it's quite possible a few are. However, these types of posts appear on most health boards from time to time and I believe the majority of them (not all) are genuine and due to lack of knowledge about the disease, in this case HCV. The average person knows almost nothing about HCV, so imagine the types of thoughts that go through their mind when they find out they may have been exposed.
-- Jim
I've been here for two years now and these types of post are pretty common. You may see a bunch for awhile, then they disappear and then they come back. Some speculate that these posts are a form of internet 'trolling" and it's quite possible a few are. However, these types of posts appear on most health boards from time to time and I believe the majority of them (not all) are genuine and due to lack of knowledge about the disease, in this case HCV. The average person knows almost nothing about HCV, so imagine the types of thoughts that go through their mind when they find out they may have been exposed.
-- Jim
was going to email you, was wondering how you were doing and if you've heard anything from SFbaygirl...hope youre feeling better and better, wonder about you!
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