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AM I UNDER THE RIGHT TREATMENT?

Hi Dr.
I was diagnosed with HSV1 and HSV2 in April 2008, but I have been having rashes on the left side
of my head and on my buttock for at least 10 years now. In 2005 I was rushed to the EMR with my whole left side of the body paralized.
After been tested for strokes, tumors etc. I was referred to an ENT clinic where I was diagnosed with Meniere's disease, and treated for it with no success.  A year later that clinic referred me to a Meniere's specialist who's treatment didn't succeed neither. After a long story of agony, this specialist took away the diuretics, leaving me only on Diazepam and Meclizine. He says there's no cure for Meniere's disease.
My symptoms continued increasing in variety and intensity, to the point where
I lost my job, and I am now home unable to lead a normal life.  The worse part of my condition is my loss of memory, confusion, numbness and unclear speech, pressure on the skin of my abdomen (this one since 2002, after an abdominoplastic surgery, but  now constant and horrible), low reflexes, and headache (like stabbing the left side of my brains)
I read on the web about HSE, and I suspect that I have developed the disease.
I'm presently on Valtrex  since April 2008and some symptoms have stopped and others even disappeared (which is a blessing) but I still get rashe on my head, even when they have increased the mgs of Valtrex to 2000 a day.

Would you suggest an HSE test? or
What would you suggest?

Thanks,

Venus2000

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Avatar universal
Thanks for the information.

Venus2000
Helpful - 0
Avatar universal
Hi, and thanks for asking me.
The first thing you should know is that you're not alone. I heard that about a 70% of the American population has some type of herpes. This virus has the ability to hide in our central nervous system, where it stays dormant, which means there are no symptoms. When the virus reactivates, it can attack any part of the body where those nerves are involved. In my case in 2005 the virus reactivated in the left lobe of my brain
and that is what caused my Meniere's attacks which is what I was being treated for up until April this year. That's why my case is now so complicated. Because attack after attack the virus kept on spreading in my body.
Only when an attack with visible symptoms appear, is when we are tested and diagnosed.
I am a good example to prove this statement. I haven't had any lessions on my genitals or mouth, What I did get was a very small pimple on my buttock and pimples all over my head. (which I had for a long time, but always thought they were just pimples). Usually around my menstrual periods.
I had to diagnosed myself, and to get a Dr. to test me for the virus, I had to put myself on an experimental treatment with Acyclovir. My story is very long.

You say you suspect you have oral herpes. That type of herpes is caused by HSV 1
which attacks the upper part of the body. HSV1 attacks from the waist up and HSV2
attacks from the waist down. People who had chicken pox were exposed to HSV1
which is the one responsible for shingles, but it could also be acquired by transmission of an infected person (when active).

My symptoms included everything you mention above and an additional long list.
It all started with an allergy, loss of taste & smell on left side of my mouth, numbness
of left side of my face, itchy left nosetrill and left eye. (I thought I had sinusitis) After a few weeks taking allergy medicines and busters for my immune system, I started to feel dizzi and a few days later, had a spiining vertigo along with paralization of my whole left side of the body (head to toe). Fortunatelly it went away within hours.
The vertigo attacks, ringing in the ear, feeling of fullness and all symptoms of Meniere's disease were present. At the beggining they were once every few months, then once every few weeks and it kept progressing until it became an everyday thing. Each attack involves serious effects such as confussion and loss of memory.
Those vertigos and dizziness have only stopped now, after I'm on an antivirus medication.

If I was you, I would go now that I have the lessions and ask for an HSV test. If you get on suppressive treatment now, you have a better chance than I had to prevent further diseases. Besides, you will be on a better position not to transmit it to others.

Venus2000
,

Helpful - 0
Avatar universal
I am trying to get diagnosis since March 2007.  I believe I may have oral herpes.  From your post, you were diagnosis by the ENT?  How long did it take for them to diagnosis you?  What were all your symptoms?.  nose sores, needles and pins throughout body, dry eyes, tingling in side of hear, ear pains?

Look forward to your response!
Helpful - 0
101028 tn?1419603004
this is not the doctor's forum that you posted this newest post to.  You are charged to post to the doctor's forum so unless it asks for credit card info - your post didn't go to the right forum.

grace
Helpful - 0
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