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Avatar universal

Bit of a complex one

I was diagnosed with herpes last year, both me and my partner got tested at the same time and were both given the same diagnosis of herpes. It's unclear whether one of us gave it to the other or not.

My question however is this; I have lupus as well as the virus, and have noticed that, in the last year I've had  several minor outbreaks, and 2 major ones (one of which is current) and my partner has had none.

I noticed around the forums here that there is some sort of medication you can take to suppress the outbreaks a bit, yet my doctor has never mentioned it. He has only ever suggested aqueous cream (which, I have to say, gives a weird mild burning sensation) and paracetamol for the pain.

I am not currently n any medication for my lupus, but I was wondering if it is possible he hasn't mentioned this treatment to me because of my pre - existing condition?

(Side note: only went googling for herpes advice after a particularly low day enduring an outbreak, a lot of the posts and support here has really cheered me up, thanks a bundle x)
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101028 tn?1419603004
we don't freeze off herpes. we freeze off genital warts and molluscum.  

the rates of genital herpes are highest for hsv1 genitally in the UK so not many folks need to utilize daily suppressive therapy.  how were you both originally diagnosed?  lesion culture I assume - did they type it to know hsv2?

I almost strangled the UK docs who spoke at a cdc std conference a few years ago. finally just pulled out a book and started reading and stopped listening to their awful attitude towards herpes -both testing for it and treating it :(  
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Avatar universal
Thanks a lot for the advice Grace :)

Yeah, here in UK speaking about herpes with my doctor or anything prompts a "well it's your own fault" speech.

I'm gonna have a word with my doctor I think and get him to see sense. I did have treatment once to get them frozen off... 4 treatments a week apart an they stayed away for a good 6 months.

It bloody stupid though the attitude over here, I've got it, my partners got it, my roommate in uni caught it from her ex, and my beet friend got it from her ex as well. And those are just the ones I know about. But still it's this massive social stigma that having an sti is dirty or disgusting. Whereas in my opinion, it's just the same as having cold sores, just caught slightly differently, and a little bit mo uncomfortable.
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Avatar universal
If you're looking for something natural to minimize your outbreaks, I've heard that Dynamiclear is worth the money. It doesn't reduce shedding, but that wouldn't be an issue with you until childbirth or if you have a negative partner.
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101028 tn?1419603004
gotta love the attitude towards herpes in the UK....NOT :(

nothing about having lupus would keep you from being able to take herpes antivirals. you have to be pretty persistent in the UK it seems to get daily suppressive therapy. the rates of hsv2 infections there are so low that they really don't do a good job of treating herpes .

definitely ask your provider for daily suppressive therapy. you'll probably get acyclovir - make sure they give you the 400mg twice a day dose, not the 200mg 3x/day dose. hard enough to remember 2 pills a day let alone 3.

so why are you getting recurrences and your partner isn't? well it's about certain genetic factors and yes indeed many things about having lupus also can trigger it to  be  more active :(   give the suppressive therapy a try and hopefully it cuts your recurrences down to 1-2/year :)

be sure to read the free herpes handbook that we recommend in our read before posting post too!

grace
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Avatar universal
Valciclovir, Aciclovir, or famciclovir are all anti-vial agents with efficacy suppressing HSV outbreaks.  Ask your doctor about one; I don't know if there are side effects that could aggravate Lupus.
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