Does this sound like herpes?

[Everlong133]

I am a married woman. My husband and I haven't had sex in 2 months because of this. So here's the deal. I once got a "cold sore" in college and was diagnosed visually by a nurse practitioner. She prescribed Valtrex and a cream. Since then every so often I get a tingly sensation on my lip, I apply Abreva, it tingles, lasts a week, and goes away. I never get visible sores. I suffer from MS as well. Mid June I got my first yeast infection EVER! Did three days of monistat as per gyno and it cleared up. I then got my period. When my period ended, my vulva got a burning sensation. The internet says burning vulva = herpes. I go to my gyno, she says it isn't herpes. I never got any sores. She did a culture for every STD including HSV-1 and HSV-2, all negative. I also had burning/ just weird sensations in my back, thighs, toes, and face. I then got lesions on my tongue! I went to a walk in clinic, was told it was thrush. I went to my family doctor, he said it wasn't thrush and could be herpes. He gave me Acyclovir for a week. It didn't help. Oh, I also had discharge in my eyes and my eye doctor said my ducts were blocked up and it could be an allergic reaction. I contacted my nuero he said it could be MS and put me on steroids- 3 days solumedrol. While on this, everything calmed down and I thought it was over. Then yesterday the sores on my tongue came back!! Today they are calmer and don't hurt and healing. My vulva is still burning, as is my butt, thighs, and I get a moving sensation through my left arm and face. The burning vulva is sometimes accompanied by redness but no lesions. I've conceived myself it is herpes. I have had weird feeling around the outside of my lips too. I've seen an ENT and an allergist and no one seems to know what the lesions on my tongue are. I saw an oral surgeon and he just said it could be systemic. I am getting a biopsy on the lesions on my tongue next week and seeing a specialist for possible vulvodynia. I'm also going to see a rheumatologist because my nuero thinks I have becet's disease. Could this all just be an initial outbreak of herpes!?

[Fleetwood20]

No general burning is not a symptom of herpes and particularly not for people without lesions.

You cannot use such general symptoms to reverse engineer a herpes diagnosis, simply doesn't work that way with any accuracy at all. Further, even if you had herpes, you would not expect these symptoms to occur.

[Everlong133]

And I've read that many people don't notice the sores.

[Everlong133]

But what about the burning vulva with redness and burning in thighs and butt? I thought those were symptoms.

[Fleetwood20]

Probably not. The virus is present in the lesions at the skin's surface.

Herpes doesn't really feature in possible causes with your symptoms.

[Everlong133]

So if it was herpes it would shown on the culture even without any lesions?

[Everlong133]

Yes well I have no desire to have sex which is frustrating because we want to start trying to conceive. Posting this was actually very cathartic! When I went back and read it I thought... This definitely doesn't sound like herpes. Thank you for your response, it relieved a lot of anxiety.

[Fleetwood20]

No these are not herpes symptoms. Burning does not equal herpes, that is a misconception and if you read a little deeper you'll see that those that claim this do not have HSV or it pertains to the actual lesions themselves.

You had the correct swab testing and this was negative and this supports the presentation of symptoms that does not align with herpes.

Not sure what is going on for you though, clearly most unpleasant... not sure you'd be wanting sex anyway... but no need not to on account of herpes.