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Herpes or something else?

I posted this once. But now I have an update and I am more confused than I originally was.
Last April, I found a sore genitally. It was painful and debilitating. I had recently got a new sexual partner (boyfriend) at the time and we had been sexually involved for around a month. I went to my OB, he did a swab test, and visually diagnosed as HSV. He gave me valtrex and it helped it go away within 3-4 days. The swab came back negative. (He did two, the first didn't get enough and the second was done after I was already on meds and it was mostly healed.) The OB was not respectful of my situation therefore I stopped seeing him. I had another outbreak so I went to my GP, I had them blood test me and they prescribed valtrex for the outbreak which again helped and healed the outbreak. The blood test came back negative but it was only one month since I had the original outbreak. I went to a new OB finally and I had probably had had 6 outbreaks at that point. My last one is current, it started worse than my primary OB and at this point I'm on suppressive and on meds to take when currently on an outbreak. Valtrex no longer is making a different as it is better and now down to only 1 sore. However, this is day 45, it started on October 1st and is itchy, tingly, and uncomfortable. I was swabbed and had another blood test, I came back negative for everything AGAIN. (All STDS, HAV, HPV, bacterial infection and yeast infection-all negative.) My boyfriend had already tested positive for HSV 1. Is it possible I really don't have herpes? Or do I and it won't show up on tests? We've been involved sexually for over 6 months now, kissing, oral sex, and vaginal sex, all unprotected. He has never had an outbreak and I constantly do. Could he have herpes and I have something completely seperate? This sore will not go away, it's uncomfortable, valtrex no longer works and I'm always testing negative. (My new OB prescribed me famvir thinking I have a weak immune system and that it would fix it.) Please help.

Now I have been on famvir hoping it will make it go away. I also started taking zinc supplements and lysine. I read those can help heal outbreaks. I am now taking 1,500 mg of lysine a day and 100mg of zinc a day for about 3 days now plus the famvir which is now on the 7th day. I still have the sore that I originally had with no change, it previously was excruciating pain for 2 weeks and now it does not hurt unless I purposely irritate it. But also now, I have a sore on the other side as well, itchy and tingly but does not hurt. It is not currently fully developed, so I'm not sure if it will hurt eventually but it currently does not.

I don't know what to do anymore.
3 Responses
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15249123 tn?1478652475
I wish you luck finding the answer you need. It's unfortunate that more isn't studied or known about the virus. There seems to be a big disconnect with most Dr's and good care or knowledge on the subject. You might want to discuss this with Terri Warren. She's at the asha now. It costs $25 but it way be money very well spent. Again good luck and feel free to share any updates as it can and will help all of us here.
Helpful - 0
Avatar universal
I study medicine as does my boyfriend. I've done so much research with standard medicine and natural supplements. I feel like it almost have to be HSV BUT I may have another issue as well which is currently presenting? I'm out of ideas and options. Thank you for answering to so many posts. If anyone else has any ideas or thoughts, I'd love to hear them.
Helpful - 0
15249123 tn?1478652475
This is perplexing. It does sound like hsv is the problem but obviously some things go don't add up. If your boyfriend has hsv1 then I could be hsv1. However hsv1 usually doesn't have this kind of constant outbreaks. Hsv1 is missed by a rate of at least one in ten infections with an igg blood test.
The swabs coming up negative are somewhat an odd thing. Swabbing is only as accurate as the swabber and time frame.
I feel for you as an answer is all your really looking for.
My advice is to get any new lesions swabbed. If they get a good swab from an open lesion that comes back negative, I would think hsv might not be the cause
Helpful - 0
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I posted my comment back as an answer sorry
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