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Herpes that won't go away ??

About 96 Days ago I had unprotected oral and vaginal intercourse with a woman I did not know. She had what looked like several infected cysts/boils on her lower back but i was too drunk to realize this was not a positive sign. I started to get small whitish gray raised bumps on my inner thighs within a couple weeks that increased in number and have never gone away. The dermatologist diagnosed these as folliculitis and definitely not warts.

42 days after the encounter I experienced prodromal, flu like symptoms with pain and tingling down my left leg, buttocks, thighs and lower back. I tested positive on the first day of the prodromal symptoms for hsv1 and hsv2. I have had cold sores my whole life but no known genital lesions in the past.

3 days after the prodrome started I had a rash breakout on my back and torso that the dermatologist diagnosed as erythema multiforme.  The rash has moved to different areas of my body, including chest, elbow, penis, hands but has never completely cleared up. My lips have also had varying degrees of swelling from the erythema that has not gone away. I also had lymphadenopathy in my armpits and inner legs. my lips and penis still have small cuts that will not heal.

I have had rashes in the areas between my legs and scrotum that have come and gone since the 42nd day but have never cleared up. Also, I have had rashes in the genital and *** creases that have come and gone. The rashes look more like folliculitis bumps, although one 3x5 mm area gets especially red and mildly painful and sends pain down my leg when it flares. it has flared there three separate times. Nothing has scabbed over like typical herpes sores.

I have felt low grade flu like symptoms with mild headache and sore throat and general ill feeling since the prodrome that waxes and wanes but will not go away.

I have been on 2 grams of acyclovir per day for pretty much the whole time, switching to valtrex once, but nothing will make this completely subside. I was also put on 2 courses of doxycycline for ten days each that didn't seem to do much..

I have seen 3 primary care doctors and two dermatologists that have diagnosed me with folliculitis of the genital area and all have said the rashes did not look like herpes. Nothing has been cultured because the doctors all claim there is no way to culture the folliculitis/rash areas. General blood and urine tests have all been normal multiple times.

I have tested negative for HIV at 92 days and twice previous. Prior to this encounter the skin in my genital area was always in great condition.

Is it possible this is continuous recurrent hsv2 ? All the doctors think this is impossible since I have been on acyclovir the whole time ? If not continuous herpes then what ?
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Avatar universal
I have had the white hairy tongue since literally two days after, I freaked that it was HIV too but have tested negative, I've still got it and it's very sore. I've never read this as a symptom of HSV. I wonder if my body will naturally produce antibodies to fight it and it will improve naturally or if I need pharmaceutical help. Also had tiny white spots in my lips at the corners, quite painful.

I am the same, doctors tell me it's stress because of no obvious blister, I just want a concrete diagnosis
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Avatar universal
My heart sinks, I was hoping it was coincidence but sounds to me like HSV2 is the cause of all of this, although not diagnosed yet
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Avatar universal
Yep. I had all those symptoms exactly as you describe.

My tongue looked like I had thrush at one point, which really made me think I had HIV.

I also had swollen areas in my mouth that would move around.

All have pretty much gone away, except my penis skin is always a little more red and irritated than it ever was before.

Oh, and 19 out of 20 doctors I saw told me I was crazy. I was persistent because I knew things were not right. A great dermatologist took the time to listen to my symptoms as a whole and correctly diagnosed the EM and RA.
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Avatar universal
Out of interest did you have any other symptoms? I've had a white patchy tongue since two days after, constant thirst, dry mouth and urinating a lot, lost appetite and lots of weight. Also my scrotum is red and penis skin appears a lot wrinklier than before, kind of clammy, sticky so my scrotum. Sorry for sick detail!
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Avatar universal
Hi, I've been to see a few doctors and been tested for HSV 1 & 2 by blood sample at 4 and 8 weeks, both were negative, around  0.4 HSV1 and 0.2 for HSV2, but I took a five day course of acyclovir two days after the encounter to reduce shedding and protect my family so I think that might have had an impact on my results, basically I think I may have it but haven't built enough antibodies yet. So I'm going back for another blood test in a week. I'll ask about Erythema Multiforme.

Yes 5 mins of intercourse has been absolutely devastating
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Avatar universal
I would say I'm 85-90 percent. I do still feel fatigued at times, especially in the morning. I used to wake at 7 like clockwork and go non-stop until 10 pm each day and now I sleep in until I absolutely have to get up for work.

I doubt I will ever be back to 100%. The buttock and leg tingling and burning is basically gone though. Joint pain is there but very mild.

Still can't believe 5 minutes of intercourse caused this.

Are you going to see a doctor ? I would be interested to know if they thought you had Erythema Multiforme or Reactive Arthritis. You haven' t tested positive for HSV 1 or 2 ?

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