I am suffering in pain and need help

[motherof32010]

Hi, i am a 28 year old that has had several surgeries including a Hysterectomy 2 years ago. I have struggled with lower pelvic pain. It all started when i was pregnant of my last baby. they found i had ovarian cyst and once my daughter was born they told me it had cleared up. Well i decided to not get pregnant again and tied my tubes. (I forgot the exact term they use now). About 6 months after i tied my tubes i started to have lower pelvic pains again (severe) and my mentrual period would last a month and skip 2 and on and on for almost 8 months and than they told me I had endometriosis, so they did a LAP. and it helped and than a year later again same problem except instead of my period skipping 2 months it would skip 1 month and again they did another LAP and found more ENDO. That helped again for about 6 months and again another LAP this time it was getting stronger and stronger. The Dr I was going to at the time talked to me about a hysterectomy and i refused and decided to get a second opion. I was not ready for one. I was only 24 at the time. I was scarred so i went to a different doctor and she told me I had Endo as well and did a LAP the pain relief did not last 3 months and it came back and i was bleeding day in day out for about 6 months. The doctor told me i had to have a hysterectomy and  refused but it was getting so bad i was always in pain, bleeding and tired and sick and had no energy. I finally made the decision to do it and i had a full one. From what i understood ENDO was really bad and i was bleeding internally in my uterus so they had to remove everything. I struggled with adapting to it. But the pain free time lasted about 6 to 8 months and it came back at first very minor and than it progressed and than she went in and did a LAP again and found scar tissue and removed. I was still in so much pain and was not getting anybetter my body became immuned to pain pills and she said there was nothing else she could do as a Gynacologist. So she referred me to a specialist and i had a colonascopy done and they did not find anything but very little hemorroids. So I gave up and refused to go back to any doctor. But the pain became so unbarrable it returned to her. The pains we getting so bad when i got them i would have to hold myself in a fetal position. And than they just started to come and come i would walk and it would hit me so bad it would make curl my leg up because the pain hits me in my pelvic area both left and right and run down my back and legs. And she scheduled me to go in for another surgery to go in with the camera and she if she could find something the sono they did showed nothing and i canceled the surgery due to family emergancies but i want to make sure before i reschedule i try to learn something else. About 2 weeks ago pain hit me hard  really hard. I was lying in bed and it struck it felt like a stabbing pain and i could not believe it could ever get that bad. and instead of getting any better it was just getting stronger and stronger. I cried and i screamed from the top of my lungs because it became so unbarable my husband was getting ready to drive me to the emergancy room and just out of the blue it stopped. like nothing. After that day i have been searching online to see if i can find any help and nothing so far so i am in DIRE need of help. I want to also mention that i have had 2 life changing incidents in the last couple of months. I had a major car accident that got my car totalled and I am in once piece. I have pains right side from the inpact but i am doing a lot better. The second one is that i decided to lose weight due to i was overweight. I weight 166 back in May and currently weight 134 and still losing it. I joined a diet program called Slim4Life which has been so wonderful. And joined a gym but have not been able to go back for aout 2 months because of my pains. Not to mention when i had my hysterectomy they discovered i had an irregular heart beat and did several stress test and turned out while in stress my heart gets back to normal. But now i have been sufering with pain and i am at the mercy of medical help. I am so stressed out with this pain and tired of having surgery after surgery. Please help me i need help......


more symptoms i have been having is majore headaches (migranes) tiredness, cannot sleep or oversleep sometimes. restless. i see white spots alot sometimes with the headaches or just all of a sudden. All my votals have been normal and blood and all labs have been done and show normal or great. I have no energy level what so ever and constantly upset.


Please help me!

[wannasmile63]

The other thing you need to be checked for is incisional hernias, which will definately cause severe pain. I got these after my MVA, because even though my hysterectomy was 12 months before MVA, everything isn't healed properly inside. Just another possibility, as bodies just aren't built to be thrown around cars, or pulled so hard by seat belts. Also it would be very normal to be feeling depressed with everything you've been through, and it really is something that is treatable with medication. Look forward to keep hearing how your going, take care.

[Cherie762]

Hi,,wonderful decision to see a psyc Dr. it will help you to be evaluated, and you have been through so very much it would be hard to think that it has not lead to some depression.

When someone is very ill, it will effect relationships. it seems to be one extreame or the other. 1. a very supportive partner who does as much as possible to motivate, and help the partner with pain, surgeries, and the depression often assoiated w both.
         2. a spouse who just cant handle it is negative, complains about health care bills, wants partner to do things that would cause pain, like IDK being ordered not asked to carry heavy boxes to attic, or to scrub kitchen floor, etc..this type of spouse is usually toxic to the patient,.if there is no counseling for marriage and or self. its very difficult and or makes patients symptoms worse.

  we have a depression forum..take a look if you like much good info.

[motherof32010]

Thanks to both wannasmile63 and Cherie762. I hope I can answer as much as I can. As far as my ovaries go no I have none. I had a full hysterectomy. As far as testing goes I have had alot of them done I cannot remember all the names of them. But I will call my doctor that has done the last surgeries and talk to her about what has been suggested to ask. I really appreciate all the help. I have just been through so much the last 6 years it is so ridiculous. Saddly my marriage is being affected and well so is my time with the kids. If I could just get rid of the pains and fatigue I would be so greatful. And i am already blabbling and forgot to answer a question. No i have not been told that i have andeomyosis. I will also look into seeing a psychologist. I have felt depressed and well that is why I decided to motiviate myself and push myself to lose weight. And honestly it has not helped much. Dont get me wrong I am happy I have lost what I have. I am felling better, but still not in the manner you would think.

[Cherie762]

Agree w above poster..if you still have ovaries, your still producing estrogen which "feeds" endo tissue. I had a hyster (complete tubes, ovaries, uterus and cervix) in 05 I started w endometriosis which developed into andeomyosis. Have you ever been told you may have that? its where uterus thickens , becomes sponge like and is extreamly painful.  about the pain pills..I went that route too, and its true your body will develop a tolerance..due to my many surgeries and MVA I am currently only taking Toradol and Flexeril 3x a day if needed. Narcotics can take you down a really bad road if used for too long.

the whole body as you know is connected..a few of your clues jumped out at me
1. Been tested for Sciatic nerve damage? can happen from trauma (MVA) or surgery error. if sciatic nerve is nicked or compressed, it can cause a disease called sciatica.

2. Fibromyalgia? general pains at certain boody points mostly joints and its a more common condition than most realise. also causes great fatigue. and depression

3. Endo tissue can do really odd things, I have heard of it being as high up as a patients lung, my ovary was attached to my bowel because of endo tissue.

4. I dont think this is in any way due to your small hemmoriods.

5. Had a CA125 test? it rules out some cancers of female organs.( simple blood test)

6. Your last paragraph on the migranes, either sleeping too much or not at all suggests to me that you see a psychologist to rule out two conditions. 1. Bipolar disorder it is very common many people in high power jobs have it w proper meds one can function quite well. 2. general depression disorder..get a good evaluation to rule these out...with all that you have been through it would make a whole lot of sense...when the physical body cannot deal w more pain or illness, it will effect emotionss, chemicals in brain.


I hope this helps some please feel free to pm me at any time..Id suggest trying an ice pack rather than heat on sore spots..leave on 15 min tale off for 15.

[wannasmile63]

Have you still got your ovaries????  You would have so much scar tissue and adhesions from all your previous surgeries, and I also had MVA after a couple of my abdom surgeries, which really pulls and pushes everything. Read my profile, and journal entries and see if anything you are feeling sounds the same. We are all different, but you need to follow through all your options and find out what this is. I really sympathise with you  dealing with all this at your  age, as I'm struggling at the moment, and I'm 46. I hate menopause!!!!!!!!!!!!!!!!!!!!!!!!!!!!