What can grow in place of ovaries?

[ccv71]

In Aug. 2003 I had a total vaginal hysterectomy due to endometriosis.  I also have a bladder prolapse.  I am 37 yrs. old.  I developed vulvar vestibulitis immediately following surgery which lingered for 1 1/2 yrs - no sex during that time due to the intense burning.  Once that cleared up I discovered I still could not have sex because my vaginal muscles have contracted to the point of becoming a virgin again (with no breaking through).  It's literally like a brick wall.  So to date it's been 5 years since my husband & I have been able to have sex.  During this whole time the abdominal pain from the endometriosis that prompted the hysterectomy in the first place never went away.  On a recent pelvic x-ray from my chiropractor, he noticed what looked to him to be an ovarian cyst.  My gyn ordered a ct scan (too painful to do a vaginal ultrasound) and the radiologist noted that my "ovaries are not enlarged."  OK, so if my gyn removed them, then what did the radiologist see?  When I told my chiropractor about this, he pulled the ct scan disk from the hospital and looked for himself, and sure enough, there are what appears to be BOTH of my ovaries!!  I can only see 3 scenarios in my un-medical educated mind:  1) She did not remove my ovaries;  2) They grew back;  3) Something else grew back.  Has ANYONE else gone through anything like this?  Does anyone have any clue how I should proceed?  

[Dumbfounded284]

Look into ORS (ovarian remnant syndrome)

[fylan]

Perhaps your ob-gyn did not do a full hysterectomy! Having a hysterectomy does not mean that everything comes out; hysterectomy is the removal of just the uterus; the full hysterectomy involves removing everything: ovaries, fallopian tubes, and the uterus!

If I was you, I would start at the hospital where this hysterectomy took place;
go to medical records and ask for your entire record of that hospital stay, from day 1 until the day you were discharged, and also ask for the entire medical procedure that took place in the operation room; you should have the entire record within a few weeks for a small fee (my entire record, including operation procedure and hospital stay only cost me 25 bucks!)
and mark my words, you will see in the report whether she actually removed your ovaries or whatever was removed...I bet that she left the ovaries behind and that you did not have a full hysterectomy...
THIS IS THE ONLY WAY YOU WILL KNOW WHAT KIND OF SURGERY YOU ACTUALLY HAD, AND WHAT WAS REMOVED...the lab tech would have to report about receiving what organs, and if ovaries were indeed removed, there would be a lab number attached to section where ovarie removal is listed.....


Make an appointment with another ob-gyn, get a referral from a trusted friend; I would def go to another ob-gyn to look over the medical records/operation in it's entirety!

This is the only way you will know that you had a full hysterectomy

I would also give a shout over to the insurance company that paid for this operation; insurance companies are entitled to have the full report of operations from the hospital in order for hospital, operation room, recovery room, hospital staff, and misc others to be paid....

[madgeOwens]

I had tmj surgery and they niped a nerve that operates your eyebrow, now i look like a pirate, but I didnt sue either.  These things happen.  I dont think we know enough about this situation really. Regards

[Cherie762]

perhaps you are right I am just mortified though, if in fact her dr. claimed to of removed her ovaries and did not that is just wrong on so many levels. I had a really bad experience with a dentist once madge, went for basic tooth pull, he had a double edge scaple hygentist said to him be careful thats a double edge scaple he said no it isbt abd when he removed it from my mouth he sliced my bottom lip wide open, i lost feeling on lower left side of face for 8 mths ( I did not sue) but this is why i dont have faitth in Drs. just because of their title.  hope this helps ya to understand, I feel sorry for ccv

[madgeOwens]

Yes my dear we do have freedom to do many things,, but that does not make them right!
I believe you should give the doctor the benefit of the doubt sice the are the one with MD after their name.

[Cherie762]

I would see another doctor, you likely still have endometrosis, I had my uterus out 1 yr ago and my tubes and ovaries out 2 weeks ago. My left ovarie was engulfed in scar tissue and attached to my bowel. Endometrial tissue, addhesions and scar tissue can do alot of things in the pelvic cavity, and sometimes are very painful. a second opinion is a must for you.

there is a thread in here somewhere about using a pilates style exercise ball to roll around on the floor on you tummy, it is suposed to break up addhesions, I am definatley going to try that as soon as I am properly healed

Best of luck to you

[Cherie762]

as I understand it seems her dr. claimed to have removed her ovaries and her ovaries are indeed still present, it doe not seem frivolous to me, but thank God we live in the USA where we all have the right to our on opinions

[madgeOwens]

I think your doctor is more qualified to read that report than you, don't you think? This is another example of a would be frivolous law suits people perpetrate and the rest of us all pay sky high health care prices for that reason. Shameful.
If you are not happy with this doctor by all means get a second opinion!

[Cherie762]

most lawyers will consult for free, it would not hurt to talk to one go for a big name in your state you likely wont get the "big name but one of their associates if your doctor lied to you about this you have a tremendous malpractice case.
Good luck to you
cherie

[ccv71]

She still, as of last week, swears that she removed my ovaries, to the point of getting defensive about it.  My whole point to her was, if she removed my ovaries, what, then, did the radiologist see?  Scar tissue, cysts, tumors, what?  She assumed the radiologist didn't see anything and just wrote that in there to mean that he didn't see anything unusual.  I disagreed with her because he noted in the sentence just prior to that that my uterus was "surgically absent."  Why wouldn't he have noted that my ovaries were also absent if he didn't see them?  His including that sentence as such would therefore convict him of perjury and falsifying records, right?  She has asked him to reread the xray, but that was 1 week ago and I haven't heard anything yet.  Unfortunately, I just found about this 2 weeks ago and I have been informed that the statute of limitations for malpractice is 2 years in my state.  I, personally, think they ought to change it to 2 years "from the time you find out about it."  Thanks for the encouragement, though!!

[madgeOwens]

Maybe ther was some miswunderstanding in the communications between you and the surgeon as to exactly what they would be removing. It is sometimes very confusing. To do a hysterectomy is the removal of the uterus.............to remove the ovaries is called an oophorectomy, so this could be a misunderstanding and you did not have your ovaries removed.  I hope this helps. I do not think you need to call a lawyer but I do think a conversation with your physician could be enlightening. Good luck. Madge

[Cherie762]

see a lawyer. she did not remove your ovaries, you were lied to, It is 100% impossible for ovaries to grow back.