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strange fibroid
IHello, after my recent laparoscopy/hysteroscopy the doctor confirmed the fibroids, but could not confirm adenomyosis; he stated that could only be done for sure after the hysterectomy with the pathology report. I was told that my ovary contained a variocele that might be caused by endometriosis, but he did not was to touch it during the laparoscopy because he did not want chance it. He would remove it during my hysterectomy surgery
He appeared very concerned about one particular fibroid, and then preceded to tell me about a rare form of cancer arising from fibroids and how some doctors never see this cancer in their life time. He however, has seen it 5 times as he kept tapping the photo. So, I asked am I number 6? He would not answer me, either way. My surgery is scheduled for September, I could not have it sooner, and he would have. I wanted to wait until the first of the year, he wanted it next month. We compromised.
All I know is this particular fibroid, there are many others on the uterus, but this one is different, containing, strange white outgrowths out of the top of it and very visible blood vessels. Cool looking color photo and my friend joked stating the fibroid had a yeast infection. (Does that give you a visual?)
Has anyone ever heard of anything like this?
He also told me I would need a vertical abdominal cut to make sure he had the best view to get everything I feel like he might not be totally telling something.
Oh, before I forget, when I asked why he did not biopsy or remove it during my last surgery, he stated he did not want it to break off inside. Hum?
I might be able to scan the photo and upload it.
He appeared very concerned about one particular fibroid, and then preceded to tell me about a rare form of cancer arising from fibroids and how some doctors never see this cancer in their life time. He however, has seen it 5 times as he kept tapping the photo. So, I asked am I number 6? He would not answer me, either way. My surgery is scheduled for September, I could not have it sooner, and he would have. I wanted to wait until the first of the year, he wanted it next month. We compromised.
All I know is this particular fibroid, there are many others on the uterus, but this one is different, containing, strange white outgrowths out of the top of it and very visible blood vessels. Cool looking color photo and my friend joked stating the fibroid had a yeast infection. (Does that give you a visual?)
Has anyone ever heard of anything like this?
He also told me I would need a vertical abdominal cut to make sure he had the best view to get everything I feel like he might not be totally telling something.
Oh, before I forget, when I asked why he did not biopsy or remove it during my last surgery, he stated he did not want it to break off inside. Hum?
I might be able to scan the photo and upload it.
Well, now that someone has decided to do something about I am going forward; it is just once you actually hear the word, surgery, it finally becomes real and now my fear is real.
Like I said, 99% are nothing to worry about, but he wants it, so I guess it is out.
Like I said, 99% are nothing to worry about, but he wants it, so I guess it is out.
oh yes womens health is sooo contraversial for example hormone replacement...a heart dr says very bad dangerous for heart...a bone dr says very good estrogen maintains bine strenghth so you dont end up with degenerative bone disease/
many many more contraverys..and whats right for one woman not for another..Your Dr must have a good reason for wanting uterus out as a whole likely now that Im thinking of it to contain cells should it be cancer.
I am not qualified to answer your last question I would imagine that yes its possible for a calicifcation to resemble something else..thats why any good Dr will say he/she wont really know till they "get in there"and its biopsied...remember biopsys are not just to determine cancer or not they are for diagnostic of tissues and cells.
Most Drs are practicing good medicine ( Im a forever optimist) its the turkeys we need to be careful of and they are out there....personally I stay away from very young or very old Drs...I dont want to be anyones first ten or so surgeries nor do I want a Dr who is not up or doesnt believe in modern advances.
many many more contraverys..and whats right for one woman not for another..Your Dr must have a good reason for wanting uterus out as a whole likely now that Im thinking of it to contain cells should it be cancer.
I am not qualified to answer your last question I would imagine that yes its possible for a calicifcation to resemble something else..thats why any good Dr will say he/she wont really know till they "get in there"and its biopsied...remember biopsys are not just to determine cancer or not they are for diagnostic of tissues and cells.
Most Drs are practicing good medicine ( Im a forever optimist) its the turkeys we need to be careful of and they are out there....personally I stay away from very young or very old Drs...I dont want to be anyones first ten or so surgeries nor do I want a Dr who is not up or doesnt believe in modern advances.
Is it normal for issues concerning women's health for there to be so much confusion? I was first referred to a GYN from the orthopedist after two MRIs and that was for the cyst on the ovary, not spinal stenosis and we both thought back in Jan.
This is GYN number 3. When asked about the DaVinci, he was insistent that the uterus remain in one piece. Trust me I wanted the DaVinci, had watched videos and read up on it.
Maybe, a GYN/Oncologist for #4? My question is this; can a calcified fibroid and a Leiomyosarcoma have similar visual similarities? Or is this just a STUMP?
Or...are doctors really "just practicing medicine"
Maybe infact for sure get another opinion...the uterus can be removed in pieces via DaVinci...And Im glad Remar asked about waiting...It is very likely in your best interest just to get the procedure done asap then you can be relieved, pain free cept the post op pain which goes away and you can be happy again !
Almost forgot. He is well versed in both the DaVinci and Laparscopic Hsyterecotomy, but my uterus is too large and the fibroid he wanted intact, and to "look around"
I too know that most fibroids are benign, but he kept tapping the photo of the calcified fibroid while he informed me of the rare cancer. Great! I would have been happier if he had just been blunt. As for the variocele, it surrounds the right ovary with a cyst at the end of it.
Prior to my laparoscopy/hysteroscopy he told me I did have adenomyosis which was someone visible in the ultrasound.
Trouble is I've had so.....many different diagnoses since last Jan. Each a different doctor, who do I trust? Who do I believe and can I wait until Sept?
Prior to my laparoscopy/hysteroscopy he told me I did have adenomyosis which was someone visible in the ultrasound.
Trouble is I've had so.....many different diagnoses since last Jan. Each a different doctor, who do I trust? Who do I believe and can I wait until Sept?
COMMUNITY LEADER
I'm so glad you jumped in Cherie with all of your knowledge. Do you think it's alright for her to wait until September for the surgery?
Oh no andenomyosis is a easy confirmation with out a path report...andeno is a "boggy" uterus all the surgeon needs do especially vis hysterscopy is use a curette to hold uterus up if it sags hangs down with zero support it is andeomyosis of the uterus...uterus need removal and they biopsy ANY tissue removed from the body.
a variocelein women is a vein that kinda give up working around 1/2 the ovary thus causing inflammation and pain
what a shame for him to frighten you about a fibroid being cancerous ,,,,99 percent are not...IF he even thought that yours may be in the 1 percent it would be best to have said less and told you post op....I seriously dobut looking at a photo could indicate cancer of a fibroid.
a laproscopic surgery is quite a advantage and possible read up on the DaVinci method.
C
a variocelein women is a vein that kinda give up working around 1/2 the ovary thus causing inflammation and pain
what a shame for him to frighten you about a fibroid being cancerous ,,,,99 percent are not...IF he even thought that yours may be in the 1 percent it would be best to have said less and told you post op....I seriously dobut looking at a photo could indicate cancer of a fibroid.
a laproscopic surgery is quite a advantage and possible read up on the DaVinci method.
C
From what I can find out it is just a calcified fibroid, but I am not sure why he made such a big deal about it. Yes, he is taking out everything including my ovaries via a vertical abdominal incision. Uck. He does not want to go through me C-section as he is concerned about the scar tissue and adhesions within, plus he wants a better view.
He claims I will be back to work in 4 weeks. I hope so.
He claims I will be back to work in 4 weeks. I hope so.
Yes, silly though it may seem I am delaying it. The doctor is booked for July. Then my daughter is scheduled to have her tonsils out in August and on Labor Day she turns 18. We have a party planned and a vacation/birthday gift. I do not want anything to interfere with her surgery and/or her 18th birthday.
The surgery for tonsils at her age I am told is difficult the older you are and I did not want to be laid up while she was recovering.
As for the type of fibroid, he just scared me...flat out scared me, yet he knew I was not going to budge until September, probably stupid, but....
I tried to scan the photo, but the scanner at work does not scan in color. I will try to hook up my scanner here and send the photo, but it does not look like any of the other fibroids, totally unlike anyone I've ever look at.
The surgery for tonsils at her age I am told is difficult the older you are and I did not want to be laid up while she was recovering.
As for the type of fibroid, he just scared me...flat out scared me, yet he knew I was not going to budge until September, probably stupid, but....
I tried to scan the photo, but the scanner at work does not scan in color. I will try to hook up my scanner here and send the photo, but it does not look like any of the other fibroids, totally unlike anyone I've ever look at.
COMMUNITY LEADER
Is there a reason your waiting to have the surgery? It sounds like your Dr is doing the best thing by not removing the fibroid before the surgery. This way he can remove everything all at once. I wish I could be of more help on what kind of fibroid this is, but I'm not sure. I'll try to do some research and get back to you. Remar
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