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what's up with adenomyosis?

my obgyn had said that yes i had adenomyosis, but not to worry too much bc it's no big deal...except for the fact that i have bled for 22 days in february, 10 in march and then not for 10 and then just started again today:<  not really sure where the "it's no big deal" came from.  and then throw in that the only "cure" is a hysterectomy.  what is up with this diagnosis?  i can't take hormones due to a dvt while i was pregnant.  does anyone have any more info. on adenomyosis?  or alterntive solutions?  i definitely am afraid to get hyster.
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Avatar universal
Oh wow, I'm sorry your doctor just kind of put your worries to the side (IMHO).

If you want to have more children, adenomyosis can cause problems with implantation of the embryo.  Some doctor will put you on BCP BUT since you can't take hormones that won't work-you probably won't be able to do Lupron either.  Of course Lupron has side effects of its own.

I'm 32 and just had a hysterectomy in February for chronic pelvic pain/endo/adenomyosis.  It wasn't a decision I made easily.

I definitely agree that you need to see another doctor, whether you change or just for a 2nd opinion...and maybe a 3rd opinion.

Some women do acupuncture to help with the pain and bleeding from endo-it might work with adenomyosis as well.
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599170 tn?1300973893
seen your 34.,.option 3 is not going to be a choice for you,,sorry i should have studied your profile before making that comment..C
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599170 tn?1300973893
Hi ..gosh "no big deal" that was rather unprofessional, in my opinion, Andeomyois is when the normal shedding of the monthly tissues becomes trapped in between the interior and exterior walls of the uterus..normally becaome the uterus to become enlarged and for lack of a better term " boogey" or kinda sponge like,

I had endo turned to andeo. I was presented with two options one chemically induced menopause . Commonly done with a drug similar to or Leupron. These meds have some negative side effects including and most common , causing or contributing to extreme depression. The other cure is indeed  the surgical removal of the uterus.

I certainly understand and respect your fear of a hysterectomy, and it is a big decision.

A few questions...are you in much pain? and if you dont mind your age..Because there is a third option this condition will not be a problem once you cease to mensturate..if your in the beginning phases of this and are close to entering menopause you could choose to ride it out, if the pain is not extreme . Also if your heavy bleeding is not causing anemia;;Of corse discuss this and any other theory with your doctor,.

I have to agree with above poster ,,,you should seek a new gyno and get another opinion...any tie a patient has a concern, and is diagnosed with a condition its a "big deal" to the patient...advocate for yourself !!!
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Avatar universal
I had adenomyosis and endometriosis. I had my cycles every 2 weeks for over 2 years till the pain got so bad. I was put on everything till the only option was a hysterectomy. I didnt want a hysterectomy and I even got a second opinion through all this mess. It is not something you take lightly. It is a major surgery. educate yourself and get a second opinion! I told my gyn I was and he even gave me names of colleges he trusted. They couldn't get my periods to stop and I wouldnt go on lupron. My gyn said your body will get to a point that says enough is enough and it will give you more signs. If your gyn isnt sensitive to your misery than find one that has the compassion that will. I went through 3 gyn's. I cant tell you if the only "cure" is a hyst. but I read that it was one of the best ways to end adenomyosis. Good luck  
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