Growths or swelling above Clavile on left and right side.

[lean2012]

Has anyone ever had growths or swelling above their Clavicle on both sides or on one.  If so what did your doctor say it was.  I have been to my primary physician who is an Internal Medicine doctor, he says he thinks it is just fat.  Rheumatologist says similiar things.  I had breast cancer 2 years ago and had that breast removed.  My Oncologist had an ultrasound done and nothing at all was seen. I tried to tell them they needed to do it with me sitting up.  They didn't listen.  Now my Oncologist is having a CT done of it, but says if it shows nothing that he won't do any other test.  

What can I do? Where can I go? Help anyone.

Lean2012

[lean2012]

I have had the swelling on both sides for at leastb4 years. I often asked my primary doctor about it. His thoughts were that it was fat pads.  I have never seen anyone with fat pads there.  It bothers me more now not knowing what it is because of the other symtoms I am having.  I have been having some connected tissue symtoms, with joint ackes and pain, night sweats, fatigue, and afacial rash ythat comes and gos. I have had ESR that has been continuelly high at 62.  I have had high ANA's at 1.80 with a speckled pattern and 1:160 with a homogenous pattern. Sometimes it's normal. So I am still wasiting for the results from other test that were done a couple weeks ago and I go for a CT scan on Friday.

[Mochadelicious]

I know that this is a more common area for lymph nodes to swell with lymphoma, but how long have you had the swelling?  A CT scan may be able to differentiate between fat and a swollen node, but a PET scan would be able to see if it has a reaction to the radioactive sugar they inject into you.  The sugar is drawn to cancer cells and lights up on the screen.   Some medical facilities can even do a PET/CT scan combination, which in my opinion would be the best test to have.