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166039 tn?1256422867

Do not know what step to take next

I have posted several questions before, not sure what to do next?  I am 33 y.o., 5'3"; 115 lbs. Non smoker, but exposed to second hand smoke growing up. Recent mitral valve prolapse and 5 mm non calcified lung nodule. Have had 3 scans with no change, just recently had 4th and waiting on results. Symptoms come and go for about a year now. Chest pain, shortness of breath. Recently have been getting back, shoulder, arm pain. Sometimes I get a pain in my lower stomach. I have had my gallbladder removed.  I also get dull ache pains in my legs. Mainly most of my pain in the arm and leg is the left side. Nodule is also located in left lung. PCP says probably muscular skeletal or stress which I am under a great deal of stress.  Is it possible that I could have lung cancer and the nodule not showing change? Why is my back suddenly hurting. I do have a 16 month old baby that I pick up a lot. I have a high tolerance of pain. My PCP and pulmonary doc just tell me I am not the typical lung cancer patient and that they don't think it is lung cancer. It has been about 5 or 6 months since my last scan. They also said if it was lung cancer the nodule more than likely would've showed some type of change by now, which I don't believe. Why monitor it for 2 years? I am just really frustrated and freaking out. I dont want to get a second opinion because I dont want to have to go through all of these tests again. Can anyone help me out? Thanks!
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Avatar universal
Just read  your post from January and wondering how you are doing?  I would suggest  you ask your pulmonary physician to do a PET Scan.  This is a very detailed scan that will most likely tell what is going on in your lung.  Have you been tested anywhere else for calcified nodules?  Just wondering.  My friend has sarcodosis.  This disease causes granulomatous nodules throughout different parts of the body, especially in the lungs.  Just thought I would give you something else to ask your doc about.  I would definitely insist on the PET Scan.  Good Luck
Helpful - 0
166039 tn?1256422867
Question... I ended up in the ER again today and they dismissed me saying well it probably is just fibromyalgia. But again no def answer.  I did find out from my 4th scan that the non calcified nodule is now calcified.  Not sure if the size has changed they didnt have that information.  Not even sure if that is a good thing. I have been clearing my throat more which in turn makes me cough. Not coughing up anything really just a lot of drainage.  I have these pains in my shoulders, and back that are almost unbearable.  They again told me the nodule wouldnt be causing the symptoms which I know. They did not do any blood work and didnt want to subject me to more radiation with another CT scan.  Told me to again follow up with my family doc and pulmonary doc. They said if this has been going on for a year its probably nothing major.  Well the back and shoulder pains just started. My pulm doc said the nodule was too small to do a biopsy. So if it is cancerous...will I ever know or will it be too late?  I am really just confused and frustrated and not know what to do. Can you help me understand this some?  The finding of my last CT scan are :
No definite pulmoary embolus is noted. No mediastinal or hilar adenopathy identified. within the left upper lobe, there is a calcified granuloma along with a small amount of atelectasis versus scarring. No focal infiltrates are noted. no discrete infiltrate is noted regional to the lingula. no effusions are noted.  
There is a small infiltrate in the left mid and lower lung zone laterlly adjacent to the lingula.  There is otherwise no pleural effusion, consolidation, or pneumothroax.  Small density in the left lower lung zone, early infiltrate not excluded.  Follow up recommended.  ???? what is that?  Thanks
Helpful - 0
166039 tn?1256422867
Oh and I also clear my throat a lot, which causing me to cough. It is not constant. I live in the midwest so sinuses aren't the greatest. My pulm doc also said after my 3rd scan that the nodule 'could be' old pneumonia?
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