I'm a 22 yo male never smoker.
I have no family history of any cancer or lung disease. I do have GERD/acid reflux, which I've had for about 3 years.
My very first symptom, about 2 months ago (October) was some "hardened" lymph nodes in the left supraclavicular region and in the lower rear of my neck on the left side -- this is what sent me hurrying to doctors to figure out what's going on.
Then, since early/mid November (about a month ago), I've been having noticeable SOB and occasionally a cough when I breath too deeply or when I wake up. The cough mucus is usually yellow to dark yellow, occasionally get some red streaks. Come to think of it, the SOB was usually there but only when I was climbing stairs back during the summer..didn't think much of it.
I have been feeling quite tired/fatigued, and despite my weight looking relatively consistent on the scale and appetite being normal, I've dropped 2 pant sizes in the last month or so. I thought that was strange.
>Primary Doc (saw repeatedly throughout this process): He didn't think the supraclavicular node was actually swollen, but sent me for a neck MRI w/ and w/o contrast anyway. The neck MRI came back clean. Being paranoid, I read that that node was called the Virchow node, and almost always indicated an intra-abdominal malignancy. So I said this to my doc, who still said I probably didn't have any cancer at my age, but if I wanted to pursue it, I could. He gave me referrals to a Head and Neck specialist and Pulmonary Specialist.
>Head and Neck specialist (saw in late October, and again in early December): Agreed w/ primary doc that supraclavicular node was not swollen. Did the laryngoscopy and found nothing. Said to wait for the MRI.
>Pulmonary Specialist (been seeing since early December): Yet again, he didn't think any nodes were swollen in that region. We did a preliminary spirometry test, which showed a "Restrictive Breathing Pattern that did not respond significantly to short-acting bronchodilator therapy." He remarked that my nails were clubbed.
We did a High-Resolution Noncontrast Chest CT, did a complete autoimmune disease panel and interstitial lung disease panel, and he put me on Advair 250/50. Both panels came back negative, except for allergies. The PFTs showed Restrictive Lung Function.
Tests So Far:
>Bloodwork = Elevated CRP, ESR, Monocytes, Eosinophils, and Basophils
>Neck MRI w/ and w/o contrast (11/05/16) = visible sub-centimeter supraclavicular and posterior cervical nodes. (Report says "normal exam")
>Pulmonary Function Test (12/13/16) = "Restrictive Breathing Pattern that did not respond significantly to short-acting bronchodilator therapy."
>Non-Contrast High-Resolution Chest CT (12/02/16) = normal ----- Note: about this, I checked to make sure it wasn't just a few thin slices in a few parts of the lung. The scan definitely covered the whole lung down to the upper abdomen. Just doesn't use IV contrast
>Contrast-enhanced Chest CT Angiogram (12/22/16) = normal
In short, no one knows what's going on and neither do I. Although I still feel the collarbone lump/node, no physician has actually felt it and therefore is not inclined to biopsy. Is there anywhere in this testing process that we would have missed something? If so, what's the "weakest link" in this battery of tests?
Honestly, I can't sleep well thinking that not only am I going to die, but that I'm going to die with not much time left. The biggest thing that depresses me is that just as everything was going good, I got blindsided by a wrecking ball of disease.
Thank you for any suggestions, ideas, or thoughts! I really appreciate any way to shed some light where doctors have left me confused