Oh my jadenRae. I don't know where to start!
You are a miracle in disguise, enduring all this suffering
and finding the courage to post here to find some
answers to help yourself get better.
Most people in such situations would have given up,
ending up probably deep into prescription and street
drugs, without any hope to ever return to any type of a
"normal life".
OK, now to the medical "sciency" stuff .
Your entire body seems to be under chronic
biological stress (not to mention the mental stress you
must be having dealing with all this)
The longer it has been going on the likelier it is that
your stress hormone production (specially cortisol) is
unable to sustain high levels, thus cortisol production
could be suffering .
Which makes you:
a. more vulnerable to pathogenic, fungal and parasitic
infections.
b. a candidate to get Adrenal Fatigue.
c. substantially compromised ability to recover from
illnesses.
--The high Sed Rate indicates inflammation.
--The elevated RNP points to Lupus or MCTD, however,
it is not diagnostic on its own.
--The low Vitamin D is very serious, but can be corrected
by supplementation (5000 IU of D3 daily with Vitamin
K2 , some Magnesium and all taken with meals
containing some good fats)
So overall, I don't think conventional doctors can help you.
What you need in order to turn things around is a very good Functional Medicine Doctor
Adrenal fatigue (highly suspect) is notoriously hard to treat, specially on your own.
It is possible you have an undiagnosed low grade
chronic infectious condition and low thyroid function
(forced by the adrenals for their own recovery)
The low thyroid function (suspected) cannot be
addressed on its own,
without addressing the adrenal issues.
You may also have other undiagnosed deifiencies
and imbalances. Too much to cover in this post.
Please post again and fill me in with any recent Labs
and anything else you may want to mention.
Best wishes,
Niko