Would like your opinion...

[Wobbly]

Hi there, I've been under investigations for symptoms that started 10 years ago, went away and came back 4 years ago.. Vertigo was first, then weakness, off balance, joint pain, double/blurry vision, tingling.numbness in legs and hands, arms.  I've had 3 brain MRI, last one the Radiologist stated  
Findings: Numerous T2 hyperintense foci are again seen in the cerebral white
matter, involving the deep, subcortical and periventricular white matter.  A
few of these lesions have slightly increased in size as compared to
previous.  At least 2 tiny lesion are present in the corpus callosum.  A few
of the lesions have perivenular (Dawson's fingers) orientation. Impression
Numerous T2 Hyperintense foci.  Their pattern is suspicious for
demyelination.  The findings have slightly worsened as compared to previous.

I had a C spine and full spine MRI...both clear.. LP..normal.. High ANA.. high CRP... have gone to Rheums...they can't help... had lots of blood test.. I have two monoclonal bands... Bone Marrow shows Granulomas, they looked for TB, Sarcoidosis..my lung look clear..but I have Reactive Airway Disease.  

I really frustrated as I'm told to wait for 6 more months to see if I have any changes.. been to a psyciatrics as one Dr requested and she said it sound Organic..not in my head.  my left side weakness gets so bad my life had changed... waiting for MRS...I used go golfling, bowling, go to football, hockey games.  I haven't been able to do any of that for 4 years now.  I can't use stairs, my Vertigo spells gets so bad at times I get it three times in a day and I'm finished for the week...just exhausted from them.  My main outing is with my husband, going grocercy shopping and holding onto the cart for dear life.. and that finishes me for the next day or two.    

Sorry, this is so long.... I just really wanted to get all this down and get your opinion on what I might do next...just wait like the MS specialist requests...thanks..wobbly

[Dr. Daniel Kantor, MD]

Based on the report that you copied:

Numerous T2 hyperintense foci are again seen in the cerebral white
matter, involving the deep, subcortical and periventricular white matter.  A
few of these lesions have slightly increased in size as compared to
previous.  At least 2 tiny lesion are present in the corpus callosum.  A few
of the lesions have perivenular (Dawson's fingers) orientation. Impression
Numerous T2 Hyperintense foci.  Their pattern is suspicious for
demyelination.  The findings have slightly worsened as compared to previous.

This sounds very typical for MS, but please realize that there must be a reason why the neurologists are unsure. You can always get a second opinion -- this is never insulting to us; just ask your neurologist to arrange one (this is the fastest and best way to get one).

[Wobbly]

sorry to bother you again, but can you give me some answer as too why a MS specialist would be unsure after that report?.... anything answer so that I don't feel like I'm brushed off again?  Please help with this one...

thanks
wobbly
undx

[Wobbly]

I did get a second opinion, and the MS specialist is the second Neuro I saw since this Radiologist report..the first Neuro wanted a second opinion of this.. the MS specialist said the report is wrong even before she saw my CD of my MRI?  

Maybe the Neuro exam isn't showing something,??  I did ask her why I had them and she just said I have about 20 lesions and some new ones in the corpus callosum area, she said some people just get lesions?  northing more... but she didn't know if it was a rare form of MS?  So.. I don't know if I should ask for a third opinion.  
should I go further with this?  Or wait...

thanks
wobbly