rage and moodiness so common for us ms folks

[Ufrustrated2]

why is irritability, rage and moodiness so common for us ms folks. or should i say me. i have a lot of chronic pain syndroms so i know that adds to the irritability, lack of consistent deep spleep adds to it too.

ok, so i know these things. what baffles me is the sinusoidal waves of, "ok, i feel great today, week...", then "oh oh, here we go again".  this roller coaster of never knowing or not really being able to control it for consistency sake drives me nuts.


Happy New Year!

[alyrik]

I know how you feel, my family gets so mad at me because my speech is just so fast , they say it is like a data burst , which at first was funny  now it is just plan annoying, and I am having rage issues on top of that .  
Thanks for the ear .
Michael  

[alyrik]

I know how you feel, my family gets so mad at me because my speech is just so fast , the say it is like a data burst , which at first was funny  now it is just plan annoying, and I am having rage issues on top of that .  
Thanks for the ear .
M.

[needanswers54]

Sorry, I missed your January thread.

Yes, I think we are on somewhat the same page.

My vision and the connections are slow today.

I have migraine starting.  

But, I am glad to have a chance to get to a computer.

Again, thanks to one and all for all your support.

Torey

[needanswers54]

Thanks for the feedback.  I am not saying that I was diagnosed with bipolar.

I just noticed that so many people on this sight have been diagnosed as bipolar and then have had their neuro state that it was NOT bipolar--but MS--and have had their records changed to reflect the situation.

The psychiatrist from New York that wrote the book is a specialist in bipolar.  He was the physician who stated that MS can mimic bipolar.  And that one should treat the MS rather than use psychotropic drugs for bipolar as the situations are different and the bipolar drugs is not what is required for the MS--even if the person appears manic.  

I do recognize that a person can be both; and I recognize that in a situation in which the person appears dangerous--that treatment options may change.

It just seems that once a bipolar label is struck--then the physicians consider the patients as being quack and get lazy about figuring out their MS diagnosis--or fail to consider the other things in their health and life that is going on.

Sometimes just the taunting and lack of validation for someone with a disease such as MS can trigger them to have a panic attack due to possible post-traumatic stress disorder or something--especially as MS patients tend to show more extreme mood swings.  I have just seen so much mistreatment of MS and lupus people, etc. that it just sickens me.  I had a nurse just this month tell me that the doctor was getting stressed out because they could not get my vomiting to stop after rounds of dilaudid, zofran, compazine, etc.  My blood sugar became very low and the trucal titubation that I am experiencing had become much worse.  The nurse said that the doctor thought my MS was relapsing.  I think that perhaps that was correct.  I was given high dose benzodiazopine to try and control the tremors.  Then, I was treated as if I was an anxiety case because I had to have benzo.  My neuro has stated that he has prescribed them for my tremors (after I asked for them) because of the tremors--not for anxiety.  The docs see that I have a prescription for valium and they just make assumptions.  It really ticks me off.  I have trouble with seizure medication.  My titubations get to the point that it appears that I am having a seizure--but I am not.  I have been tested during such an episode and at other times.  This has started since my transverse myelitis stated active for a good year in my cervical spinal cord.

If the most experienced ER doctor there was stressed out about my extreme vomiting, why is it that the patient cannot become the least bit stressed out about anything.  If  he was that stressed out and thought my MS was relapsing, why did he not do any MRIs or consider admitting me?  I ended up finding my own way home (with the options of walking or hitchiking) in about zero degree wind chill in the snow.  My blood sugar was about sixty about twelve hours before all the vomiting.  There was no IV with glucose or anything.  I just think that we are often just brushed aside and diagnosed psychiatric because they just do not know what to do with us or are just too lazy or too busy to try and figure it out.

My family has been emotionally abusive/invalidating to me since my diagnosis.  My own Mother basically stated that my life was a waste.  She stated that all my hard work and education was a waste.  And since I cannot do what she demands that I do which in the past I had struggled to do:  She refuses to have anything to do with anyone in the family who has anything to do with me.  I have become totally alienated.  All I need is for someone to state that I was psychiatric or bipolar and that would totally justify their abuse towards me.

The whole situation is sickening.  

I understand what you are saying.  I just think that there is more to the picture than a lot of clinicians have the time or the patience or the knowledge and expertise to really listen, understand, diagnose, or treat.

Well, that was me letting off my steam for this afternoon.

Thanks for your ear and responses.

Torey

[supermum_ms]

This, reading this stuff is what makes me love you guys, always makes me feel 'normal' though i dont know depression from internal personal experience, there isn't a family member that doesn't suffer from depression, i even married a man that does too. I seem to have been hit with the lucky stick on this one, i laugh way too much and its abnormal at what i find funny, so i think my brain is giving me a brake here.

My mum was dx with bipolar 40 years ago, back then it was called manic depression, if there is any polar going on in her brain its Uni, never has been up, she's only ever frightenly down or normal, truth be told i think her true problem is anxiety. I can only speculate but i think her issues are caused by something that has never been treated, she's got kidney issues and she's hypoglycemic too, so who knows the how or why. I find it interesting that she still has the same level of depression even on her meds, her anxiety issues can and do cripple her when they hit, you'd think if it was bipolar the meds would help just a little bit.

I do know something about hyper reflexes without having the anxiety issue, touch me now and i startle, i jump at unexpected sound, objects etc. I have unconfirmed (cause theres nothing wrong with me accept stress or maybe something vascular, eyes rolling at wolly Dr's lol) spasticity, how else can i walk like a string puppet, and i have a lot of over muscle rebounding, they are still moving long after they should be but i'd not thought they were all related. I did come across a dx MSer who also walks like a string puppet, dont know of anyone else that has though. I'm sure there's a book somewhere that discusses in detail why/how and what causes someone to suddenly start walking like vergil from thunderbirds, i'm just havent found it yet! lol

Gee its good finding somewhere where your normal is just that, quite normal :-) oh and next time your looking for a place to hang where you wont stand out or be rejected, pop over to my house, here anything goes, normal is so last season!

Cheers.........JJ

[LATW]

When my friends MS started to get really bad he used to rage and punch holes in the walls.

His MS has progressed to the point where he is total care.  He can not do anything for himself.

LA