Aa
Frustrated & unsure of it all...
OK, so I saw the nuerologist and I just came out point blank and asked her if she thinks that I might have MS, and she looked at me and said "absolutely not!" She said that the brain MRI is the strongest indication of finding lesions for MS. So I asked her what could be possibly causing all of these symptoms then because I looked them up online and MS always comes up? She said to please stay off-line because there is much mis-information out there and that I may begin to learn of new symptoms and begin to feel them. What ever lady....I lost interest when she said "Well, you look good." What am I supposed to look like?
So, I again asked her what she thinks all of this may be and she said that she thinks it is all related to my car accident on June 1, 2007. It is post concussion trauma syndrome, and that it could last up to a year. So I hope she is right, and I never even got to ask her about the bladder issue as I am under the impression that she would think I only began this after reading other's testimonies. I've had it for over 2 years...
She said the internet will only make me anxious, and I said that I am not anxious, I am only frustrated that I have no diagnosis and I am not my whole self anymore.
Sorry to ramble and complain. I'm not sure what is worse, but the waiting for what???
Some of the things she said do not correlate with some of the things I have been researching lately. I guess I should just take her stupid sleeping pills that she has upped and not be pro-active in my own health. I'll just be ignorant and I'll just continue to not go anywhere by myself, because I might fall down or talk like I'm drunk. She is going to conduct a nerve test next to see if I have carpal tunnel!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
TonkaSpirit
So, I again asked her what she thinks all of this may be and she said that she thinks it is all related to my car accident on June 1, 2007. It is post concussion trauma syndrome, and that it could last up to a year. So I hope she is right, and I never even got to ask her about the bladder issue as I am under the impression that she would think I only began this after reading other's testimonies. I've had it for over 2 years...
She said the internet will only make me anxious, and I said that I am not anxious, I am only frustrated that I have no diagnosis and I am not my whole self anymore.
Sorry to ramble and complain. I'm not sure what is worse, but the waiting for what???
Some of the things she said do not correlate with some of the things I have been researching lately. I guess I should just take her stupid sleeping pills that she has upped and not be pro-active in my own health. I'll just be ignorant and I'll just continue to not go anywhere by myself, because I might fall down or talk like I'm drunk. She is going to conduct a nerve test next to see if I have carpal tunnel!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
TonkaSpirit
Maybe we have a bit of 'cultural confusion' here!!
If you're in Australia you may not know that a wienie roast is a sort of old-fashioned name for a cookout, which is also an old-fahioned name, come to think of it. For some reason I associate this with my long-ago Scouting days. 'Wienie' is a nickname for wiener, which is one very old name for a hot dog. They'd get impaled on a stick and held over a fire to toast, and that's where the wienie roast name comes from. However, in modern times a 'weenie' (spelling varies) is a slang word for a weak, ineffective, loser type.
I always think of a wienie as kind of cowardly. That sure fits here, doesn't it??
ess
If you're in Australia you may not know that a wienie roast is a sort of old-fashioned name for a cookout, which is also an old-fahioned name, come to think of it. For some reason I associate this with my long-ago Scouting days. 'Wienie' is a nickname for wiener, which is one very old name for a hot dog. They'd get impaled on a stick and held over a fire to toast, and that's where the wienie roast name comes from. However, in modern times a 'weenie' (spelling varies) is a slang word for a weak, ineffective, loser type.
I always think of a wienie as kind of cowardly. That sure fits here, doesn't it??
ess
We don't just roast their weinies, lol. that seems a little sexist. We roast the whole neuro calling them weinies, which is a perjorative expression in the states. So that way we can roast this female neuro also as a weinie.
On good nights the bonfire is big and we have a root beer kegger and S'mores!
Quix
On good nights the bonfire is big and we have a root beer kegger and S'mores!
Quix
Hey, all, how can you roast her weenie? She is a she?! Oh, shoot...I have other ideas though!
Anyway, Tonka, I feel you. I know exactly where you are coming from.
I haven't been to my post MRI visit yet, and just got the results from my 1st series of MRI. No lesions or plaque to be seen. I am truly relieved. However, I have other issues to explain some of my symptoms that were found on the MRI, so at least they found SOMETHING. That is a big help.
Anyway, I will be thinking of you!
Aussy
Anyway, Tonka, I feel you. I know exactly where you are coming from.
I haven't been to my post MRI visit yet, and just got the results from my 1st series of MRI. No lesions or plaque to be seen. I am truly relieved. However, I have other issues to explain some of my symptoms that were found on the MRI, so at least they found SOMETHING. That is a big help.
Anyway, I will be thinking of you!
Aussy
Good night & thank you for your concern and your prayers. I will say one for you and all of you tonight.
Terrie
Terrie
I am sorry that you had a frustrating visit, that seems to be going around. Good luck and I will say a prayer that you find a good doc. Good night it is midnight here.
Nancy
Nancy
Thank you so much for all of you input and support. I truely feel like family here, even if I am attempting to find new symptoms...LOL. I hope you are all feeling wonderful tonight and get a good nights sleep. Love to you all and yes I will begin looking for a new doctor, perhaps someone who specializes in MS. I think there is one near San Francisco, which is close enough if I have to. You guys and gals are great.
Terrie
Terrie
Hi,
I also had a car accident this year, July 7th. I was hit in the rear pretty hard. I didn't loose consciousness or anything. The Chiro I saw yesterday mentioned a concusion but the symptoms I have had started way before the car accident. I wonder how similar our symptoms are. I suppose it is possible for some of them to be caused by a concusion. Perhaps Quix can help us out with that. I will bump up my timeline. I think you may have commented about the similarities, I can't remember.
Angel
I also had a car accident this year, July 7th. I was hit in the rear pretty hard. I didn't loose consciousness or anything. The Chiro I saw yesterday mentioned a concusion but the symptoms I have had started way before the car accident. I wonder how similar our symptoms are. I suppose it is possible for some of them to be caused by a concusion. Perhaps Quix can help us out with that. I will bump up my timeline. I think you may have commented about the similarities, I can't remember.
Angel
I agree with everything everyone has said. I am also in the same boat as you right now, need a new neuro but am afraid to go searching just to find another weanie waiting to treat me like a Hypochondriac. It is so hard to keep up your confidence in who you are and how you feel when you are treated this way. It really is like a bad dream at this point for alot of us.
We can do this though with the support of eachother. We can research and document and go to as many neuros or other doctors as it takes to figure out what is wrong with each and every one of us! I know I would not have the courage to continue this battle without you all!!
When you are researching where to go next just imagine us all in the background cheering you on to do what it takes to make you better. We will all be here!!
Take care and I will be praying for you!!
Kristin
We can do this though with the support of eachother. We can research and document and go to as many neuros or other doctors as it takes to figure out what is wrong with each and every one of us! I know I would not have the courage to continue this battle without you all!!
When you are researching where to go next just imagine us all in the background cheering you on to do what it takes to make you better. We will all be here!!
Take care and I will be praying for you!!
Kristin
One thing is very clear. This Neuro has totally closed her mind to "the possibilities." And that includes the possibility of MS. It really IS time to find a new doctor. You are going to get nowhere with this one.
A good doctor will appreciate that you are an advocate for your own health. I have been told as much, by my wonderful doctor. She says that an informed patient makes a better patient. A patient that is usually more compliant, when she offers advice and her professional opinion about their health.
I agree with Quix's suggestion...time to move on...
Heather
A good doctor will appreciate that you are an advocate for your own health. I have been told as much, by my wonderful doctor. She says that an informed patient makes a better patient. A patient that is usually more compliant, when she offers advice and her professional opinion about their health.
I agree with Quix's suggestion...time to move on...
Heather
So, do you think that you are more anxious having been learning and talking to people here?
This doctor has a very low opinion of the masses (her patients) and their ability to learn and grow. Weanie Roast indeed! In my practice I found that informed patients were almost always better off, though they kept me on my toes.
She was writing you off as a true hypochondriac who would "get" every symptom you came across, and then believe you would die from it. How insulting!
Personally I found that by learning more I could eliminate disease after disease by learning about it - on the internet.
Post-concussion syndrome is very real and can cause severe dysfunction, especially cognitively. But, it doesn't explain everything. At least she showed her true colors and what she thinks of anyone without and "MD." Shall we move on....?
Quix
This doctor has a very low opinion of the masses (her patients) and their ability to learn and grow. Weanie Roast indeed! In my practice I found that informed patients were almost always better off, though they kept me on my toes.
She was writing you off as a true hypochondriac who would "get" every symptom you came across, and then believe you would die from it. How insulting!
Personally I found that by learning more I could eliminate disease after disease by learning about it - on the internet.
Post-concussion syndrome is very real and can cause severe dysfunction, especially cognitively. But, it doesn't explain everything. At least she showed her true colors and what she thinks of anyone without and "MD." Shall we move on....?
Quix
Well this is what my nero told me; stop keeping track of symptoms, I'd only make them worse (huh????). Stop researching online as I'd find new symptoms to 'get'; as evidenced by how much I just LOVE muscle weakness and fatigue!!! And to just ignore any issues I thought I had and I'd be fine.......
What can we say Ladies? Just persevere and have a big old WEENIE ROAST!!!!!!
LOL
Jo
What can we say Ladies? Just persevere and have a big old WEENIE ROAST!!!!!!
LOL
Jo
Boy do I second JI Jo's post!
Do these people think we spend time on line trying to find some disease we can get?? They fail to get the simple point that the symptoms came first, for heaven's sake. Neuros who seem to assume by default that their patients are nuts are expressing nothing but contempt. They need to get a life---somewhere else.
I had muscle cramps for months before I even knew they could be a part of MS.
ess
Do these people think we spend time on line trying to find some disease we can get?? They fail to get the simple point that the symptoms came first, for heaven's sake. Neuros who seem to assume by default that their patients are nuts are expressing nothing but contempt. They need to get a life---somewhere else.
I had muscle cramps for months before I even knew they could be a part of MS.
ess
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