For the past year (since long before my diagnosis), my best friend and I have been planning a trip to Spain to do a pilgrimage called the Camino De Santiago, which is a 480 mile walk that takes 30 to 40 days to complete. Thousands upon thousands of people complete the pilgrimage every year, and we are in our mid-30's and have been looking forward to meeting people from around the world and having a great time during the trip.
A couple weeks ago, I was diagnosed with RRMS. It was pretty out of the blue for me, but I'm going to start Copaxone to try to reduce the progression of symptoms. My symptoms up to know have been mostly sensory, with a small amount of leg weakness, but nothing that would hinder me from making the pilgrimage. I need to figure out how to travel with the meds. I have reviewed the Shared Solutions website and understand the procedures for flying with Copaxone, but I still have to figure out how to pack it for the walk, and I also know I will need to take a sharps waste container to store my used syringes until I get back home.
Does anyone have any ideas for traveling with a large quantity of Copaxone? I read on the Shared Solutions site that the drug should be refrigerated, but can be kept at room temperature for up to 30 days. I know I might need to try to make arrangements to pick some up in Spain since I will need a 40-day supply in order to stay on it for the entire trip. Alternatively, I might need to go off it for a period during the trip if I can only take a 30-days supply. If anyone has any experience with making a trip like this while on Copaxone or a similar DMD, I would love to hear your advice. Thanks :)