Random Symptoms but clear MRI?

[matsa]

My story goes back about 4 years. 4 years ago, I lost feeling in the tips of my fingers, and I literally nearly lost one finger. My fingers started out turning purple, followed my white and then eventually one of the tips of my fingers went black and looked like it had frost bite. During that time, on the same side my shoulder was almost useless. There was severe pain there but I also had almost no control of it.
I went to see my pcp who referred me to a neurologist, who ordered a c-spine mri to look for a pinched nerve. that mri was clear and I was diagnosed with Raynaud's Phenomenon. I've learned to deal with Raynaud's, knowing that my hands will hurt and change color with temperature changes.
Over the past 4 years, my feet have started going numb especially after walking around a lot and they burn as if they were on fire. I've mentioned this to my pcp and he did an ultra sound and found nothing.
I've had headaches my whole life but in the last year and a half they've been much more severe and more often.
The fatigue is terrible. I can sleep 4 hours in the afternoon and still sleep 8-10 hours at night and still not feel rested the next day. A year and a half ago I went to my pcp and said "something is wrong, I am tired al the time and i have these random pains that come and go with no particular rhythm." His response "you're depressed." I've had weird buring sensations all around my body, or sometimes more like pinches it feels like. sharp pinches. or shocks maybe, im not sure how to describe them.
All of these were things I've dealt with over the last 4 years, but not thinking any of them were related or had anything to do with one another. I actually joined a gym 2 years ago, thinking I needed some kind of endorphine release to feel better. And mentally, absolutely it made me feel better but physically I still don't feel right. I go to the gym at least 3 times a week as long as I can physically go. Obviously some weeks are better than others.
Fast forward to 3 weeks ago.....
I woke up one Saturday morning and couldn't see out of my right eye. My vision was just blurry and I didn't pay much attention until Monday. I called around and tried to get into an Opthamologist, unsuccessfully. Tuesday I went to the emergency room and was told nothing was wrong. I spent Tuesday night thinking I was losing my mind, after all a doctor just looked in my eye and told me that she couldn't see anything wrong. So it must all be in my head. I woke up Wednesday morning and decided since I couldn't see an Opthamologist, I'd go see my Optometrist. And off I went. He started looking in my eye and decided I needed to go directly back to the ER, apparently I had Optic nerve swelling as well as some hemoraging. At the ER, the er doc diagnosis me with a detached vitreous and sets me up with a Opthamologist for the following day.
At the opthamologist he actually diagnoses me with Optic Neuritis, orders an MRI and tells me I need to see a neurologist ASAP. There was no detached vitreous apparently.
I saw my PCP as well last week who ordered a battery of tests, LUPUS, RA, ect ect....The MRI was clear for MS..  And my PCP seems to be leaning more towards Lupus given that I have Raynaud's. But apparently Lupus is just as hard to diagnose as MS.
I don't go see the neurologist until the 9th of march.
I guess that I should add, I am a 32 year old woman. I've always been super active up until the last couple of years of just not feeling well or 'normal'.

[matsa]

Thank you!

I actually have my films from my C-spine MRI, I just don't have copies of the EMG that was done or the dictated notes.  

I have been reading some of the health pages, lots of good info there.

[addicted2harleys]

Hi, matsa-

Thank you for breaking up your post.  Much easier to read.  :)

That's okay that you can't go see the same neuro.  But, do you have a copy of your records from your visits with him?  If not, I urge you to try real hard to get them.  Keeping records of everything pertaining to your neuro issues is so very important.  

It does seem that there are so many people with clean MRI's.  I know I have them.  Some people do get a diagnosis without lesions showing on MRI.  My brain is kinda too mushy right now to explain this better.  I am sorry.  I have been have cognitive issues.  I am sure someone will post a response for you regarding this.  

In the meantime, keep reading the Health Pages.  There is a page in there about having normal MRI's.  

If you have any other questions, feel free to ask.  This forum is wonderful and there has never been a time when I have not had my questions answered.  :)

Hugs,
Addi

[matsa]

thank you for your response! i will break my paragraphs up better next time!

The neurologist that I am seeing is not the same one that I saw the first time. My previous neurologist has retired.  

I've been reading around here trying to put things together. I've noticed that many people said that their MRI's were negative for lesions and they ultimately were diagnosed with MS, how common does this seem to be?

[addicted2harleys]

Hello, matsa-

Welcome to our forum, first of all.  I would like to direct you to our Health Pages.  There is a lot of great information there about a variety of subjects.  Just go to the top of the page, the link is on the right hand side.

Also I would like to make a request of you.  Many of our members have vision problems.  This makes it rather difficult to read posts that are one big paragraph.  If you could break up your posts into smaller paragraphs, as I am doing, more people will be able to read your posts much easier.  Thank you!  :)

I am sorry you are experiencing things with your body that seem to be unexplainable.  Even though it took some time for your doctors to get with the program, it is good that they are finally doing some tests on you.  

It is nice that your pcp is trying to help you.   My pcp is wonderful and it is good to have one that is in your corner.  In my opinion, you really do need to be seen by a neurologist, too.  So I am glad you have an upcoming appointment with one.  Is this the same one you saw before?  In our Health Pages there is one in there that helps you prepare for your appointment.  You might want to check that one out.

Also, there is a page that describes all of the MS mimics.  I didn't realize there were as many as there are, until I read that one myself.  

Anyways, I am glad you found our forum.  We have so man beautiful people here from all walks of life and all over the world.  :) I am sure that others will respond to your post.  

Addi

[matsa]

I should add that about a month prior to my optic neuritis I developed something odd in my right hand/thumb. I seems to seize up and I can't move it until IT decides it's going to cooperate. I'm not sure if this is considered a tremor or not. And I will be 33 in two weeks.