My Neuro visit today

[Quixotic1]

I saw my MS neuro today for followup of the worsening myelopathy (disease in spinal cord) and increasing right hemiparesis (right-sided weakness) The trip is about 66 miles RT and I feel too lousy to be onthr forum tonight.

My MRI shows NO new or enhancing lesions, but a couple old lesions are a tiny bit larger.  The weakness is still increasing in my right arm (MY! that man does a thorough neuro exam EVERY visit) and, I'm losing sensation in my left arm - I had no idea.  My gait speed, however, is improved.

I do have classic Trigeminal Neuralgia and he is putting me on Tegretol (carbamazepine).  He wants to do another 3 days of steroids, becasue he still thinks I'm in an active relapse despite no enhancing lesions (he says they are just too small to see).  And he thinkks the 'roids and the tegretol will help my new and improved L'Hermitte's - which is far more frequent and ZAPS my whole left leg.

My depression is also out of control and he's upping my dose of AD.

But, unless I feel better I'll see you's guys on the flip side.

Quix

[MCBCON]

For me steroids are murder.

But, icecream and chocolate still work wonders.

[Angie1960]

I read somewhere that SSRIs are not the best for MS - That Effexor works well.  I used to take Effexor and it did work BUT if I missed a day or two I became a homicidal maniac (exageratting but not by much)

[Quixotic1]

Okay, I'm not so offended now.  But, I want a tub of ice cream...

Treebranches - OOOOH!  a Virtual kitten, goody.  I need something to keep Clyde, our new baby, happy.  Here's one for you , too.  Scroll down until you find the black cat with the red collar in the black box.  Then play with him.  Have fun!

http://hugsandsmiles.com/catfacts/

Quix

[treebranches]

I'm mailing you a baby kitten.  :D

[Want to feel well!!!]

My last comment sounded kinda sterile once I read it after I posted it, but I didn't mean for it to be.  Instead of "asset" I meant to say friend.

Wanna  

[Want to feel well!!!]

You have been such a wonderful asset to this forum and it is good that you let us know how you are doing.  Hope the steriods gave you a bit of a boost!

Thoughts and prayers are with you...

Wanna  

[Angie1960]

Yes you definitely need the rest.  Boy you know I can relate to the depression.  I have been very resistant to medications as well.  I had thought that If it was related to the MS maybe an MS drug would work better (that's what I was hoping).

Have you tried that?  I wonder if there something more appropriate to treat MS related depression than typical ADs.  Maybe I'll do some research.

Your sense of humor is so inspiring in whatever shape it comes in.  You are in my prayers we need you - but we need you strong.  Take care of yourself.

[nette573]

Sorry to hear you are not feeling well.  Get some rest and take your meds.  Hope to see you back soon.  You are such help to all of us.  Many prayers to ya, Lynette

[Heartshome]

I am sorry that you are feeling worse and that your depression is rearing up. I hope that your medicine makes you feel better soon. At least you can rest easy knowing that you perform a vitally important service to all of us here. I mean that...what you do is so important for all of our sakes, both mental and physical. Thanks and feel better!

[Quixotic1]

Thank you so much, everybody.  It's such a comfort to have your all around.  The depression is old news.  Chronic for the last 20 years or so (family curse and a disastrous marriage).  I try to manage it with finding things to do each day that give so meaning and importance to my life and by exercizing what I have been told is a skewed and twisted sense of humor.

Quix

[Jazzyfizzle]

Hey there gal,  wish we could hang out in a funk together. Adding my thoughts and well wishes to the others, for you.

Hugs lady!

Jazzy

[doni54]

Take care and be good to yourself. I sent you a little pick me up. I hope it makes you laugh check your email!

Here is sending you lots of love and hugs

doni

[LLWB]

Take care of yourself first, we all love you and want you better.Cuddle up with the kitties and rest. Prayers, Maggie

[speechgeek]

I wish I had grand words of wisdom and comfort ...the same that you gave me on my first post. Hang in there ......you are in my thoughts and prayers.

Speechgeek

[young at heart]

GET SOME REST

IT SADDENS ME YOU ARE HAVING SUCH A ROUGH TIME RIGHT NOW.

I HOPE THE 3 DAYS OF ROIDS HELP,MY NEURO'S DRUG OF CHAMPIONS,BUT THEY DO PROVE TO HELP THE FLAIR-UPS.

SORRY TO HERE ABOUT THE INCREASING MYOPATHY,IT MUST BE PAINFUL.

REMEMBER YOU TOLD ME NO CATASROPHY'S THIS YEAR!!!!!!!!!

SORRY TO HEAR THAT YOUR DEPRESSION IS GETTING WORSE,I WISH THIS DISEASE CAME WITH INSTRUCTIONS IT WOULD BE SO MUCH EASIER.

YOU GET SOME REST AND TAKE CARE OF YOURSELF.YOUR IN MY THOUGHTS AND PRAYERS.

T-LYNN

[pennst8r]

I am soooo jealous of your doc, but sorry to hear the news was not great. The gait speed in good news though! Gotta take it where you can get it, lol!

Get some rest, your queendom awaits your return (good one Zilla;)

Penn

[monotreme]

I am so sorry Quix.  You are in such good hands medically, but I just feel your pain and sadness.  Get some rest, and my family will pray for you and light a candle in Church for you in prayer to help you get through the steroids and the depression.


So take care, rest and tomorrow is a new day.  Be good to yourself Quix, you deserve it.

Craig

[Super_sally888]

Sweet Quix,

Life ain't fair.  And none of us see how hard a time you're having from your wonderful supportive posts.  My heart goes out to you.  How hard it must be to keep on.

Am so glad you don't have a weenie roast doctor now, and really hope he can help you get all of this under control. The sooner the better.

Remember how much we care about you and are here for you, as much as you are for us.

Gentle hugs.  Praying for you!

Sally

Tubs of chocolate icecream called for.

[RIDDICK_777]

Hi Quix, your neuro sure does sound good and certainly seems to do a thorough job, hope mine turns out this way, sorry to hear that things aint so hot for you Quix and do hope things improve shortly, hey Quix you have to get better soon or what would we do without you

take care Quix take it easy, have lots of rest you need it, hugs

David.

[risnerrose]

May you have a peaceful slumber tonight and wake refreshed tomorrow.  

Odd question popped in my mind . . . how did your young patients refer to you (Dr. Quix, Doc, . . .)?????

[Momzilla]

Hey, Your Royal Majesty~

I think your doc ranks among the top docs we could ever hope for.  And it seems like your PCP is starting to get the idea, too.  I'm losing battery power on both my laptop, AND my body, so I'm going to recharge and post later.  

FEEL BETTER and get some rest, my dear friend,

Zilla*

[kitten o]

sorry for your vist, but you sound like you have
a great neuro.  feel better. have a good week end
kitt

[floridamom2]

I am so sorry you are suffering.  This disease is a beeottch!!  I will be saying an extra prayer for your pain to get better tonight.

{{HUGS}}
Kristin

[mokibear]

I'm sorry to hear that you are not feeling well. Wow it sure does sound though that your neuro is very thorough. I hope the meds helps to getting you feeling better soon.

I'm sorry your depression is out of control. I had no idea you were suffering so. Your posts have been just hilarious and gave no hint of other things going on. We are here for you if you need us Quix.

My shoulder is always ready and willing to be used in any occasion. Although a little bony, I do have a cyber pillow on hand just in case.

Get some rest dear Quix and know that my thoughts are with you.
Hugs
Moki