Has MS made you paralyzed? Did it make you paralyzed in one leg or both??

[sammycung]

Hi, I was just wondering, how many of you have gone paralyzed from MS and if you have, has it been one leg, or both?
Sorry to ask, i just currantly awaiting a diagnosis and i'm so scared of having it and going paralyzed and being in a wheel chair :(

Im so depressed :(

I was just hoping that if i do go paralyzed it will only be one leg so i can atleast use crutches.

[kwarendorf]

Hi ucmee - This thread is a little on the old side. Some of the posters may no longer be around. Why not start a new thread and introduce yourself :-)

Kyle

[ucmeee]

Got word in January I may have MS due to sudden vision problem and was told I should start treatment.. refused until I get a second opinon in March...don't know if that was the right thing to do...since then burning in legs and Dr MRI showed leision on spine and brain...I don't know what's going on...this is new to me can anyone help

[twopack]

Not sure if you are trying to help here or find answers for yourself Mohammed but this is an old topic and I don't think Sammy has come around for quite some time.  If you have some specific questions it will probably work best to go to the top of the page and start a new topic.  People will pay a lot more attention that way.

Mary

[muhammad617]

in which leg did u start to have jerking, and did it just feel like it or it actually was moving and did it stay constant or it might have slowed down and then start again??

[sammycung]

I was just wondering if this is normal or not.
When i am cleaning the kitchen, i use straight boiling hot water from the tap to wet my chux cloth, and wash my hands with, after i have done so my hands have a buzzing/tingling sensation in them for a couple of minutes after. I have had this for as long as can remember, and i'm not sure of when it first started. I know MS symptoms flare up when in hot situations, and i was just wondering if this is a normal reaction to having your hands run under hot water until it stings and then pull them out, thats when the buzzing sensation starts. Is this normal for people who don't have MS too?

[sammycung]

Hi Lulu,
Yes, i have already read so much about "MS" over the past few months, i know all the symptoms off the top of my head, who is more likely to get it, where in the world it is more common, what are the causes and theories on MS, what exactly MS does to your body...etc.

I can't seem to ready and new information on it. I heard in June there was a new breakthrough, they found a new gene cell or something or rather, but that is just another piece to the MS puzzle that is long to be completed.

Yeah, I am definitely grateful that my doc has referred me to a nuero; I feel as though something FINNALLY getting done! You know, i just want to know what the hell is wrong with me so I can start to get treatment, & if it isn't MS i can stop bloody worrying about it.

Do you know the percentage of MS patients who are completely paralysed and the percentage of people who are partially paralysed?

Thankyou very much for reply, it's very much appreciated!

Sammy

xx

[Lulu54]

And I almost forgot to answer your question - no MS doesn't paralyze people in the way you are thinking.  Spinal cord injuries are pretty much a different type of injury than what happens with MS.  Some people do lose the use of their legs due to a variety of complications with MS.  

And most MS patients NEVER need to use a wheelchair in their daily activities.  The image you have of an MS patient is the worst case scenario.

L

[Lulu54]

Hi Sammy,
The list of symptoms you have sure sound neurological to me, but I'm no doctor.

Like you've been told by others, there are many mimics of MS - be sure to read the list of them on our health pages (yellow icon, upper right side of this page) .  There is also other great information there, so while you wait for you appt. I would highly recommend you take some time to learn more about MS.

Contrast agent is the dye they inject - it is not required for an MS MRI but does help to show new lesions.  

Be thankful that your doctor referred you on to someone who can really analyze your results and hopefully come up with answers for you.

stay in touch - we're here to help if you need us.

Lulu

[sammycung]

Hi Shermay,
A normal doctor mentioned "MS" not a neuro.
I'm not sure what you mean by a contrast agent? Is that when they inject you with dye? If so, No. The MRI was done like 2 months ago.

I am awaiting a referal comfirmation in the mail from the neuro, my doctor reffered me to him like two weeks ago.

Thankyou very kindly for you answer, you are very lovely people on here :)
Take care, Sammy

[shermay]

Hi Sammy,

Don't apologise for the long post, at least it gives us an idea of what you've been going through.  Was it a Neuro who mentioned the possibility of MS or just your regular Doc??

Did you have contrast agent when you had your MRI??and how long ago did you have the test done?

Either way, if I was in your shoes, I would get myself off to a Neuro, with the list that you have written here, with a time scale added to it and see what they have to say.  Don't put words into his/her mouth by metioning MS - just see what they have to say first, and then at the end of meeting if there has been no mention of poss dx with MS you could then add your bit.

Try not to stress yourself out too much please. it will only make you feel a whole lot worse - this is a wait and see time.  Remember MS is a great copycat!!!

Think positive ok?

Take care,

Debs

[sammycung]

Hi, thankyou very kindly for reply.

I have so many symptoms, where do I start.
Ok, so it started when I was 17, I started to get a strange white cloudy vision that lasted months, I told somebody about it and they said it could have been from the eye liner I was wearing, so I stopped wearing it all together and it still stayed there for weeks. I went to an eye doctor and she checked everything and all appeared fine so I described how it felt exactly and she started asking me if I had tingling on my other skin and I knew why she was asking me. The foggy/cloudy vision lasted for a while and then went away and I didn't experience in again until now (20 years of age).
Ok, so I had my daughter 7 and half months ago and all these strange symptoms started to appear when she was about 3 months old. The first symptom was I was sitting on the couch with my legs on the table as a rest and I started to notice a jerk in my legs occasionally, then it progressed to the rest of my body over days, so then I have jerky involuntary movement’s everyday and I still have today, 4 months later. Not long after, I started to experience muscle twitches all over my body and again I’m still experiencing them. Then I started to notice waves of tingling over my body, the main area was my scalp, arms, legs and face. That went on for ages and then slowed down and instead of it being every day it was only every few days to now just occasionally.  I started to experience a different type of tingling it feels like little tingles that would come for a second and go, kind of like little zap/tingles, it just happened then on my thigh & It seems to happen in the same places every time, like I get one on my armpit, my thigh, the one I just talked about, my arms feet etc.
I sometimes get buzzing sensations around my body, mainly my thighs. Very often I get very painful pins and needles in my heels and on the tops of my feet.
For 4 weeks I experienced really bad balance/wooziness to the point when I was standing in the chemist I had to hold onto a box that was next to me because I could hardly hold myself up. When I would stand still I would sway uncontrollably and feel uneasy. That has just in the last few days started to clear but I don't feel 100% stable still. I often get extreme bouts of vertigo, so bad that I have to sit or I will fall, this happens allot when I am in the kitchen cooking. To elaborate on the vertigo, it isn't the spinning vertigo it is the sensation of swaying when you are still. I very often feel very woozy/lightheaded and I don't suffer from low blood pressure, it's strange it just come on and because it make me woozy it tends to make me feel nauseous and feel just generally unwell. If I am sitting down and I lift my foot up into a tipi-toe position my foot/ankle starts to tremor uncontrollably until I put it back into it's normal position; also the same thing happens with my hand, shoulders and other parts of my body when I do certain moments.
I sometimes get severe itchiness around my body but it is not the normal type of itch, I have never experienced it before, it's like an electric stinging type of itch???
I get extremely easily fatigued just when I go down the road to get some things. I always wake up through the night to pee like 10000 times and I pee so many times during the day; half the time I got to the toilet and a drop will come out, or I will finish and stand and feel as though I still need to go. I also get an urgency to do number two's and I get there and nothing happens even though I had such a strong urge. I sometimes get hot pains and cold sensations around my body, mainly arms and legs oh and get a numb patch on my thigh.
I had weakness in my right arm for like a month and lost fine movement in that hand, simple things like reaching to turn the CD player down was hard and I would miss the button when I reach for it. Oooh and one last symptom around the time all of this started, I started to get derealisation chronic for the whole time up until a few weeks ago, in case you didn't know "derealisation" is the feeling of being in a dream constantly and being detached from reality. I have many more symptoms but can’t bring them to mind.

I have had a MRI on my brain and that appeared clear, i have all the blood work in the world done and that’s clear.

I am awaiting a Spinal MRI and a Spinal tap.

I do have back problems that could account for some of my symptoms:
I have scoliosis
I have neck lordosis
I have spondylosis
And i also have spondylothesis
But not all of the above back problems even cause symptoms.

Ever since I found out there was a possibility I could have MS because a stupid doctor mentioned it, i have had anxiety and depression over it. I have been on anti-depressants for a like 2 months now and the anxiety is gone, but the symptoms are still there.

If that doesn't sound like MS to you, well ill be damned!

Thanks again for your answer xxxx

Sammy  :)

PS, SORRY ABOUT THE LONG STORY!

[Karen99]

Hi.  Relatively few people who have MS become "paralyzed."  Some lose the use of their legs and use a wheelchair.  Some lose it temporarily, while some lose it permanently.  
Most folks who have MS have a remitting/relapsing type.  In other words, the symptoms come and go,  

With the new medications that modify the immune system and lessens relapses (when the most damage is done) any disability that one MIGHT experience greatly decreases.

Try to relax until you have a diagnosis.  I know that is easier said than done.  You would be surprised how many people have MS that you might come across in a day.  You'd never know it unless they told you.  Yes, it's a scary proposition to have MS but most live a full life with a few bumps in the road.    Yeah, it can kick you to the moon, but most often this is not the case.  

If you'd like to share, what are your symptoms?  

In any event, stick around her if you like.  We do our share of ranting, raving and whining.  Most of all we support each other through our trials and frustration.