OK...forget the spine question

[biowham]

I just don't have any doubt that I've got some kind of demyelination in my c-spine. Nothing is compressing the cord. And EVERY TIME I do my walking for exercise, I get Lhermitte's. WHENEVER I get hot--even a little bit hot--I get the Lhermitte's. In my mind, that association between exercise and Lhermitte's and heat and Lhermitte's is practically pathognomic (specific to) demyelination in the c spine, especially in the absence of spondylosis.

I just got back from a walk. Monsieur L'hermitte's is still with me (he buzzes the back of my left thigh these days), not to mention that I am now comatose with exhaustion and my foot is buzzing like a vibrator.

What do y'all think?

Thanks,
Bio

[Wobbly]

GEEEES... I know how you feel...so frustrating... all we can do is wait and get more testing done.. I'm in the same situation as you .. I'm now waiting for another full spine MRI...havn't done the T part yet...

Hang in there... we are here for you

take care
wobbly
undx

[biowham]

No. Negative LP, a few brain lesions, clean spine. Neuro 2 describes my exam as "abnormal"--hyperreflexia with clonus, +rombergs, etc. Sigh.

Bio

[jensequitur]

Have you had an SSEP?  It might be the next step, along with some 3T MRIs.

[biowham]

No, no 3T. I emailed neuro2 to say that for the next MRI, I want a 3T. We have a couple within an hour of where we live.

[jensequitur]

Bio, have you had a 3T MRI of the c-spine?  

I frequently get buzzing of my feet and knees.  I just had an MRI come back clear of the c-spine and t-spine, but it was on a .7 Tesla, so the results are suspect.

[ambrosiawind]

I think that makes sense to me. I don't have a DX yet and what is happening with me may not be ms I do however have Lhermitte's for me this is almost always been a constant I do have days where i am shock free but this is my most common symptom along with the spasms in my calves. I attribute my constant shocks to the fact that in my line of work i am constantly bending my neck down as a work in a nursing home. mostly i experience this in my legs and arms once up my spine but it was during a bad spell before i went to hospital and was put on nortriptyline. I have had the buzzing sensations mostly in my stomach area one point it was my feet but again that was during a bad spell (relapse/exhasperation)

I can't say if it has to do with demylination though  and am due for my brain MRI at the end of january maybe something will turn up from that hopefully someone can answer directly if these sensations are directly related to demyelination sorry couldnt be much help but at least you know someone else is having the same things