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1168718 tn?1464983535

Hello, it's been a long time !!

I actually have more of a comment.  I am now on Aubagio, for 1 week now, and have had a bad couple of months before that. I have been having more and more bladder infections, and have had so many hospital tests, and see my new urologist on Sept. 9 and we will discuss where we go from here.   The surgery I had last year on my bladder, did not work, and the bowel one, did not work either.  So, needless to say, we have a new Dr. now.  My bladder is still prolapsed, and my catheter's are becoming painful.  So, we aren't doing great.

I'm sorry I have not been on for a long time, but just needed a break. Now, I hope I can again help someone or give advice, or just be here to hear a vent....... I so getso much of what I have read just new on the forum.  The one that strikes me is that MS is not a big deal ...........  I loved Kyles comments, and I could go on with his  list of symptons.   I hope that everyone is doing well, I curious about a few people .....

Good to be back ..
Candy
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1168718 tn?1464983535
OMG, you guys made me cry...... I have so missed you all, and so , so glad to get your cheery notes of encouragement. I means the world to me.

Well, we are back on Macrobid, for 10 days, not happy about that, but what can you do.  Last time it took 30 days of Macrobid to clear me up, that is when supposedly I was clear, when the WBC was way out of range.  Gotta love these NEW fandangled things... LOL

Well, we have been keeping somewhat busy when we can.  We finally rented the basement suite after we re-modeled it.  A nice, single lady, so are stoked about this.

Hubby has still been fighting WCB and we seem to be getting no where really ..

So, the Candy saga keeps on going.  

But, I wanted to say Thank You all so very much ,

((HUGS)) and love to you all
Candy
Helpful - 0
5887915 tn?1383378780
Hiya Candy,

It's great to see you here. I hope this new doc can help you get some resolve from these constant UTI's. Keep popping in to keep us updated on how things are going because your forum family not only cares about how you are but we also all can learn from each other's experiences.

(((Hugs)))

Karry.
Helpful - 0
382218 tn?1341181487
Hi Candy, good to see you here and I'm very sorry you haven't been doing well.  I hope the Aubagio works well for you without any major side effects. Take care.
Helpful - 0
Avatar universal
Hi sweetie, I have missed seeing you here. :-)

That totally ***** about your surgeries so I hope this next round of "fun" goes better.

I hope Aubagio plays nice and that there is some relief for you soon,

Corrie

Helpful - 0
Avatar universal
Hi Candy!
So good to see you back. I have been watching for posts from you and wondering how you were.
Sorry to hear your surgeries were not successful. Those darn UTI's the can be so relentless. I hope this new doc can give you some answers. Oh the frustration! I really feel bad for you.
I am hoping and keeping my fingers crossed that you will do well on the Aubagio.
Sending many prayers and big ((HUGS))
Warm regards, barb
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
Hey its great to hear from you!! So sorry to hear that the bladder and bowel problems didn't end up getting fixed, gosh i still remember what you went threw with your bladder..........hugs!

I was just thinking about starting a new thread on bladder issues eg UTI's, lol probably due to feeling like its ground hog day every morning. The UTI i'm dealing with is different to what i'm use to, its going on two weeks and i'm over it big time, can't imagine what you've gone through.......more hugs!

It's great to see you back :D

Cheers.............JJ  
Helpful - 0
3079363 tn?1363273715
I hope things get better for you! I don't post much either but wanted to encourage you with the Aubagio. I've been on it for 2 years in December. The initial side effects were minimal. The most distressing was the hair thinning! I'm happy to report that that eventually turned around too. My husband comments all of the time that my hair looks thicker than it's ever been and I have no side effects at all.
Helpful - 0
Avatar universal
Welcome back - I've been somewhat MIA lately too but try to pop through as best I can.  Tonight I am seeing all sorts of old familiar faces and it makes me miss everyone even more.

Tough luck about the surgeries - I had hoped they would be great for you.  

Come back when you can - everyone benefits from the experiences of our experienced MSers.

hugs, L
Helpful - 0
667078 tn?1316000935
Sorry you are still having bladder problems. I am doing okay. My Cancer is back but I am still in the Clinical Trial. Otherwise I am doing well. I am busy training my 6 month old deaf dalmatian.

Alex
Helpful - 0
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