Thanks Bob!!! I wonder if I will get a phone call tomorrow from the neuro.
I just sent you a note!!
If anyone else here has had this test done and would like to share, that would be great!!
Pam
I had the VEP done about a year ago. 95 mS in my left eye and 127 mS in my right eye. The amplitudes were I was diagnosed with Optic Neuritis and placed on a "watch list" for CIS.
By Nov 2010 I had more periventricular lesions and was diagnosed. I just had my third MRI last night. I'm waiting for it to be read. I'm just finishing up my first 6 months on Copaxone.
Bob
Thank you for answering for me..... Yes, Everything has been tested, retested and retested again and no indication of anything else.
I was trying to read about VEP stuff and was not following too good, its easier for me when you break it down.
I did read something about the differences that show on the test about latencies and the fact that mine was absolutely prolonged it does not fit my dx of ischemic optic neuropathy. It fits, Optic Neuritis.
Would you believe the dr. did not even call me? I probably should have called today but I assumed if he thought it was important to contact me he would have, right?
I have an appt. with my "regular neuro" on Monday and I don't even what to go, I haven't taken the klonopin he prescribed me, and the last time I was there, he disregarded my hand tremor as anxiety. At this point, he is really going to give me attitude when he finds out that I sought out another opinion.
Have you had a VEP test done? I can't remember if you said you did, if so, did you have a description comparable to mine....? I know we can't compare, I am just curious about these numbers.
Thank you , thank you ,
Big Hugs,
Pam
Well, MS is one type of demyelinating process. ADEM and Lyme's are others. You don't fit ADEM and I think you said Lyme's had been ruled out. If the only thing left is MS...
That is how the doctors are supposed to look at it when it is a diagnosis of exclusion. They have the list of what to rule out. When MS is all that remains...that it.
Bob
Bob-
Thanks, and with the statement of "consisting with demyelinating process", does he mean, it's possible that its caused from MS.?
Mary-
I hope these drsfinallydohelp Lol As far as my Graves Disease and Eye Disease, I was dx'd with Ischemic Optic Neuropathy back in 07, however, I did have a change in my vision 6 months following my first eye surgery, and then it got alittle better 6 months later. I wasn't sure if it could have been I had my attack of ON during that time and it went unnoticed because of my Thyroid Eye Disease.
Dean-
I have had multiple issues with my eyes, Optic Nerve damage, nystagmus, diplopia, photosensitivity, wind sensitivity and unable to grasp at something, " like if someone is holding a pen in their hand and I am trying to grab it" I miss it or think I am near it, but way off, it's funny and embarrassing at the same time.
I have a real hard time with depth perception, and I either raise my foot up high thinking I have to step up when the ground is even, or if there is a slope or something like that, I can't tell and I start walking like a drunk because the ground feels weird to me. It S U C K S !!
thanks you guys !!
And,, if anyone would like to share their numbers or results,, please do so, Thanks.
Pam
Hopefully your neuro will help you understand these results and help you! Best wishes. Just curious: with your abnormal VEP what symptoms or issues are you having with your eyes (or had at the time of the test)?
So, is there a way to know for sure what caused this ON? I wonder if the neuro will know if it comes from the Graves (that's possible right?) or 'something else'. Looks like you definitely have some findings to go forward with now.
It would seem the words I recently recycled from Lulu (without official permission) fit here as well, so .... It is a strange place to be, right? You've looked for answers and now that it appears you have them it is difficult to understand what it all means.
Hopefully a call or visit to the neuro will provide some answers. Do you have another appointment? I hope drsfinallywillhelp.
Mary
EEG shows slowing from multiple locations typically seen in epilepsy of an obscure or unknown form.
VEP shows decreased signal velocity from the right eye. This is seen in Optic Neuritis
Tapping on the wrist showed mild entrapment of the median nerve (Carpel Tunnel) both wrists, but no evidence of ulnar nerve entrapment at the wrist. It was neither positive nor negative with tapping at the elbow. Manipulation of the elbow did not indicate ulnar nerve entrapment.
Is that what you were looking for?
Bob