MS lesions!!!!

[Angiemar75]

How many brain lesions are too many?? I have been Dx with MS since sept/2011 and they stopped counting lesions after about 30... Does that mean I have a more agressive form og MS? They said I have RRMS!!!

[Sidesteps]

I don't know.  I'd probably focus on not looking the lesion load vs my disability.

I think that you can have a pretty significant lesion load and still not have a lot of symptoms.

You can also have a lower lesion load and have significant symptoms/damage.

It really depends on a lot of other factor's.

[HVAC]

This is from a non medical perspective. Lesion load and placement of lesions does not always equal damage. There are people with one lesion who are really diabled and those with many who are not. what is important as far a DMDs are concerned id this. If you are on a DMD and you say have 2 lesions on the MRI before starting the DMD and 5 on the next DMD the doctor and you may decide the DMD is not aggressive enough for you.

If you are asking when does RRMS become SPMS that is tricky. The short answer is when you go from having relapses with bouts of inflammation to having steady permanent damage. This is tricky for Neurologist to figure so they usually call it RRMS. RRMS has  deeper spikes due to inflammation. The good news is when inflammation goes down symptoms recede a bit. Most people do not go completely back to prelapse there is some damage. When you get to SPMS the spikes are more like rolling hills but the damage is there.

All this stuff is guess work. I have had MS a long time and every time I see the MS Specialist he has to reason it out again what is the best course of action.

The real question is what does your Neurological exam in the office show.

Alex

[Angiemar75]

Thank you all very much for all your help! Its nice to get advice for people who undrestand what I am going through!!! Thx again!!! Angie

[Angiemar75]

Sorry for the aweful spelling! Goes with the territory I guess!!!  LOL

[Twinsmom06]

I stuggle with this very often and I don't even have an MS Dx at this point. I have many, many...they won't even give me a number...leasions on my brain. I honestly have no idea how many and many of them are rather large too. "Funny" thing...I have very few symptoms. Absolutly none that interfere with any sort of daily activity, balance, vision...anything like that. I have some numbing in my left arm but nothing that prevents me from doing anything at all. It just feels "different".

Then I see people with one or two lesions who have severe symptoms and it is really hard to understand that! I know there is much unused space in our brains but when I know I have them ALL OVER THE PLACE...it is hard to use this rationale as are reason for having such a mild symptom.

Please don't take me for complaining! I am so very greatful to feel as good as I do. Neuro has ruled out about anything and everything else under the sun at this point as well.

I think it's just the odd, unpredictible nature of MS. You just never know!

Take care and know that others struggle with this theory of lesion load!
Kim

[Guitar_grrrl]

One can have very few lesions and lots of disability, another can have many lesions and light or no disability.

Check the Health Pages on "Lesions, Lesions, Lesions"
http://www.medhelp.org/health_pages/Multiple-Sclerosis/Lesions-Lesions-Lesions/show/762?cid=36

[monnie115]

Kim, I can relate. I'm not diagnosed and have lots of lesions, too. I can't really complain about much...some tingling and burning sensations in my lower legs. Oh, and trigeminal neuralgia which isn't fun. Besides the face pain, everything has been subtle and not worth reporting. I've always attributed other nuisance symptoms to other things. While trigeminal neuralgia can be a symptom of MS, it's rarely the first one, so it's going to be a matter of seeing what happens. Hopefully my face will feel better and that will be the end of it. :0)

[Angiemar75]

Thx so much Kim, I hope the neuro gives you a Dx soon... Not knowing is sometimes worse! Good luck and hang in there girl!!!

[carrie235]

Hi Twinsmom

I saw your post and wanted to let you know that I feel very much like you.  I am not DX with MS (but I do have a positive lyme test).  Anyway, I have over 20 lesions on my brain and get tingling/vibrating/occasional spotty numbness.  Anyway, I'm trying to figure this all out - I really just wish I could drop it but I can't.

I had 9 amalgams removed shortly before I started getting ill.  I had no idea there was such a thing a "safe" removal.  Anyway, I can't help but think that maybe the mercury caused my lesions....  Have you had any dental work like that done?

Thanks.