This is what I have???

[singinalong]

Well, I apoligize, I havent been on the forum for a week... I have been in the hospital since wednesday of last week. I went in there, with a very severe headache with vision loss. So I went to the hospital. After being here a week, they diagnosised me with Somtoform disorder. A disorder that causes the brain to make the body think it has symptoms, which are real, very real... but there is no physical reasoning for it. They did MRI with gal, and it came up clear. She said my eye tests are inconsistant -- so this is the only thing they came up with. Hmm so we shall wait and see what happens. Just thought I would give you an update.

[singinalong]

I am sorry, I shouldve read what I wrote last night in the other post that Quix so kindly bumped for me... I forgot I wrote in that one too.. so sorry :)

[singinalong]

So, I am home from the hospital... I spoke with the therapist again today.. and explained to him a wee little tidbit of information that I got from the other neurologist. ... I ran into him last night in the hospital hallway, and asked why they didnt come and see me that day, because I was supposed to be discharged. He said "well we didnt have time" I said well, thats not my problem. I also said, that the physio therapist was very concerned about my weakness and numbness on my left side, and she wanted to see me again..... this is what he said.

"well, just go and do what you got to do, even if you fake it, and get the hell out of there, and then you can get the hell out of here"

WHAT?!
I was with a friend that came to visit, and after he left, she looked at me and said did I just hear him correctly? wow... I was stunned.

As tempting as it is to not be in the hospital, and be at home, I didnt want to leave until I was comfortable with leaving. Sure the headache is gone, the blackout vision is gone, but I still have weakness.. and I still have double vision, and no periphial vision... But, I guess, I will try this medication, and go see mental heath, as the doc says I need "talk therapy" ... do what they say, and go and see them again in another month... I am sure, still searching for an answer. I never give up, and never surrender. I know my body, and whatever "stresses" happened in the past I have been delivered from...
hmmm... thanks again for that post that you brought out. man, there is some great info in there. I appreciate everyone sharing thier experiences. and thank you so much for listening.

Love, Shari

[biowham]

I'm with Quix. That doesn't sound right to me, either. And what everyone else said. This is a cop-out.

Bio

[Quixotic1]

I'm mad for you also.  What you went through does NOT sound like somatoform disorder.

Somatoform disorder is a diagnosis of exclusion.  It should be the last thing they come to.  It almost sounds like you had a hemiplegic migraine, with the one-sided weakness, the vision loss and the severe headache.

We had a whole long discussion on somatoform disorder a while back.  I bumped it up for you.  It's called "Psychic Groans - Anxiety or the real thing?"  You might enjoy what people had to say about it.

Quix

[doni54]

Hi Shari,

You vent all you want to, sweetheart.  It just makes me so angry when my friends here are told it's all in their head, I'm with you it's B U L L S H * T!!!!!  

I'm just waiting and hoping my neuro doesn't tell me that, since my MRIs were clear.  I'm afraid I might go off if he does.

You take care and know we all understand what you're going through and we're here for you.

Hugs,
doni

[Lulu54]

Shari,
I am so sorry to hear this ended on this note - being told it is a physical symptom caused by something emotional or psychiatric is demeaning.  

No, not everyone your age has white spots on their brain MRI's.  That's an easy answer to try to pacify you and help your emotional or psychiatric distress.  Good for you to not buy into this either.

Now is a good time to be mad - really mad - and get it out of your system quickly. Then its time to get on with looking for real answers to your very real problems

my best, Lu

[singinalong]

I ended up having a really horrible painful headache, and it shut off the vision in my left eye for about 36 hours. I had extream weakness in my left side, which is still there. I do think this is a cop out from the doctors, because my tests have not be consistant. I am so angry .... I dont have a lot of stress in my life, things have never been better, other than this limbo land --- I have had the VEP test, and it has come back normal. They also claimed they took another look at my first MRI , and said the Radiologist was incorrect in his findings, that there is nothing on the first MRI. The white spots that they did find, well "everyone has white spots.. you have them I have them ... " thats what the neuroligist claimed. He said that if I go on tradnazone for a week, then my symptoms should subside, and I should be back to normal.
and a little CYA -- cover you a** -- We arent ruling out MS -- it just hasnt shown itself yet. If thats is really what it is. -- and really its not all in your head, your symptoms are real, and we can treat them. .. .but you need to see a phyciatrist.

B U LL S H I T!!

Thanks for letting me vent. Love you all

Shari

[doni54]

Hi Sing,

I'm sorry you ended up in the hospital, but maybe that was best and you got a dx.  I agree with everyone else about it being a dx given when the drs have no idea what they are dealing with, but of course, that is just my opinion, and being undx I don't know anything for sure.

Keep pursuing this though, so that you can be sure.  Get a second, third or even fourth opinion before you take this dx.

Hope you will feel better soon and find out for sure what you dx is.

Take Care
doni

[Wobbly]

well.. alot of us here have gotten that Dx, some were correct...which I hope the Dr can help.. some went to a specialist... or psyciatrist and found out it wasn't that Dx... I hope you can get some help to find out the answers... Answers are what we all need to get our lives back to normal abit at least..

take care and let us know how things go..
wobbly
undx

[jensequitur]

That's too bad - that tends to be the grab-bag diagnosis when they can't find what's wrong with you.  Whether you have somatoform disorder or not!

I think your next step is to ask for a VEP or visual evoked potential, to check whether there's some damage of the optic nerve of the eye.  If it's somatoform disorder, the test will show a perfectly functioning eye.