The strangest of my head sensations though is feeling like my glasses are on my face. I wear reading glasses and have found myself trying to take them off when they actually weren't on my face. I am so convinced they are they i will reach up multiple times in a row to remove them.
With halloween coming up and all this creepy crawly discussion, perhaps we should start a post with all the spooky things that we experience! We could have some fun comparing our personal poltergeists and hauntings!
L
I haven't had this in a while, maybe 4 months, but I used to get something like this. I would feel like a band was around my head, from temple to temple. Much like a woman's head band.
Not connected but I would have headaches that would come and go all day. I am not sure headaches is the right descriptive word. I would feel the pain begin and then it would build to a crescendo then ease. The process could take minutes to hours. it happened everyday, several times a day.
I don't know why I don't have them anymore. I don't want to have them again. Maybe one of the medications I take has given me relief. Who knows.
Have a great Sunday, terry
I would love to isolate all this and deal with one disease process at a time - Maybe MS can have MWF and the heart can have Tuesday and Thursday. That leaves Saturday for middle age processes and maybe I can claim Sunday as a day of rest? :-)
The head pain is so unusual it is really helpful to read your comments. I will be able to better formulate a description for my doctor.
The ice man visits sometimes too and takes that pick to my brain and my right ear.
Fortunately, none of this discomfort lasts long and is fleeting. That's part of why I haven't brought it to my doctor's attention yet.
And yes, I have been thinking its all in my head that when I think often times it hurts. Perhaps its a real symptom too ... it really is in my head. LOL
This gives me lots to think about!
Lulu
Recently, I was diagnosed with Trigeminal Neuralgia. I was told that it often comes with MS. For years I have had eye pain, stabbing pain that lasts a few seconds, in my right eye and pain and pressure in my head. It feels like my head is in a 'stocking cap' alright. I went to a rheumatologist who told me that I have Poly Myalgia Rheumatica, and was tested for Temporal Lobe Arteritis. That test came back negative, and I'm being treated with Elavil for the Trigeminal Neuralgia. My doc said that it was a old antidepressent that seemed to work better for Trigemial Neuralgia than for depression.
My sed rate had been up to 129, which all my docs were worried about. Have any of you had yours checked lately? As I was reading all these posts I was wondering if any of you have been checked out by a Rheumatologist.
I certainly can relate to the headache that comes when I think too much and other symptoms in the head that you all spoke about.
With so many drugs in me right now, and 4 inflammatory diseases living in my body, it's really hard to know what symptom or drug is causing what. I am beginning to feel a bit better in my head, so something is working at any rate. Hugs to all of you, Charley
I get all of that and then some. The "ice pick" headaches as I call them I was told were simply "the nerves letting you know that they are there." It's horribly painful and can stop you dead in your tracks, put thankfully doesn't last long, at least not for me. I also get the creepy crawlies on my scalp but thankfully haven't for a while.
With all the symptoms I seem to share with many of you - I should say WE limbolanders - why are we still in dark? I feel like I'm saying "I have that..." constantly. At least it reassures me that I'm not a complete nut job!
O.k. this is what happens to me sometimes my head hurts when I think. I heard a neurologist say as you have more damage with MS you use more of your brain to perform the same tasks and that it can hurt to think. I get the flesh crawling thing to and shock and numbness in my scalp.
It will be cool when Science can give us some answers.
Alex