There are medications for nerve pain and for muscle spasms. I take both. There is no one size fits all. My MS Specialist sent me to a pain clinic which has helped. It took awhile to get the right combination.
Alex
Thanks all, Gp has prescribed me Lyrica, and of course I have done the 'google' research, bit weary as to weather to start taking them...as I said, some days I feel I can cope with the pain, others I am in tears with it. Am not on any medication fir ms yet, just had the blood test, eye test at hospital on Friday, then back to neurologist in 3ish weeks to see what he recommends for medication
Will be interesting to hear if you find anything out, my Gp has prescribed Lyrica, but not sure weather to start taking or not, after reading peoples reviews on them...
Welcome!
I am having the same problem with my feet right know that you are talking about. I am on Gabapentin for this and the MS Hug. It has been 2 month and nothing is helping for either the MS Hug or the feet pain. Have gone to my GP and had xray done of the right foot (this foot is the worst).
GP was worried of unknown trauma to my feet as I have numbness in both feet on and off. Only found a "shadow spot" as they called it. Was thinking of hair line fracture. GP wants to wait 2 more weeks then do another xray. I am not waiting....
I have an appointment tomorrow with a orthopedic doc that I have been to in the past. Tired of waiting and want answers. I know it is very possible that it is just the nerve pain and that my neuro just needs to try something different but I want everything ruled out before I go back to my neuro.
Will let you know how tomorrow goes.
I have similar foot issues. I have purchased really comfortable shoes to wear around the house and find that helps a ton. As for the nighttime throbbing, I have no suggestions but deal with that, too.
Gabapentin can help, but I don't like being on it. I have also noticed it is way worse with the heat -- summertime is a challenge.
Sorry for all you have been through. Let us know if you try something that works for this. I know how disruptive it is to every day life.
Cheryl
Hi and welcome to our little MS community,
I'm sorry it took so long for you to be diagnosed, unfortunately that does still happen more than i'd like to think about....
I would suggest you contact your neurologist, there are various types of treatment options for nerve pain, it could take some trial and error combinations before you find what works best for you but your neurologist or a pain clinic would be who you need to see to help you work out the right treatment for you.
Usually with RRMS, in the beginning your symptoms will return during a relapse and remit again, some symptoms over time will at some stage become your everyday, but it's impossible to say which symptom will or how long that could take. Disease Modifying Drugs help slow down or reduce the rate of relapses, which over time helps to reduce the amount of damage new relapses cause but DMD's do not help alter preexisting.
Pseudo relapses are normal with MS, not a true relapse as such but it can feel like it and it could be the explanation behind why your feet fluctuate from not so bad to #BAD. Pseudo's are usually caused by fatigue, activity levels, exposure to heat or infection, any of these can cause your unique combination of symptoms to return or worsen, until you have rested and or cooled down enough. Keep in mind though, it can take days to get back to your everyday depending on how much you did and or how long you were exposed to too much heat. Finding your tipping point, so you can keep doing what you need without bringing on a pseudo is very important in managing your MS but it is totally unique to you...
PPMS is different, there is a gradual increase or worsening of symptoms without any remittance but i'm assuming you've been diagnosed with the most common type (80%) of RRMS.
Hope that helps....JJ