Cog. Issue, help

[Jenn0030]

It has been a long time since I have posted here...

I am still not dx with anything, quick summary for anyone.  
I have had bilateral ON.  
LP was neg for O's , but elevated protein.  
I had started about 2 years prior with fever of FUO that lasted about 2 months.
Numbness and tingling for a couple years, that could be from my current medication
Myoclonous that started rather abruptly about 1 year ago.
Oh yeah, I had a heart attack at 28 (it was from a clot I am factor V leiden)
I have been on the same seizen medication for the last 7 years
I was given the cold shoulder by 1st my neuro, she would only sch me with her nurse practioner, (who was wonderful) I had sen her for 6+ years for my epilepsy when this all started.  So after urging from this forum I went for a second opinion at the Clevenland Clinc, I had a wonderful MD and got a great referall to a local MD.
CC thinks that it MAY be devics (NMO) local doc wants to hold off doesn't think that it is NMO or MS, I have a follow up on Thursday.

My concern is that my cog issues are really getting bad.  I can deal with the myoclonus and the numbness, It is not any worse than it was 4 months ago.  I can not tolerate some of the cog issues.  I am only 32, when I type I have to try and read (yes I say try because sometimes I know that I won't read each line).  I repeat words multiple times, kinda like I am stuttering when I am typing.  I will actually type small notes because I know that I can spell check with the computer, (I can't spell check a post-it)

Help  Jenn

[sllowe]

Hey welcome back, Jenn.

Just trying to get this straight.  You go tomorrow to the Dr? This is a follow-up w/the MD who does not think it's MS or Devics?

And, you had a good visit at CC, but no dx? Is this right? I'm sorry for all the questions knowing you are having a hard time reading and typing. But just want to help you out.

I'm definitely forgetting some of your history Jenn, and I'm sorry.  You do know that having ON in the past greatly increases your risk of of developing MS w/in the next decade or so.

Hoping more will chime in here soon for you.

We're here for you,
Shelly

[jensequitur]

Since you're currently undiagnosed, it's difficult to say where your cognitive issues originate.  It's caused by damage to the brain itself, but what caused the damage?  Was it a blood clot?  Or was it neuromyelitis optica?  Or was it MS?  

I would definitely tell your MD about your concerns.  I had to fight to get a neuro-psych exam referral from my neuro, but the psychologist found that I have moderate cognitive impairment in a few areas.  I'm taking Aricept to see if it makes any difference, but I'm only on the 2nd pill.