Aa
Concerned but not scared
Hello
I don't post very often , but I have to admit that at least once a week I am reading new posts .
Since about a week , I have been experiencing severe burning pain from my feet up to my knees .
Every movement of my head causes tightening and tingling of my skin all over which comes in waves .
Never had it before to that extend , it happened occasionally and it was not as strong as now .
I cannot touch my belly area without getting the same reactions .
My saddle area seems to be semi numb and after sitting for 10 - 15 I have difficulties to get up and walk .
My L'Hermitte sign is stronger than ever , and seems to like me very much , for it doesn't want to leave me .
I think I have developed heat sensitivity .
I have called my Neuro and talked to his assistant , but she advised me to call my PCP .
I have been Dx about 1.5 ago , than have been told by the same Neuro maybe it's not MS ?
Fortunately for me the Neuro left for Colorado Spring and I have found a new one .
Since than I have developed couple lesions on my spine , one in cervical and one in thoracic .
I also have few in my brain .
I am going to see my new Neuro on May 6 th.
I am very confused in this moment and I don't know how to proceed from here .
Any advise ?
I don't post very often , but I have to admit that at least once a week I am reading new posts .
Since about a week , I have been experiencing severe burning pain from my feet up to my knees .
Every movement of my head causes tightening and tingling of my skin all over which comes in waves .
Never had it before to that extend , it happened occasionally and it was not as strong as now .
I cannot touch my belly area without getting the same reactions .
My saddle area seems to be semi numb and after sitting for 10 - 15 I have difficulties to get up and walk .
My L'Hermitte sign is stronger than ever , and seems to like me very much , for it doesn't want to leave me .
I think I have developed heat sensitivity .
I have called my Neuro and talked to his assistant , but she advised me to call my PCP .
I have been Dx about 1.5 ago , than have been told by the same Neuro maybe it's not MS ?
Fortunately for me the Neuro left for Colorado Spring and I have found a new one .
Since than I have developed couple lesions on my spine , one in cervical and one in thoracic .
I also have few in my brain .
I am going to see my new Neuro on May 6 th.
I am very confused in this moment and I don't know how to proceed from here .
Any advise ?
Benign MS - phoowee!
Ok, so from what you mention it appears that there may be lesions in the spine now too.
Stick with us, and we can help you out with knowing more about MS symptoms. In the meantime I hope we can make you feel better by getting you read for that appt.
In the health pages there are timelines - check them out and see if you can put your info to something similiar. And you can bring this to the Dr. with you.
If it's MS, you could be in a flare with the increase of symptoms. Definitely jot this down for the Dr (approx date when it started)
ttys,
shell
Ok, so from what you mention it appears that there may be lesions in the spine now too.
Stick with us, and we can help you out with knowing more about MS symptoms. In the meantime I hope we can make you feel better by getting you read for that appt.
In the health pages there are timelines - check them out and see if you can put your info to something similiar. And you can bring this to the Dr. with you.
If it's MS, you could be in a flare with the increase of symptoms. Definitely jot this down for the Dr (approx date when it started)
ttys,
shell
Thank you for answering my post .
Please don't feel bad about asking question .
I have seen my current Neuro just once , past November . At that time my May 6 th appointment has been scheduled.
My first Neuro left Phoenix last August ( 2008) , and at that time I have not had any spinal lesions , so he was kind of conservative in his approach , although he told me that since we excluded pretty much everything else , MS is most likely
the responsible cause of my problems . But he also told me that he thinks that
this is benign MS , for I have not had visible attack of MS within 1.5 year ( under his care ).
This may be right , since I hate doctor visits .
Now I am kind of scare , because I have these symptoms and they are getting
more annoying , to say the least .
Hope this make sense .
I also hesitate to go to ER ,for they are probably full of swine flue .
I don't run any fever , but my tingling is spreading already above my knees .
Thank you all for your input .
Vanda
Please don't feel bad about asking question .
I have seen my current Neuro just once , past November . At that time my May 6 th appointment has been scheduled.
My first Neuro left Phoenix last August ( 2008) , and at that time I have not had any spinal lesions , so he was kind of conservative in his approach , although he told me that since we excluded pretty much everything else , MS is most likely
the responsible cause of my problems . But he also told me that he thinks that
this is benign MS , for I have not had visible attack of MS within 1.5 year ( under his care ).
This may be right , since I hate doctor visits .
Now I am kind of scare , because I have these symptoms and they are getting
more annoying , to say the least .
Hope this make sense .
I also hesitate to go to ER ,for they are probably full of swine flue .
I don't run any fever , but my tingling is spreading already above my knees .
Thank you all for your input .
Vanda
Hi Vanda,
I have seen you around a bit, but I've not said hello. Hello Vanda and welcome!
I'm so glad to read that you will see your neuro early May. I'm sorry you are experiencing this, but a big "YES" is in order where you ask if you are making sense. There could be other causes of some of these symptoms, but lesions are the culprit where MS is concerned.
Did the Dr. discuss a diagnosis of MS with you when you got that big workup? Or, mention anything about the lesions see in Nov? Or, is this just now your follow up in May? I'm so sorry to ask so many questions. Just want to get the feel for where you are and be able to help you get ready for that appt.
You will learn a lot here about MS and I hope it help to take you to the next step. If it's MS, then the Dr. should be discussing treatment with you.
I have seen you around a bit, but I've not said hello. Hello Vanda and welcome!
I'm so glad to read that you will see your neuro early May. I'm sorry you are experiencing this, but a big "YES" is in order where you ask if you are making sense. There could be other causes of some of these symptoms, but lesions are the culprit where MS is concerned.
Did the Dr. discuss a diagnosis of MS with you when you got that big workup? Or, mention anything about the lesions see in Nov? Or, is this just now your follow up in May? I'm so sorry to ask so many questions. Just want to get the feel for where you are and be able to help you get ready for that appt.
You will learn a lot here about MS and I hope it help to take you to the next step. If it's MS, then the Dr. should be discussing treatment with you.
Ladies , thank you very much for your answer .
I am as confused as one can be . I will try very briefly describe my journey with MS ?
In Oct. 2006 severe Vertigo ( had few of them within last 14years ), but this one was the longest and the most debilitating .
My PCP scheduled MRI of my brain . This is when MS come to the picture . I have never knew much about any medical condition .
After that I have had visit with MS specialist , who run all the test including Lyme western blot ( don't know about spelling )and viral infections which all came back negative , but my MRI showed few lesions one in corpus callosum and three of four in cerebrum . I have Nystagmus .
My newest MRI from last Nov. shows suspicious lesions one in cervical another in thoracic .
Arterial Doppler test didn't show any changes so was nerve conduction study .
I am 51 year female , my medical record back 15 years shows complains about
sunburn sensations , balance problem , heavy legs at times , fatigue and few other things . All of them at time when I couldn't even pronounce Multiple Sclerosis .
Since 10 day I cannot scratch the area of my spine without my body going into a waives of goosebumps and tightning of skin .
I don't know if all of this make any sense one way or the other .
Just to add to all of this I have permanent numbness of my big toe , two small toes don't respond well , they stick out of line and there is big space in between them when I walk .
I also have constant numbness in the right groin area and .
Yes , I anxiously await my second visit with my current Neuro .
Hope to find definite answer to my questions .
My sincere opinion about all of this is that I do have MS , I have it for long time .
Everything else was excluded step by step .
Thank you all for taking your time to respond to my post .
Vanda
I am as confused as one can be . I will try very briefly describe my journey with MS ?
In Oct. 2006 severe Vertigo ( had few of them within last 14years ), but this one was the longest and the most debilitating .
My PCP scheduled MRI of my brain . This is when MS come to the picture . I have never knew much about any medical condition .
After that I have had visit with MS specialist , who run all the test including Lyme western blot ( don't know about spelling )and viral infections which all came back negative , but my MRI showed few lesions one in corpus callosum and three of four in cerebrum . I have Nystagmus .
My newest MRI from last Nov. shows suspicious lesions one in cervical another in thoracic .
Arterial Doppler test didn't show any changes so was nerve conduction study .
I am 51 year female , my medical record back 15 years shows complains about
sunburn sensations , balance problem , heavy legs at times , fatigue and few other things . All of them at time when I couldn't even pronounce Multiple Sclerosis .
Since 10 day I cannot scratch the area of my spine without my body going into a waives of goosebumps and tightning of skin .
I don't know if all of this make any sense one way or the other .
Just to add to all of this I have permanent numbness of my big toe , two small toes don't respond well , they stick out of line and there is big space in between them when I walk .
I also have constant numbness in the right groin area and .
Yes , I anxiously await my second visit with my current Neuro .
Hope to find definite answer to my questions .
My sincere opinion about all of this is that I do have MS , I have it for long time .
Everything else was excluded step by step .
Thank you all for taking your time to respond to my post .
Vanda
Hi,
Sorry don't know the whole story, obviously, but picked up on the burning pain in legs. Any actual change in temperature when you touch them? any change in colour? Wonder if it worth having a vascular assessment?
Unsure from your post whether you are diagnosed with MS and that is now in doubt or still undxd. Lesions on spine or even brain are not necessarily MS but of course it needs to be checked against symptoms etc. There are better experts than me here!
Saddle anaesthesia is common after sitting for a while, hence the name, but if it persists needs to be very urgently looked into to check the cauda equina nerves at the base of your spine are not being compressed, If the sensation comes back on moving, you're probably okay. If it doesn't, this is something to take immediately to the hospital. But it sounds like you are getting sensation back, so maybe it is more to do with how you are sitting?
Re the skin pain, this may be neuropathic, you may benefit from a long term nerve calming medication, they types many take here, such as Gapabentin or Amptryptiline, spelt wrong no doubt. Sorry am rushing, need to post myself quickly and go. Hope you get answers and feel much better soon
wish
Sorry don't know the whole story, obviously, but picked up on the burning pain in legs. Any actual change in temperature when you touch them? any change in colour? Wonder if it worth having a vascular assessment?
Unsure from your post whether you are diagnosed with MS and that is now in doubt or still undxd. Lesions on spine or even brain are not necessarily MS but of course it needs to be checked against symptoms etc. There are better experts than me here!
Saddle anaesthesia is common after sitting for a while, hence the name, but if it persists needs to be very urgently looked into to check the cauda equina nerves at the base of your spine are not being compressed, If the sensation comes back on moving, you're probably okay. If it doesn't, this is something to take immediately to the hospital. But it sounds like you are getting sensation back, so maybe it is more to do with how you are sitting?
Re the skin pain, this may be neuropathic, you may benefit from a long term nerve calming medication, they types many take here, such as Gapabentin or Amptryptiline, spelt wrong no doubt. Sorry am rushing, need to post myself quickly and go. Hope you get answers and feel much better soon
wish
Hello, Reading your questions about symptoms really makes me wish that we had a check list of MS items to compare - everyone has so many different symptoms I am beginning to believe that there are 1,000's !
What did your PCP have to say? Fortunately May 6th is not that far off but it would be nice if you could find some answers and relief before then.
I'm sorry I have no real advice, just want to let you know that someone here at least read your questions.
stay in touch,
Lulu
What did your PCP have to say? Fortunately May 6th is not that far off but it would be nice if you could find some answers and relief before then.
I'm sorry I have no real advice, just want to let you know that someone here at least read your questions.
stay in touch,
Lulu
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