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Could be doing better....
Hi everyone...I could be doing better but I probably could be worse...We got moved in o.k. and we like our new place...After I moved in downstairs I realized that stairs are not going to work for me...So I need to move back on the main floor to get away from stairs...
I have been missing too much work...My legs are giving me problems...My doc told me I am losing muscle in my right leg...The doc realizes the importance of work, but recommends for me to go to part time work...I need to cut my hours back so I can stop being on them for so long...My work has no problem with this and told me that I should have cut my hours a lot sooner...So I made the decision to work 6 hour days...This allows me to still qualify for medical insurance...The doc wants mr's every 3 months to monitor progression...I haven't seen his colleague yet but I am sure it will be soon...
Hannah and I reached a crisis last week...My right leg tightened up so badly that I couldn't bend it...I was trapped downstairs...I have my doc's cell phone number and he prescribed xanex and oxy's to help out...That knocked me out...When I was asleep, Hannah went to the local ms society for help...She got some info but everything I read cannot possibly help my situation...I am reluctant to pursue anything any further...I think she needs a support group more than myself...
I still haven't recovered my vision in my left eye...It has been over 6 months when I developed ON...That should have repaired itself by now and I am guessing that damage is permanent...That is disheartening but I have adapted...
I am thinking about selling my fishing boat...I haven't used it enough to justify having it...I want to fish but it is too much effort to go out and use it...I feel the money can go in a savings account to help me with bills when I become unemployed...
MB
I have been missing too much work...My legs are giving me problems...My doc told me I am losing muscle in my right leg...The doc realizes the importance of work, but recommends for me to go to part time work...I need to cut my hours back so I can stop being on them for so long...My work has no problem with this and told me that I should have cut my hours a lot sooner...So I made the decision to work 6 hour days...This allows me to still qualify for medical insurance...The doc wants mr's every 3 months to monitor progression...I haven't seen his colleague yet but I am sure it will be soon...
Hannah and I reached a crisis last week...My right leg tightened up so badly that I couldn't bend it...I was trapped downstairs...I have my doc's cell phone number and he prescribed xanex and oxy's to help out...That knocked me out...When I was asleep, Hannah went to the local ms society for help...She got some info but everything I read cannot possibly help my situation...I am reluctant to pursue anything any further...I think she needs a support group more than myself...
I still haven't recovered my vision in my left eye...It has been over 6 months when I developed ON...That should have repaired itself by now and I am guessing that damage is permanent...That is disheartening but I have adapted...
I am thinking about selling my fishing boat...I haven't used it enough to justify having it...I want to fish but it is too much effort to go out and use it...I feel the money can go in a savings account to help me with bills when I become unemployed...
MB
Cut my hours a couple years ago im a hair dresser standing kicks my butt sometimes. Last year worked two jobs. Wish I had time and energy to still work two jobs. No insurance no meds no docs. Have had chronic pain in left leg for a year. Keep your chin up everyone . I meet people worse off when im getting low.
It sounds like your friend/general manager has your best interests at heart. He sounds like a good man/friend. You are very fortunate in that aspect.
It's nice that you have everything on one level of your home.
I'm having more difficulties at work, too. Mine are primarily cognitive. It takes me longer to do things and I just feel scatter-brained if I have more than one thing to focus on at one time. And it's harder for me to "get/figure out" some of our new processes. They want us to write down 3 goals for the upcoming year for our review. I want to say - that they're lucky I can even do my current job without even thinking about adding more to it.
-Kelly
It's nice that you have everything on one level of your home.
I'm having more difficulties at work, too. Mine are primarily cognitive. It takes me longer to do things and I just feel scatter-brained if I have more than one thing to focus on at one time. And it's harder for me to "get/figure out" some of our new processes. They want us to write down 3 goals for the upcoming year for our review. I want to say - that they're lucky I can even do my current job without even thinking about adding more to it.
-Kelly
Lulu-
I don't want to cut my hours, but it is not a lot...Many people at work, including the general manager (who is a good friend) has asked for me to look at cutting my work back...Both of my doctors have asked me to cut my work back...They don't want me quit work, but they recommend not to keep working full time...
It's not the physical problems as much as my thinking problems that are getting the best of me...For one, my speech is so terrible that most of the time people don't understand what I'm saying....It's much easier to type here than it is to speak...I was the one that wanted to keep pushing because I'm in denial....Even now...I felt that if I push hard, I can win...My attention, memory and decision making skills are not doing the company any good...
The owner of the company is family to me...I fish with him and his boys almost every time I go fishing...He wants me to slow down too...But when I told him I was thinking about selling the boat, he started to tear up really bad, which in turn made me start to tear up pretty bad too...He told me to wait on selling the boat....
The thing is, I haven't had any moments of feeling "better"...The leg problem is just another symptom that has arrived that isn't going away...Like I said before, the speech, thinking and vision are my worse symptoms and they aren't getting better, but worse...Those symptoms that are not physical are the ones that are effecting Hannah and the people at work...
MB
I don't want to cut my hours, but it is not a lot...Many people at work, including the general manager (who is a good friend) has asked for me to look at cutting my work back...Both of my doctors have asked me to cut my work back...They don't want me quit work, but they recommend not to keep working full time...
It's not the physical problems as much as my thinking problems that are getting the best of me...For one, my speech is so terrible that most of the time people don't understand what I'm saying....It's much easier to type here than it is to speak...I was the one that wanted to keep pushing because I'm in denial....Even now...I felt that if I push hard, I can win...My attention, memory and decision making skills are not doing the company any good...
The owner of the company is family to me...I fish with him and his boys almost every time I go fishing...He wants me to slow down too...But when I told him I was thinking about selling the boat, he started to tear up really bad, which in turn made me start to tear up pretty bad too...He told me to wait on selling the boat....
The thing is, I haven't had any moments of feeling "better"...The leg problem is just another symptom that has arrived that isn't going away...Like I said before, the speech, thinking and vision are my worse symptoms and they aren't getting better, but worse...Those symptoms that are not physical are the ones that are effecting Hannah and the people at work...
MB
Hi MB- this sure is a mixed message you have posted. There's a bunch of good mixed in with the bad.
Working fewer hours is a great choice, at least for now. The crazy thing about this disease is a few months from now you could be back to a relatively normal health spot. I'm so glad the employer is flexible and keeping you on the insurance too, that is huge!
Good for Hannah to be proactive. She sounds like an old-soul in a young body. Gathering information is important - the more you know, the more empowered you are in this battle. It may not seem relevant to your particular situation at the time, but it broadening your knowledge base for later.
There are support groups for family members and maybe Hannah would do well with one. But don't overlook the possiblity that it would also help you. Connecting with others, such as we do here, is good for the spirits.
Good neighbors are hard to come by these days and it sounds like you have a real winner. Congrats on moving to a gret neighborhood. Hanging out with non-MSers helps us put this disease on the back burner for a while and just be in the present moment.
Fishing? You don't have to give it up just because you don't have a boat. My favorite part of fishing is sitting by the water, losing myself in the rhythm of the waves, and not catching a thing. If I catch something, then I have to work! LOL
Don't make a quick decision about selling the boat - you will knowwhen and if the time is right.
-L
Working fewer hours is a great choice, at least for now. The crazy thing about this disease is a few months from now you could be back to a relatively normal health spot. I'm so glad the employer is flexible and keeping you on the insurance too, that is huge!
Good for Hannah to be proactive. She sounds like an old-soul in a young body. Gathering information is important - the more you know, the more empowered you are in this battle. It may not seem relevant to your particular situation at the time, but it broadening your knowledge base for later.
There are support groups for family members and maybe Hannah would do well with one. But don't overlook the possiblity that it would also help you. Connecting with others, such as we do here, is good for the spirits.
Good neighbors are hard to come by these days and it sounds like you have a real winner. Congrats on moving to a gret neighborhood. Hanging out with non-MSers helps us put this disease on the back burner for a while and just be in the present moment.
Fishing? You don't have to give it up just because you don't have a boat. My favorite part of fishing is sitting by the water, losing myself in the rhythm of the waves, and not catching a thing. If I catch something, then I have to work! LOL
Don't make a quick decision about selling the boat - you will knowwhen and if the time is right.
-L
Shell- I don't want to sell the boat, it is just that I don't want to wait till the eleventh hour in case something doesn't quite go right...I want to have something to fall back on...It's not much, but better than nothing...For me, fishing is my spirituality...If I lose that, I lose a big part of myself...
As for work, I feel that working like I have is causing me to miss more work....That is, if I turn it down a notch, I might not feel so terrible the next day or so...
Kelly- Hannah is my youngest daughter...She's so young that she has a difficult time controlling her emotions at times...She needs someone or something to help her through the difficult times ...
The main floor has everything I need as well as the downstairs does...Actually the main level has the kitchen so there is more on the main level...Both floors have a full bathroom each...
I have excellent neighbors!...When I purchased a washer and dryer, the neighbor and his son moved them in for me...They are such outstanding people...Hannah and her big mouth asked them for help...They didn't hesitate...I was moved by how they just jumped right in to help us out...Last Sunday he invited me to his house and watch football...It was good to get out and visit with new friends...
MB
As for work, I feel that working like I have is causing me to miss more work....That is, if I turn it down a notch, I might not feel so terrible the next day or so...
Kelly- Hannah is my youngest daughter...She's so young that she has a difficult time controlling her emotions at times...She needs someone or something to help her through the difficult times ...
The main floor has everything I need as well as the downstairs does...Actually the main level has the kitchen so there is more on the main level...Both floors have a full bathroom each...
I have excellent neighbors!...When I purchased a washer and dryer, the neighbor and his son moved them in for me...They are such outstanding people...Hannah and her big mouth asked them for help...They didn't hesitate...I was moved by how they just jumped right in to help us out...Last Sunday he invited me to his house and watch football...It was good to get out and visit with new friends...
MB
Do you have all that you need on the main level of your new place - ie place to sleep, kitchen, bathroom, etc? (I wish our current house was set-up like that, but it's not) I'm glad that your company is working with you. That's always good news.
Is Hannah your daughter? I remember you had said before that you were moving with your daughter. It's good that she's reaching out for info about MS.
-Kelly
Is Hannah your daughter? I remember you had said before that you were moving with your daughter. It's good that she's reaching out for info about MS.
-Kelly
MB,
Your doing the right thing :( I very much hope less hours give you more quality time in your life.
If you sell the boat - just don't give up on fishing altogether. Have to strive to do those things you love in some manner so you can feel like you!
Wishing you a pleasant weekend buddy. Do what you can, when you can :)
-Shell
Your doing the right thing :( I very much hope less hours give you more quality time in your life.
If you sell the boat - just don't give up on fishing altogether. Have to strive to do those things you love in some manner so you can feel like you!
Wishing you a pleasant weekend buddy. Do what you can, when you can :)
-Shell
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