DMD Article

[Ojibajo]

Well I guess I can use the $3100/month for something else. This is a depressing finding.


http://www.medicinenet.com/script/main/art.asp?articlekey=160383

[Mike_Shuswap]

I think the study shows that although the DMD's may not reduce or delay disability, they do reduce the frequency and severity of relapses. This seems to point to the possibility that it's not the relapses themselves that cause disability, but some other underlying factors.

In any case, even before this study was published, if I had to pay out of pocket for my DMD I would not be taking it. I simply could not afford it.

However, I don't have to pay out of pocket, so I will continue taking Rebif in the hopes that it's reducing my relapses, as my neuro and I believe it is.

Mike

[Ojibajo]

Didn't the study find that DMDs don't reduce or delay disability?

I would have to pay out of pocket right now because I haven't met my deductible. So I just quit taking it. I'm so sick of taking it anyway. I really can't handle injecting myself anymore. I know that it sounds crazy but I sort of feel like I am poisoning myself.

[HVAC]

These drugs are expensive. My chemo is $50,000 and infusion multiplied by six. But with the MS drugs and chemo I think of how much money the drugs save me. If we did not have the MS drugs there would be more disability. Disability is way more expensive. Wheel chairs, vans, converting the house, nursing care, hospitalizations, nursing homes, etc. I can't afford any of that if it comes to it.

Pharmaceuticals often save people money in the long run by lessening the time we spend in hospitals. This is over looked in the equation.

Alex

[Lulu54]

Sounds bleak, right? But the headlines are a bit different than the whole Tory.  We chatted about this some yesterday and I'll bump that thread.  Dont despair until
you know the entire story.  You aren't paying that out of pocket, as you? If so we need to gt you on a copay assistance plan.