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198419 tn?1360242356

DMD Users: Past & Present - Copaxone, Rebif, Avonex, Betaseron, Tysabri, (other)

Hi all,

Would like to have a quick "go-to" thread of our DMD users similiar to our dx and undx'd threads. Please post here: name, dx'd and DMD (include past, multiple, present).
I'll start:

sllowe
DX'd:  2007
DMD: Rebif (current)
122 Responses
Sort by: Helpful Oldest Newest
645390 tn?1338555377


Michelle
DX'd:  April 10, 2009
DMD: Copaxone
Helpful - 0
1230912 tn?1273492770

MeLissa
Dx'd: March 4th, 2010
DMD: Extavia (Betaseron)
Helpful - 0
1045086 tn?1332126422
twopack / Mary
DX'd:  October 27, 2009
DMD: Copaxone
Helpful - 0
Avatar universal
ess
dx 1/08
dmd  copax 2 mos, allergic, since then Avonex
Helpful - 0
211940 tn?1267881266



Socrates (Stan)
DX'd: December 22nd, 2009
DMD: Rebif (began January 14th, 2010) - current
Helpful - 0
Avatar universal
Mand
Dx: 1994
DMD: Betaseron
Helpful - 0
Avatar universal
truelove47
DX'D   1986
DMD    Avonex
Helpful - 0
Avatar universal
MostlyShell
Dx'd   2007
DMD  Betaseron - 1 year
         Copaxone - current
Helpful - 0
1126418 tn?1326165992

DX'd: February 15th, 2010

DMD: Copaxone (haven't started it yet tho)
Helpful - 0
338416 tn?1420045702
Dx'd: August 2007
DMD: Copaxone - I was on it for a year and a half, then my insurance changed and now I can't afford it. :-(
Helpful - 0
429700 tn?1308007823
Dx'd:  February 2008
DMD:  Copaxone
Helpful - 0
1040373 tn?1273687488
Katie
Diagnosed 9/14/09
DMD Copaxone
Helpful - 0
1128488 tn?1265053382
dx'd   November 1994
Dmd's  Copaxone, Avonex, Tysabri, HyCy,
Helpful - 0
738075 tn?1330575844
Guitar_grrrl: dx 5/09. DMD Rebif 4 mos. Allergic!  Currently on Tysabri.
Helpful - 0
1149087 tn?1415316549
dxd February 2010

DMDs:
tried Avonex (1x 1/2 dose, depressive side effects)
now on Rebif (44 microgram, ongoing)
Helpful - 0
634733 tn?1316625992
Dxd possible 2004

Dxd probable 2008

Dxd definite 2009

DMD - none - but that's the UK NHS
Helpful - 0
755322 tn?1330269114
Dxd Jan/Feb 09
DMD
Copaxone (allergic)
IVIG (current)
Helpful - 0
233622 tn?1279334905
Dx'd Feb 2008
Avonex for one year.  Lots of side effects and just could not do the IM anymore PAINFUL for me.

Betaseron for 6 months.  Sub-Q Much smaller needle no pain and fewer side effects for me.
But site reactions were pretty rough.

Lee Ann
Helpful - 0
1221035 tn?1301000508
Diagnosed: Jan 20,2010
Low Dose Naltrexone
Helpful - 0
294425 tn?1288528395
Rita
Diagnosed: Feb. 2008
DMD:  Rebif from April 2008 - Sept. 2008
          Tysabri since Oct. 2008 (just had #18!)
Helpful - 0
Avatar universal
Dxd:   01/2009             by VA as "unspecified demyelinating disease of cns"
          09/14/2009 rrms by non-va neuro
          10/27/2009 rrms by non-va neuro

DMD: copaxone via VA Feb 2010
Helpful - 0
1105540 tn?1279187117
Dxd: 08/08

DMD: Capaxone 6 months bad site reaction

DMD: Tysabri as of 12/3/10 not started it yet but its on its way (UK NHS)
Helpful - 0
1181494 tn?1264381915
Dxd:11/09 DMD: Copaxone daily and IVIg every other week for 3 days
Helpful - 0
739070 tn?1338603402
Ren
Dx'd : 4/13/09
DMD: Copaxone
Helpful - 0
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