New kid on the block!

[Loony180]

So, I never thought I would be on such a site but just wondered general thoughts on my current situation.  I have been suffering with 'weird' vision since last June (09) accompanied with dizziness, nausea, headaches and extreme fatigue.  Three GP's all say depression and prescribed anti-depressants.  I didn't take any of them.  At Xmas, I was struck with sudden agonising back pain which took me to a Consultant  - who did a few neuro tests and said he wanted to send me for an MRI - brain and full spine as needed to eliminate MS.  Pain lasted around 7 days and has now left me with stiffness and in my neck, but no pain as such.  Scans came back OK but I asked GP to refer me to a neurologist as have been now experiencing numbness and tingling in hands and feet.  My hands feel 'charged' all day long as particulary at night and my little finger tip feels numb, along with my big toe.  Hands and feet are absolutely freezing all the time.  Neurologist said thinks have Labyrinthitis, but surely I wouldn't have all the other neurological symptoms if that was the case?  Feel like my friends are giving up on me, as they say, if the scans are clear and they say you're OK, then just accept it, but I'm finding it hard, when it has been constant for 9 mths or so now.  Would appreciate anyone's thoughts/experiences or even just to tell me to shut up and go away and get on with things (easier said than done LOL!).  

[sllowe]

Hi there, not-so-Loony!

Welcome! Tell is what the neuro said, what tests were ordered besides the MRIs and what strength machine were they on? Do you have copies?

Don't worry about those friends not understanding (though they should care at least if good friends), we're here for you and hope to be able to help you out with next steps.

Support is a given here - glad you found us.
-Shell

[JenEpicFarms]

Hi Loony, (and hi to you too Ack!) I've only been here a day or two, so I'm not exactly a fountain of information, I'm just friendly :o)

Neurological issues seem to be a much slower process than most other diagnoses; and it seems like a lot of the folks on here had to wait an awfully long time for answers. I'm still waiting (it's been a little over a year for me with snowballing symptoms) and I will be headed to Mayo in a few weeks, hopefully for some answers.

I can only add my encouragement to Acks - don't give up!

[ack65]

Hi there,

I'm new here too.  Welcome to the club.  Similar issues and an inconclusive MRI has my doctor saying its stress and depression.  My husband thinks I am invested in having MS and I am making it worse by being on this site but I tell you it is the only thing keeping me going right now.  I have been going through this for 4 years and I think I know when something isn't right with my body!  You are not looney.  Don't give up the fight.  I was ready to throw in the towel but some encouraging words here have helped me regain focus and stay on the search for answers.  And don't go away - there are lots of us here trying to find out what is wrong.  A