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Diagnosis Getting Closer
I'm sorry I have not posted. I'm soooooo fatigued, and my arms feel heavy and weak. And my upper arms and shoulders hurt something fierce.
Saw the G.I. Doc yesterday morning. The liver issue is not the problem, causing my lack of appetite and sudden weight loss. One lesion is the Hemangioma we knew about last summer, but now there is a cyst on the liver, which which he will continue to monitor with Ultra-Sounds. He says I can't have any more CT Scans.
I weighed in at 77#, fully clothed w. shoes. :(
Anyway, we discussed the complete loss of bowel function, the results of my bowel program, he did a few tests, and confirmed that the bowel problem is neurological, and said he would call my Neuro, as it would aid him in the diagnosis of MS. He also prescribed Cytotec to make the intestinal muscles contract.
So, thankfully we are getting closer.
Sheila
Saw the G.I. Doc yesterday morning. The liver issue is not the problem, causing my lack of appetite and sudden weight loss. One lesion is the Hemangioma we knew about last summer, but now there is a cyst on the liver, which which he will continue to monitor with Ultra-Sounds. He says I can't have any more CT Scans.
I weighed in at 77#, fully clothed w. shoes. :(
Anyway, we discussed the complete loss of bowel function, the results of my bowel program, he did a few tests, and confirmed that the bowel problem is neurological, and said he would call my Neuro, as it would aid him in the diagnosis of MS. He also prescribed Cytotec to make the intestinal muscles contract.
So, thankfully we are getting closer.
Sheila
Hi, Sally.
No, the weight is not good, and when my D.O. didn't seem concerned, I immediately made the appt. with my G.I. Doc.
I think between my Neuro & G.I. Doc, things will get figured out now.
We will be back next Thursday evening, and I will write on Friday. Usually when we have gone away, I come home that day and crawl into bed.
Thank you for the prayers, but please don't worry. Worry is not good for any of us.
Hugs,
Sheila
No, the weight is not good, and when my D.O. didn't seem concerned, I immediately made the appt. with my G.I. Doc.
I think between my Neuro & G.I. Doc, things will get figured out now.
We will be back next Thursday evening, and I will write on Friday. Usually when we have gone away, I come home that day and crawl into bed.
Thank you for the prayers, but please don't worry. Worry is not good for any of us.
Hugs,
Sheila
Hi, SL.
I don't know how I missed your post. :(
I promise, a discussion of nutrition is first on the agenda when I see my Neuro. I know, 'it's time'. I know that I will not live much longer, at this weight.
And I know, even though God has taken good care of me, He also expects me to take care of myself.
I am taking nutrition drinks, 'meals in a can', if you will, along on our trip.
And I do know that you say these things with love and support.
I know everyone here has given me only love and support, and I am most grateful.
Love & Hugs,
Sheila
I don't know how I missed your post. :(
I promise, a discussion of nutrition is first on the agenda when I see my Neuro. I know, 'it's time'. I know that I will not live much longer, at this weight.
And I know, even though God has taken good care of me, He also expects me to take care of myself.
I am taking nutrition drinks, 'meals in a can', if you will, along on our trip.
And I do know that you say these things with love and support.
I know everyone here has given me only love and support, and I am most grateful.
Love & Hugs,
Sheila
Gosh, so nice to hear from you. Have been wondering how you are going.
Ok, the weight is really not good, but the fact that your GI and Neuro Dr are working together is great.
Enjoy your time with Rich at the park. Please look after yourself. Praying for you and worrying about you.
When will you be back. Let us know please so that we can expect your message.
Gentle Hugs
Sally
Ok, the weight is really not good, but the fact that your GI and Neuro Dr are working together is great.
Enjoy your time with Rich at the park. Please look after yourself. Praying for you and worrying about you.
When will you be back. Let us know please so that we can expect your message.
Gentle Hugs
Sally
Hi, Chris.
Oh, I think it would take a bit more than a shout to blow me over. LOL
My G.I. Doc called and spoke with my Neuro. They work closely together. I think my G.I. Doc knows there is really nothing we can do about my lack of ability to eat, until my Neuro sees me. It is MS related. I know, because my cousin Erv was the same way. He knows I am doing my best.
He's a very good doctor, actually on the top Gastro Doc list. He has been my doctor for years, and has always been very careful with me.
Rich and I are preparing to go away for a bit, so I'll be in touch when we get back. Just need some quiet time to prepare for what comes next.
Hugs,
Sheila
P.S. I am going to send you a message about U of C. You will laugh!
Oh, I think it would take a bit more than a shout to blow me over. LOL
My G.I. Doc called and spoke with my Neuro. They work closely together. I think my G.I. Doc knows there is really nothing we can do about my lack of ability to eat, until my Neuro sees me. It is MS related. I know, because my cousin Erv was the same way. He knows I am doing my best.
He's a very good doctor, actually on the top Gastro Doc list. He has been my doctor for years, and has always been very careful with me.
Rich and I are preparing to go away for a bit, so I'll be in touch when we get back. Just need some quiet time to prepare for what comes next.
Hugs,
Sheila
P.S. I am going to send you a message about U of C. You will laugh!
Hey girl,
What can I say that has not already been said. I am grateful for your two Doctors working together to get you a dx, and if it is MS, then it will be what it will be
However, I am not an alarmist, only when things get to a breaking point, and Sheila sweety, it's my opinion that a plan for nutrients for your body is in order above ALL else.
Someone who I love dearly helped me to move forward with these two words......."It's time."
It's time, Sheila. It's time for a plan of action. God has taken good care of you thus far and I know this to be true and that you believe it too. He will continue to, but please you petite sweety you, please be sure these Docs are on their toes where your nutrition is #1 on their "to do" list. Disease therapy should come, but may be tagging in at second.
Please know I say these things with love and support. Want you to be well so you can move forward.
xoxo
SL
What can I say that has not already been said. I am grateful for your two Doctors working together to get you a dx, and if it is MS, then it will be what it will be
However, I am not an alarmist, only when things get to a breaking point, and Sheila sweety, it's my opinion that a plan for nutrients for your body is in order above ALL else.
Someone who I love dearly helped me to move forward with these two words......."It's time."
It's time, Sheila. It's time for a plan of action. God has taken good care of you thus far and I know this to be true and that you believe it too. He will continue to, but please you petite sweety you, please be sure these Docs are on their toes where your nutrition is #1 on their "to do" list. Disease therapy should come, but may be tagging in at second.
Please know I say these things with love and support. Want you to be well so you can move forward.
xoxo
SL
Hi, Elaine.
Thank you so much for messaging with me so much yesterday. You are so dear to me. Hope you know it. :)
Right now, I really don't want to be in the hospital. When I see my Neuro, if that's what he wants, I promise, I'll do it. I suspect that will be his first order when he sees me. I think he is going to be stunned at how I have changed since he saw me in November. In November, at 90#s, I looked well nourished. I know that it hard to imagine, but I have very small bones, very tiny frame.
Now, at 75#s, I do look......bad. Still intend to walk on the beach next week, and not care. LOL
Love & Hugs,
Sheila
Thank you so much for messaging with me so much yesterday. You are so dear to me. Hope you know it. :)
Right now, I really don't want to be in the hospital. When I see my Neuro, if that's what he wants, I promise, I'll do it. I suspect that will be his first order when he sees me. I think he is going to be stunned at how I have changed since he saw me in November. In November, at 90#s, I looked well nourished. I know that it hard to imagine, but I have very small bones, very tiny frame.
Now, at 75#s, I do look......bad. Still intend to walk on the beach next week, and not care. LOL
Love & Hugs,
Sheila
Hi, Pat.
Thank you so much for the hugs and prayers!!!!
Sending ((((BIG HUGS)))) right back to you! :)
Sheila
Thank you so much for the hugs and prayers!!!!
Sending ((((BIG HUGS)))) right back to you! :)
Sheila
Hi, Penn.
Yes, it does seem like it's all at once, doesn't it? :)
but it's been coming for 2 & 1/2 years.
Yes, I am one tough cookie. I am a very strong woman, emotionally. I figure I can curl up in a ball, or I can fight. I choose to fight, and fight hard! :)
I also have a deep faith in God.
Thank you fro the prayer to keep me strong. that means a lot to me.
Hugs,
Sheila
Yes, it does seem like it's all at once, doesn't it? :)
but it's been coming for 2 & 1/2 years.
Yes, I am one tough cookie. I am a very strong woman, emotionally. I figure I can curl up in a ball, or I can fight. I choose to fight, and fight hard! :)
I also have a deep faith in God.
Thank you fro the prayer to keep me strong. that means a lot to me.
Hugs,
Sheila
Hi, Momma Bear.
Yes, G.I. Doc saw me naked. Wasn't a big thrill for him. LOL Seriously, no, he was not in a hurry to bump me off to my Neuro, but really believes I need a diagnosis, NOW. Personally called and spoke to my Neuro.
He was very gentle with me, and we sat and talked for a long time, he is in no hurry to get rid of me.
He will be working in conjunction with my Neuro. I have to call my G.I. Doc after I've been on the Cytotec 10 days and I can call at any time, if I need him.
I am 5'2.
I gather that my G.I. Doc does not want any more CT Scans or MRI's due to the cyst on the liver, and he only wants Ultra-Sounds.
Yes, MS is back on the table, and I believe that is the diagnosis that I will get at my appt. July 1st.
Rough time with hubby will be temporary, or he will be temporary. He's usually a good guy, but he's a man, and they all have their moments. He is also 64, and it is starting to show in his thought processes.
Quix, please don't worry. God has it all under control. I believe that with every fiber of my being.
Rich and I are preparing to go away for a while. I felt we both needed some down time, to relax and prepare for what comes next. We have a small travel trailer and we are going to the State park an hour and a half away, just far enough to be away, but not too far from my doctors.
I am going to walk on the beach, and maybe even get my feet wet. :) I even bought a bathing suit. The way I feel, is this is the way I look, and people can deal with it or don't look.
Please don't worry, I will be in touch as soon as we return.
(Maybe I'll leave hubby in the woods. No, not a good idea? LOL)
I know you care about me, and I am more grateful than you could ever possibly know. You are my Momma Bear.
Love & Hugs,
Baby Bear
Yes, G.I. Doc saw me naked. Wasn't a big thrill for him. LOL Seriously, no, he was not in a hurry to bump me off to my Neuro, but really believes I need a diagnosis, NOW. Personally called and spoke to my Neuro.
He was very gentle with me, and we sat and talked for a long time, he is in no hurry to get rid of me.
He will be working in conjunction with my Neuro. I have to call my G.I. Doc after I've been on the Cytotec 10 days and I can call at any time, if I need him.
I am 5'2.
I gather that my G.I. Doc does not want any more CT Scans or MRI's due to the cyst on the liver, and he only wants Ultra-Sounds.
Yes, MS is back on the table, and I believe that is the diagnosis that I will get at my appt. July 1st.
Rough time with hubby will be temporary, or he will be temporary. He's usually a good guy, but he's a man, and they all have their moments. He is also 64, and it is starting to show in his thought processes.
Quix, please don't worry. God has it all under control. I believe that with every fiber of my being.
Rich and I are preparing to go away for a while. I felt we both needed some down time, to relax and prepare for what comes next. We have a small travel trailer and we are going to the State park an hour and a half away, just far enough to be away, but not too far from my doctors.
I am going to walk on the beach, and maybe even get my feet wet. :) I even bought a bathing suit. The way I feel, is this is the way I look, and people can deal with it or don't look.
Please don't worry, I will be in touch as soon as we return.
(Maybe I'll leave hubby in the woods. No, not a good idea? LOL)
I know you care about me, and I am more grateful than you could ever possibly know. You are my Momma Bear.
Love & Hugs,
Baby Bear
Hi, Rena.
Yes, my G.I. Doc is a great ally, and it helps that my Neuro really respects him.
My Neuro's assistant called me yesterday and said Dr. Hall, my G.I. Doc talked to my Neuro and he wants to see me.
Rena, thanks for all the kind words and encouragement. I believe my diagnosis is just 19 days away.
Hugs,
Sheila
Yes, my G.I. Doc is a great ally, and it helps that my Neuro really respects him.
My Neuro's assistant called me yesterday and said Dr. Hall, my G.I. Doc talked to my Neuro and he wants to see me.
Rena, thanks for all the kind words and encouragement. I believe my diagnosis is just 19 days away.
Hugs,
Sheila
............i'm just whispering, because i don't want to blow you over, sweetie........
I am glad your doc wants to help with your MS diagnosis. That's great! (I mean...that's great.....)
But let's get you better than 76 pounds naked, OK? How could a gastroenterologist send you home weighing so little, I wonder? I thought for sure we'd get some treatment for you when a GI doc laid eyes on you! Oh, no. Look. I'm shouting again. Shhh.
Take care, and ask him about your weight if you speak with him again, OK?
Love and gentle hug,
Zilla*
I am glad your doc wants to help with your MS diagnosis. That's great! (I mean...that's great.....)
But let's get you better than 76 pounds naked, OK? How could a gastroenterologist send you home weighing so little, I wonder? I thought for sure we'd get some treatment for you when a GI doc laid eyes on you! Oh, no. Look. I'm shouting again. Shhh.
Take care, and ask him about your weight if you speak with him again, OK?
Love and gentle hug,
Zilla*
Hi Sheila. I was hoping you would post after your appointment.
Is your husband upset because the GI doc did nothing to help with your nutritional crisis? Didn't he even mention it?? You know that I was really hoping that the doctor would put you in the hospital for IV nutrition. Can you ask the neuro assistant about it? When I worked in the hospital with chronically ill patients who became unable to eat to maintain their weight, they were given high calorie nutrient dense special IV mixtures.
I am worried that anything the neuro could even do for the MS would not be tolerated by your body because of the nutrition crisis your body is in right now.
I wished I lived closer to you!!! I know from a spouse perspective that it must be extremely difficult for your husband to sit and watch your struggles and be able to do nothing to fix it. Please ask the neuro assistant about your weight and inability to eat.
Sorry to nag....just don't want you to suffer.
Elaine
Is your husband upset because the GI doc did nothing to help with your nutritional crisis? Didn't he even mention it?? You know that I was really hoping that the doctor would put you in the hospital for IV nutrition. Can you ask the neuro assistant about it? When I worked in the hospital with chronically ill patients who became unable to eat to maintain their weight, they were given high calorie nutrient dense special IV mixtures.
I am worried that anything the neuro could even do for the MS would not be tolerated by your body because of the nutrition crisis your body is in right now.
I wished I lived closer to you!!! I know from a spouse perspective that it must be extremely difficult for your husband to sit and watch your struggles and be able to do nothing to fix it. Please ask the neuro assistant about your weight and inability to eat.
Sorry to nag....just don't want you to suffer.
Elaine
Tons of ((HUGS)) and prayers for you!!! Prayers that you can get that diagnosis are start on the road to treatment!!
Take care, Pat :)
Take care, Pat :)
Wow, you are really going through a ton all at once. You must be one tough cookie to be hanging in as well as you are. I pray that you will keep the strength to move forward. Please take care.
Gentle hugs,
Penn
Gentle hugs,
Penn
Mixed news, eh? What did he say about your weight which is clearly now below 75 lbs? Did he see you semi-naked? Honey, I'm not sure he is addressing the really critical thing here - and it is his field! Does he seem in a hurry to bump you off to the neuro or does he have a plan for your nutrition?
I was very worried about 78# and now you've lost more. How tall are you if I may ask, afterall we know your weight. Is there any chance of seeing another GI guy/gal soon or even at all? There comes a point (and you're getting close) when starvation has to be VERY, VERY carefully treated to avoid serious, even life-threatening consequences. One of these, I believe is fatty infiltration of the liver. Another is renal failure. Another is hormonal imbalance and heart arrhythmias.
CT scans use radiation, just like MRIs. Is the amount of radiation you've gotten the reason for not using MRI?
You know I'm worried and it isn't getting better. I gather MS is now back on the table?
I'm so sorry things are rough with hubby. I hope it's temporary.
I care, Quix
I was very worried about 78# and now you've lost more. How tall are you if I may ask, afterall we know your weight. Is there any chance of seeing another GI guy/gal soon or even at all? There comes a point (and you're getting close) when starvation has to be VERY, VERY carefully treated to avoid serious, even life-threatening consequences. One of these, I believe is fatty infiltration of the liver. Another is renal failure. Another is hormonal imbalance and heart arrhythmias.
CT scans use radiation, just like MRIs. Is the amount of radiation you've gotten the reason for not using MRI?
You know I'm worried and it isn't getting better. I gather MS is now back on the table?
I'm so sorry things are rough with hubby. I hope it's temporary.
I care, Quix
It sounds as though your GI dr. is going to be a good allie and that is what we all need isn't it? I am sorry for the pain and suffering you have have to undergo but I hope that you will get your diagnosis and get on some treatment plan soon!
Best of Luck to you honey and please keep in touch ok?
Lots of Hugs,
Rena
Best of Luck to you honey and please keep in touch ok?
Lots of Hugs,
Rena
Hi, Bio.
Yes, I've been having lots of fun the past 2 & 1/2 years. LOL
Thanks for the good thoughts.
Sheila
Yes, I've been having lots of fun the past 2 & 1/2 years. LOL
Thanks for the good thoughts.
Sheila
Hi, Ada.
Thank you, just waiting for the Neuro's assistant to call me. I missed her 1st call, because Rich was angry with me and did not answer my cell when it rang, and I was laying down. Love him, but sometimes I can add his age of 64 and get 10. Not sure he is going to be able to handle MS, after all.
I 'think' no more CT Scans because of the cyst on my liver.
Love you, too.
Sheila
Thank you, just waiting for the Neuro's assistant to call me. I missed her 1st call, because Rich was angry with me and did not answer my cell when it rang, and I was laying down. Love him, but sometimes I can add his age of 64 and get 10. Not sure he is going to be able to handle MS, after all.
I 'think' no more CT Scans because of the cyst on my liver.
Love you, too.
Sheila
Wow, that's a lot of stuff you've got going on. Here's hoping for a diagnosis and some therapies for you, soon.
Bio
Bio
Hey Sweetie, I'm sorry you have been feeling so bad, I am glad to hear that your Dr will be calling the neuro and hopefully they can get a treatment plan that will work for you and get you feeling better!
I am curious why he said you can't have any more CT scans, is there a maximum one person can have? I have had many in the last year.
Well Sweetie, I am always thinking of ya and wishing you well.
Love Ya,
Ada
I am curious why he said you can't have any more CT scans, is there a maximum one person can have? I have had many in the last year.
Well Sweetie, I am always thinking of ya and wishing you well.
Love Ya,
Ada
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