Jacks! Your very welcome! And, yes, man would that make life easier for many of us, including the docs.
To confuse the exhaustive and difficult dx even further.......please read this article.....
The last thing anyone with MS should feel is that "they have nothing else," "everything" imaginable was ruled out, so they MUST have MS.
It's simply not true - there has to be evidence of MS in the 1st place.
Thanks for this article - the people in my life have such a hard time understanding that this is a disease of exclusion and that there are so many mimics - I get the question - well can't "they" just do a test - unfortunately "they" cannot! Wouldn't that be nice! Make all our lives much easier!
Thanks a bunch Shell
Differential dx - this link(and Lu's companion healthpage) is a useful read for those undiagnosed members.........
This is really important to understand, especially for everyone still looking for answers.
Here is the link to the companion health page that was done on this topic.
And, it is a diagnosis of exclusion. Once they exclude the mimics, the they can diagnose MS. The insurance companies pretty much hold them to this. Depending on your insurance, it can cost you a chunk of money to exclude all the mimics.
Bump for all of our undiagnosed newcomers.
Not all lesions are MS. Please check out this article. Provides much insight on why MS can take so long to diagnose. http://msj.sagepub.com/content/14/9/1157.full.pdf+html
Remember, not all brain lesions = MS and not all spine lesions = MS. In the end, MS is a clinical dx.
Thanks for bumping this up, Shell. Quite interesting. Same with the site Lulu gave. I am saving both sites!
sllowe & Doc Q,
an anger brain cell just went on, yeah, i know, you knew it would.
some of the things this article mentions especially, CIS and ADEM, is clearly put in their respective places, and thank goodness too. the VA certainly has used those two to delay diagnosis thus delaying legal/rightful disability issues for veterans.
you mean not actually being diagnosed with anything and not receiving treatment for several years? :O I've tried twice to figure out how to file a formal complaint but no one from the hospital has got back to me. THe only thing I've been able to do was add a very poor rating on "rate my MD. com" to try and warn others. It's funny that the other neuro I saw was condescending as well. Not much nice to say about my experience with neurology. So many things went wrong. Even my MRI was misread. Only on the second "read" did they notice the bone lesions in my spine.
from what I've read about my cancer many people are diagnosed with a precursor syndrome of raised protein and they don't actually go on to develop the cancer but are followed closely just in case. Getting diagnosed with a later stage myeloma is not so common. My cancer doc is a real treasure though. I'm blessed now with great care.
As I read this paper repeatedly, it always strikes me as to how angry I would be if I was dx'd with MS when I actually should be treated for something else, such as summerlvrs case and her cancer.
Bump for those who have not the chance to read the article.
Please do if you can, especially our undiagnosed.
I keep this article on hand for frequent reference. How the "flags" were chosen was an interesting process and they had experts rank them and only listed the major and minor ones because pretty much everyone agreed. The moderate had mixed opinions (as we see often on the forum).
Thanks for pointing everyone to it!
Even when EVERYTHING about some points toward MS, some little detail can sometimes show the actual diagnosis to be something else. We can't fixate on a diagnosis until all the info (the Differential Diagnosis) is investigated.
*bump* for the discussion on why dx'ing MS is so hard!
If you want to see a bit more on differential diagnosis, checkout the website
this is an online site intended for medical folks to use when determining differential dx. Pretty interesting stuff to see what doctors must think about.
Thanks, Shell, for bringing this up- this is an important discussion to hold.
The neuro I was seeing should see this.... but then he'd have to learn how to read the MRI, I had the number one red flag- bone lesions, and several others such as Livedo. I was finally diagnosed correctly by a resident who was willing to listen to me and ovserve.
Thank you, Shell. Very informative! I have bookmarked it as well.
Thank you so much for the link to the paper. I have studied it and have it bookmarked. It is mind boggling at the sheer number of differentials there are with MS. Just reading this helps me understand why doctors aren't in a rush to give a M.S. diagnosis, even when it seems obvious. So, it gives me a dose of respect to physicians, even though they sometimes are jerks.
Thanks for posting this Shell. I had seen it before - a while back, but forgot about it. In looking at it again - it makes a bit more sense to me since I have learned more in going through this process - It's also reassuring that we are not crazy - this whole area is pretty complicated and even the best of the best can have great difficulty in figuring it all out.
BUT - if I really want to understand it, I will have some research to do. I don't know what a lot of the "big" words mean. But I love a challenge - AND it's a great resource to have.
Kell - you are very welcome! Glad you liked it.
Supergirl - I'm not as resourceful as I use to be either. HOpe your family learns how you are feeling, it's horrible when people don't see and just be there for us because they noticed :(
Hope more take the opportunity to peek at this too.
Shell, thanks for sharing. This is great!