Hi Jude
Thank you for sharing your experiences with your medication! You are doing a great job at self monitoring, I hope you can find a new Neuro ASAP.
Thanks again for the info, hope you have a great week and best wishes!!!
I can share with you all I know and experience from my treatment with Aubagio, Teriflunimide, oral medication. I am on the second month of therapy, I do not experience any side effects, although this was my major concern in my struggle of starting DMD or not.
My neuro has no concern about me or my treatment (I do consider to change him as soon as possible) so I am kind of self monitoring. I performed blood tests at the beginning of treatment and an abdominal complete scan. I did blood tests two weeks after the beginning of treatment and then monthly. The major concern when considering Aubagio is liver failure, so there is a special attention of blood tests with relation to this. I also have a co-medication, namely a herbal liver protection, just in case ... Next Monday, I have the second set of blood tests, I let you know if there are any changes.
Take care of you :-)
That would be a great addition to the forum. Unfortunately, I didn't necessarily research all of the drugs. But, I'm interested if such a magical spreadsheet exists :)
Woud anyone have a single handy chart to describe the effectiveness of all the various DMDs?
I agree Jen and I hope mine is paying off. We've never spoken before, but it's really great to meet you! Thank you for your post!
Lizzie
I had to go looking for a real neuro, too - it's a lot of work but worth it.
Stopping Copaxone (or any DMD) for a month should not have any adverse effects. MS usually does its damage in a more methodical pace, not in just a couple of weeks, even though of course symptoms can appear suddenly whether or not we’re on a DMD. And in your case, it appears that staying on Copaxone does have adverse effects. I’m sorry that’s the case.