Strange vision thing I cant explain

[HoustonDogLove]

Strange vision thing  I can't really explain.

I talked to neuro and they said to go to the opthamologist. The opthamologist  said my vision was 20/25. We did a field of vision test and some other things I didn't really get an explanation for what's going on. I have glasses for long distance but it makes no difference.
And it's not really just long distance  I think.

When I'm in stores  or restaurants or almost anywhere its almost like I can't focus there's too much to take in but nothings blurry. It takes me a long time to actually see something and if its a small detail I cant. It's very strange and I can't explain it.

it's almost like I can't see depth or when things get too busy. Not necessarily busy like time and things to do, but if there's a lot around me like items on a shelf that's a foot in front of my face or people in a room.

Does this strange feeling that does not seem to be a vision issue sound familliar?

Help how do I talk to my neuro?

[jensequitur]

Personally I had several issues with vision - my optic nerve in the right eye is damaged, so things seem smaller and blurrier out of that eye.  I had a hard time actually looking at things for a long time.  I found it exhausting.  I had better luck using my peripheral vision and not trying to focus directly on objects.  I also had nystagmus, which went into action if I tried to focus on anything.

[candy158]

I have been having the same kinds of thngs happenng to me too.  My vision just isn't right.  It will actually make me woozy too, because you can't see right, and then you start walking like you are drunk or something....... people look at you oddly to say the least, especially if it is like 10am.....LOL

I have stumbled and fallen in my garden too, because the flowers and me just can't get on the same page.

Hope this helps to let you know you are not in this alone.

Candy

[thenea]

(oops, post cut off)

When I almost fell into the Christmas tree, my parents took me to the ER.  I still couldn't find the words to describe it.  Then I noticed dry paint in the waiting room looked like it was moving... like a cascading waterfall.  In fact any solid color did.

After I was admitted, I started Googling on my phone and I realized I was in fact seeing double.  Once I was able to convey that to my neurologist, he put me on an IV of Solu-Medrol for 3 days.  By day 5 of my stay, I had 85% of my vision back to normal.  When I speed walk through a grocery store, my vision just won't cooperate.  It kinda makes me dizzy and I have to pause for a moment to "refocus" even though nothing's actually blurry.  It's been two weeks and I still see double when my head is oriented forward and I look to the left but before I couldn't do much of anything unless I closed one eye.  But I went driving for the first time since this all happened and I'm good now.  Would be nice to have that left side vision at 100% though.

This whole fiasco is actually how I got my MS diagnosis, so just as a precautionary thing, IF (and I'm praying it doesn't) it gets worse, I would head to the ER ASAP.

[thenea]

This sounds so incredibly similar to what I experienced.  I went to an opthalmologist because I had the same problem.  I had such a difficult time putting it into words.  Like I could see things clearly (granted, with my contacts or glasses) but something was just off, my depth perception seemed off, and sometimes it just looked super busy, like everything was moving a bit.  Not shakey or blurry.  Couldn't find the words for it.

He was totally confused and said it might be a brain issue.  I had MS symptoms in the past but what I had didn't sound like optic so I basically said a huge "whatever" and hoped it was stress related and would go away.  But!  Because my vision was off, I started walking into things, missing glasses when I'd pour and I had trouble going down stairs unless I closed one eye.

About a week and a half after that medical eye exam, I got off a plane and my vision got even worse.  I couldn't even see my parents right in front of me picking me up with my own car.  I mean I could see them, but it was just so weird.  I

[HoustonDogLove]

I'm getting to start gilenya so that probably had something to do with it.  
Maybe if I call back  now that they have some results from the opthamologist they will do something for it. If there's something that can be done.

[teenyturner]

Hi, coincidentally I watched a YouTube video of a young man describing his MS flair.  

He was complaining that his balance was bad because his vision was off.  He explained it by saying it felt that when he looked away it would take a number of seconds for his field of vision to move. This lapse of visual input and brain interpretation caused him to lose his balance and bump into walls and fall off chairs etc.

As I was watching it I was so grateful to see that someone else experienced the exact same thing.  I wasn't alone after all.

I can no longer drive or even go shopping because the visual input from everything moving makes me really unbalanced.  People who walk towards me at an angle and quite fast make me so unbalanced tha I have fallen over in the paast and because my legs don't work well, I can't get up without lots of assistance.  It's dangerous because I have osteoporosis and it's also extremely embarrassing, especially when well intentioned people want to call a doctor or the ambulance.

I find it a bit odd your neuro wants you to see an opthamologist for this but maybe he is just really thorough and wants to make sure there's nothing else wrong.

Good luck to you.  I can truly empathize.

Regards

[rendean]

Sorry I forgot to answer your question about talking to your neuro. I would simply describe situations , like you did in your post, and tell hime what brings on the symptoms and what helps make it stop.

Since my neuro has clasified my MS to be more sensory than motor, he said it happens because of the sensory deficits.

Ren

[rendean]

I suffer from the same symptoms. According toneuro my brain cannot process too much sensory input at one time either. Hence, no expressway driving.

I walked into a party a few weeks ago where I knew everyone there but could not take it all in...the chatter of the voices, the faces from a year ago, the music playing, the food and clatter of dishes, were all too much to process.

My body's response is blurry vision and/or double vision.

I do hope they can get you an answer quickly. If you need more details on specific situations and how I handle them, let me know either with a post here or a PM.

Ren