Update

[Tahiri_Veila]

I have been gone for a long time.  So in short my diagnosis was rescinded about 2 years ago.  My PCP does not agree with that as everything else has been ruled out multiple times and MS is all that still fits.  I still am not being treated for it.  So I gave up even trying to get diagnosed 2 years ago.  I still get some symptoms but I have gotten used to it.  I just deal with it when they come as I cannot afford to continue trying to get a dx.  I have enjoyed the last two years with my kids and the new addition little Nathan.  I am doing well at this time just wanted to stop in and say hi to everyone.

[yorkieville]

I'm really glad to hear that you are not giving up. I don't want you to end up like me. I can't clean house, cook, I don't have any bowel function. I'm 5'2 and weigh 74#s. I can only eat small amounts of food at a time, and there is not a lot I can digest.

And although I take a concktail of pain meds, I live with nerve pain in my spine and legs, 24/7.

I understand not having the funds for the expensive testing. That is what is wrong with this country. Everyone should have health coverage.

I'll pray things turn around for you, financially, and that your symptoms don't worsen.

Sheila

[Tahiri_Veila]

I guess I should clarify.  I am not giving up I just did for a time due to lack of funds. I still consult with my PCP concerning new symptoms and stuff but I don't do any of the expensive testing right now as I do not have the funds for it.

[sllowe]

Hi Tahiri,

Long time no see! Nice to see you back. I'm sorry you are still (or back) in the unknown. It means alot for you to come in and say hello. We are still here, and there are many new faces as I'm sure you've noticed.

How are you feeling?
((((Welcome back hugs)))
shell

[yorkieville]

Congratulations on your new addition to your family!

I also had my diagnosis retracted, but I didn't give up. And I hope that you won't give up either.

I have a lot of nerve damage that could have been prevented if I had been on medication.

After 6 years of struggling, I had my diagnosis re-instated by an MS Specialist, and I am on Rebif.

MS is hard to diagnose, but it is important to be diagnosed, so you can begin medication to slow the progression.

I wish you the best, and hope you won't stop searching for a diagnosis.

Sheila

[Lulu54]

Thanks for stopping here and giving us an update.  Did I know about Nathan?  Congrats on having all these happy children. I am glad to hear you are enjoying them.

As for lacking a  DX, you have to do what you feel is right.. .. one of these days the answers (whether MS or not!) will become clear to your docs. In the meantime, please don't be a stranger - it has been way too long since you have passed through with an update.

hugs,
L

[maxthecat43]

Hi,

I'm not sure we've met.  My name is Tammy.  I don't think you should give up...  Sometimes it takes a while.  I'd request a referral to a new neurologist.