Aa
Concerned i may have ms
Hi, i am a young man aged 30 yrs, just over 10 months ago i was totally fine, i got up in the morning and had severe pain up inbetween my legs which seemed to radiate to my private area and down both my legs also radiating up my rear and lower back, the next thing i knew i could not stand or walk with pain and weakness, this lasted weeks before suddenly easing off and i was back on my feet, but before long this was to happen again, also at the same time i kept on having sudden bouts of dizziness my head felt terrible, i next realised i had sexual dysfunction a loss of ejaculatory force,loss of sensation, no orgasm etc etc. What is happening to me i thought ? all of this just seemed to hit me in bad attacks although when it eased off still there just not as bad or as severe, i also started with problems with my vision, this was very scary as my vision was going totally blurred and seemed as though i was going to lose it full stop and in behind my eyes really hurting, i have experienced varied pain and sensations such as dull achy awful pain to very sharp severe pain also tingling sensations in my legs and burning sensations in my back and arms, i have experienced light touches being very painful, all in all varied and changing symptoms over time but i get this awful feeling i just cant describe, the main seems to be my head,vision,legs,sexual dysfunction accompanied with the rest of the pain and sensations etc not a great mixture eh. To top all of this off when i speak sometimes my words do not come out correctly or my speech may be slurred although this is not all the time but can be frequent, had a total nightmare with my doctors over time trying to find the cause when eventually i was sent to see a neurologist which was hard work too, i was in and out in no time, he seemed to be very funny toward me and said i can definately say and guarantee that you have no neurological problem and i will even do a ct scan to prove to you and your gp that there is no neurological problem, he then said you are depressed, i replied i was not, he said you are depressed without realising and it is coming out in a physical form, this was all said without undergoing any testing or scans or anything no investigation whatsoever and no intentions of any. How could he say this without undergoing any investigation and how does a ct scan rule out or prove this as i thought they were not that accurate and was normally replaced by an mri. As you can tell this is very frustrating, please can you tell me your views on this and your comments on what i have said it would be much appreciated thankyou.
Quix i really do not know how to thank you, infact i dont think i could thank you enough for what you have done for me, you truly are a very special lady, it means so much to me that you have taken your own time, knowledge and hard work to help me out here, how could i possibly thank you
thankyou Quix for replying to me for being so understanding and the care you have shown, for taking the time to read what i have said and for your valuable opinion and advice
yet i am just one of many whom have been very fortunate to receive your help, advice and kindness
i think the people of this community would be truly lost without you and you are certainly one lady who knows what she is talking about, like the rest i can do nothing but praise you Quix
Quix you have more than helped me and the post was fabulous, soz for pooping you out,
i still dont know what to say to you right now and cant thank you enough
THANKYOU THANKYOU THANKYOU THANKYOU THANKYOU THANKYOU THANKYOU
QUIX YOU ARE AN ANGEL
LOADSA LOVE
DAVID
thankyou Quix for replying to me for being so understanding and the care you have shown, for taking the time to read what i have said and for your valuable opinion and advice
yet i am just one of many whom have been very fortunate to receive your help, advice and kindness
i think the people of this community would be truly lost without you and you are certainly one lady who knows what she is talking about, like the rest i can do nothing but praise you Quix
Quix you have more than helped me and the post was fabulous, soz for pooping you out,
i still dont know what to say to you right now and cant thank you enough
THANKYOU THANKYOU THANKYOU THANKYOU THANKYOU THANKYOU THANKYOU
QUIX YOU ARE AN ANGEL
LOADSA LOVE
DAVID
Okay, there is good news and bads news. The good news is I'm back and ready to give you and answer. The bad news is I already worte the answer - and a true epic discourse it was, too - one of my most comprehensive. Then I blithely sent it off forever into cyberspace to float around the universe until it lands on someone's computer and mystifies the heck out them. Shoot!
I am so sorry that you are going through such pain and fear, and then being humiliated and dismissed by a sorry excuse for a physician. The neurologist you saw was so incompetent as to need very badly to lose his license. Anyone with severe neurological complaints deserves AT MINIMUM to have a complete and thorough neuro exam. This should cover you from head to toe and include evaluation of your cranial nerves, your balance and coordination, the muscle strength in all major groups, testing of your sensation on face, limbs, and trunk, deep tendon reflexes, evaluation of muscle tone, testing for Upper Motor Neuron signs (like the Babinski, Hoffman's) and an evaluation of your gait. Then the testing should be more detailed if problems are found. I suspect a 2nd year medical student would find abnormalities on your exam.
The neurologist needs to also take a careful history. What symptoms did you start with? How did they affect you? How long did they last and did any news ones join them? Did they ever improve? How long were they better? Did Symptoms (old or new) come back?
Although no one online can diagnose anything and I am no exception, I can discuss what you have told us "in the context" of Multiple Sclerosis. I am a retired/disabled physcian, but I was not a neurologist. However, since my symptoms began 3 years ago and since my diagnosis with MS last spring (yes, 2 1/2 years to diagnosis, because of a neurologist who didn't believe me. Sound familiar?) I have done little else but study the proper evaluation of people with symptoms that suggest MS in order to help people know what to expect from a work up. I do realize that in the NHS money and availability of specialist is limited and waits are often long.
The people on the forum here will back me up when I say that I rarely say this, but, I think it is highly likely that you do have some form of MS. And I believe there is some urgency to getting your evaluation underway. Of course this is only my opinion, and you don't know me from Adam, but I will give you my thoughts.
Your first symptoms of severe pain, and weakness in your legs, groin, buttocks and lower back, along with the sexual dysfunction are highly suggestive of a condition called Tranverse Myelitis. This is a large inflammatory lesion (attack on the nerve sheaths) in the spine, most often in the thoracic spine. It can be the first presentation of MS or it can be from other causes like an infection. Here in the states it is considered a medical emergency and would mandate admission to the hospital, immediate imaging with an MRI (which would include the head and the entire spine, cervical and thoracic and would be done with and without contrast. The contrast is needed to visualize any lesion that is very new, say less than 5 or 6 weeks). If Tranverse Myelitis is found it is treated with high dose, IV steroids, and that will often cool it down and reduce the symptoms very quickly.
Your next symptom was the severe vision problem with blurriness, loss of vision, and pain behind the eyes. Though you didn't mention it, I suspect you also had pain when you moved your eyes back and forth. Is this correct? These are the classic symptoms of an inflammation of the optic nerve, called Optic Neuritis (ON). This is one of the most common initial presentations of MS. In fact, in people with Optic Neuritis - AND NOTHING ELSE - the likelihood of developing MS over the next several years exceeds 40%. (I can give you a reference for that if you wish)
The combination of what sounds like transverse myelitis and optic neuritis makes up a variation of MS called Neuromyelitis Optica or Devic's Disease. So, when I was first reading you post, this is what I thought you might have. But, then since then you have had symptoms in other parts of the brain and spine - your arms and your speech and some cognitive dysfunction. Briain Burping, so to speak. I'm not sure if these are compatible with Devic's Disease or if they indicate the more widespread, garden variety of MS that most of us have.
Everything you've told us points toward a possible demyelinating process in your central nervous system. In my opinion, what you need and as soon as possible is:
1) A competent neurologist who will take a careful history and do a thorough neurological exam.
2) An MRI of your brain, cervical spine and thoracic spine. All images should be done with and without contrast to ensure finding old and new lesions.
3) A test called a Visual Evoked Response - to check for damage to the optic nerve if you have had optic neuritis. This test can measure if there is any slowing in the speed with which the nerve transmits the visual signal from the eyes to the visual part of the brain. When the myelin sheath of the nerve is damaged the nerve cannot conduct the signal as efficiently and it will be slower than normal.
4) A spinal tap to look for signs of an inflammatory and immune process occuring in the brain or spine. The tap will also check for signs of a CNS infection which can micmic MS.
5) Blood work to rule out other common mimics of MS such as Lyme Disease, recurrent small strokes from a clotting disorder such as Hughes Syndrome or "Sticky Blood". Also known as Antiphospholipid Syndrome, syphilis, Wilson's Disease, Lupus - or other autoimmune vasculitis.
6) and possibly a test called a SomatoSensory Evoked Potential which will check for a slowed nerve conduction from the limbs and trunk to the brain.
Finally, about the amitryptiline. This can be a very good med for use in the control of neurological pain. Frankly, it sounds like a good idea to me. Also, if what you have been through so far has not cause some depression, I would be very surprised. Even if it has not, the waiting, the ongoing loss of function and the pain likely will cause it in the future. I would encourage you to view the meidcation as a way to help contro some of these symptoms while you are trying to get the proper work up.
Well, having writtne this twice (the first one was funnier) I am pooped. I'm going to post this and come back to the forum later. I hope this has helped. Please forgive the typos. I want to get something sent to you.
I am so sorry that you are going through such pain and fear, and then being humiliated and dismissed by a sorry excuse for a physician. The neurologist you saw was so incompetent as to need very badly to lose his license. Anyone with severe neurological complaints deserves AT MINIMUM to have a complete and thorough neuro exam. This should cover you from head to toe and include evaluation of your cranial nerves, your balance and coordination, the muscle strength in all major groups, testing of your sensation on face, limbs, and trunk, deep tendon reflexes, evaluation of muscle tone, testing for Upper Motor Neuron signs (like the Babinski, Hoffman's) and an evaluation of your gait. Then the testing should be more detailed if problems are found. I suspect a 2nd year medical student would find abnormalities on your exam.
The neurologist needs to also take a careful history. What symptoms did you start with? How did they affect you? How long did they last and did any news ones join them? Did they ever improve? How long were they better? Did Symptoms (old or new) come back?
Although no one online can diagnose anything and I am no exception, I can discuss what you have told us "in the context" of Multiple Sclerosis. I am a retired/disabled physcian, but I was not a neurologist. However, since my symptoms began 3 years ago and since my diagnosis with MS last spring (yes, 2 1/2 years to diagnosis, because of a neurologist who didn't believe me. Sound familiar?) I have done little else but study the proper evaluation of people with symptoms that suggest MS in order to help people know what to expect from a work up. I do realize that in the NHS money and availability of specialist is limited and waits are often long.
The people on the forum here will back me up when I say that I rarely say this, but, I think it is highly likely that you do have some form of MS. And I believe there is some urgency to getting your evaluation underway. Of course this is only my opinion, and you don't know me from Adam, but I will give you my thoughts.
Your first symptoms of severe pain, and weakness in your legs, groin, buttocks and lower back, along with the sexual dysfunction are highly suggestive of a condition called Tranverse Myelitis. This is a large inflammatory lesion (attack on the nerve sheaths) in the spine, most often in the thoracic spine. It can be the first presentation of MS or it can be from other causes like an infection. Here in the states it is considered a medical emergency and would mandate admission to the hospital, immediate imaging with an MRI (which would include the head and the entire spine, cervical and thoracic and would be done with and without contrast. The contrast is needed to visualize any lesion that is very new, say less than 5 or 6 weeks). If Tranverse Myelitis is found it is treated with high dose, IV steroids, and that will often cool it down and reduce the symptoms very quickly.
Your next symptom was the severe vision problem with blurriness, loss of vision, and pain behind the eyes. Though you didn't mention it, I suspect you also had pain when you moved your eyes back and forth. Is this correct? These are the classic symptoms of an inflammation of the optic nerve, called Optic Neuritis (ON). This is one of the most common initial presentations of MS. In fact, in people with Optic Neuritis - AND NOTHING ELSE - the likelihood of developing MS over the next several years exceeds 40%. (I can give you a reference for that if you wish)
The combination of what sounds like transverse myelitis and optic neuritis makes up a variation of MS called Neuromyelitis Optica or Devic's Disease. So, when I was first reading you post, this is what I thought you might have. But, then since then you have had symptoms in other parts of the brain and spine - your arms and your speech and some cognitive dysfunction. Briain Burping, so to speak. I'm not sure if these are compatible with Devic's Disease or if they indicate the more widespread, garden variety of MS that most of us have.
Everything you've told us points toward a possible demyelinating process in your central nervous system. In my opinion, what you need and as soon as possible is:
1) A competent neurologist who will take a careful history and do a thorough neurological exam.
2) An MRI of your brain, cervical spine and thoracic spine. All images should be done with and without contrast to ensure finding old and new lesions.
3) A test called a Visual Evoked Response - to check for damage to the optic nerve if you have had optic neuritis. This test can measure if there is any slowing in the speed with which the nerve transmits the visual signal from the eyes to the visual part of the brain. When the myelin sheath of the nerve is damaged the nerve cannot conduct the signal as efficiently and it will be slower than normal.
4) A spinal tap to look for signs of an inflammatory and immune process occuring in the brain or spine. The tap will also check for signs of a CNS infection which can micmic MS.
5) Blood work to rule out other common mimics of MS such as Lyme Disease, recurrent small strokes from a clotting disorder such as Hughes Syndrome or "Sticky Blood". Also known as Antiphospholipid Syndrome, syphilis, Wilson's Disease, Lupus - or other autoimmune vasculitis.
6) and possibly a test called a SomatoSensory Evoked Potential which will check for a slowed nerve conduction from the limbs and trunk to the brain.
Finally, about the amitryptiline. This can be a very good med for use in the control of neurological pain. Frankly, it sounds like a good idea to me. Also, if what you have been through so far has not cause some depression, I would be very surprised. Even if it has not, the waiting, the ongoing loss of function and the pain likely will cause it in the future. I would encourage you to view the meidcation as a way to help contro some of these symptoms while you are trying to get the proper work up.
Well, having writtne this twice (the first one was funnier) I am pooped. I'm going to post this and come back to the forum later. I hope this has helped. Please forgive the typos. I want to get something sent to you.
How strange is that, i just had both of you in my head, i was wondering what you thought about what i had added on to my listing heather, and what Quix thought about it well the whole caboodle and do you have any advice for when i see my doctor again on the 9th after what the neuro said as i havent seen them yet to discuss it any suggestions as to what to say.
luv yas David.
luv yas David.
Hi there, and thankyou for getting back to me, my problem is i have had no testing so i cant even rule anything out at this time, i was told i had no neurological problem whatsoever that was without any testing and also they would do a ct scan to prove to me and my gp that there was no neurological problem, the thing is they cannot say that there is no neurological problem whatsoever without anytesting which he did and also a ct scan would not prove and rule this out so why did he say all of this yes very frustrating but the thing is this neuro was very off and nasty toward me and in a way seemed very peed off that he had to see me, i do know that my doc had to fight to get me this appointment and look at the way i was treated
now here is something else i would like to add as you mentioned antidepressants and would greatly appreciate others comments on what i have to say here
one of the doctors which i had seen down at my local practice not so long ago when i had taken quite bad was not the doctor which i normally see but he seemed very good and i was also told by a friend he was her doctor and she thinks he is a really good doc
anyway after explaining a few things to him in regard to symptoms etc he said to me that when i visit the neuro they will probably put me on somekind of medication to manage the pain whilst they investigate the problem
he said if i start doing that now when you see the neuro it will move things along faster so he said i want you to forget about everything else and start taking these AMITRYPTILINE now when he said that there was a look of horror on my face as i knew that AMITRYPTILINE was an antidepressant and i was not depressed so i quickly said thats an antidepressant
he replied yes AMITRYPTILINE is an antidepressant but i am not giving you this for depression as this has other uses and he said i dont expect it to cure the problem but i think that it may help with whats going on anyway i was clueless as to what this was going to do but he did say it would probably take maybe a couple of weeks to be taking much effect
well you know, the strange thing is that he was right, it has not cured any of my problems and i am still suffering and getting quite bad but this is helping me slightly yes for some reason this AMITRYPTILINE is slightly helping me to some degree
well i dont know what this doctor had thought was wrong with me, but i have since found out that AMITRYPTILINE is also used in multiple sclerosis i am not exactly sure how it works but they say there is something in the AMITRYPTILINE which reacts with the brain i cant really remember off the top of my head my memo is bad at the mo, but anyway i think it helps to some extent with the muscles and it is a muscle relaxant
cant really remember all correctly but if anyone knows exactly how it works and what it does then please get back again much appreciated thought this would be interesting to add and i might even start a new question post on this
i was also told by another doctor over the phone whom i had talked to to carry on taking the amitryptiline as it helps with the muscles and pain she said thats why it had been prescribed to me this was a doctor i had spoken to on my nhs helpline after what that neuro had said to me i was deeply annoyed, so yes she said well i can probably say that you are not depressed and you were not given this for depression but for those other reasons just mentioned and she said to carry on taking them and go for my ct scan anyways as this is normally a first line of enquiry and she also stated that the ct scan would probably be no good anyways and could not rule out neurological disorders but after having that they will have to move things on and probably put me in for an mri other testing etc
well i cannot get back in to see my doctor and explain what has happened etc until the 9th and then i dont know how long things are going to take from there as i have already suffered for over 10 months as it is, i dont really see the point of a ct scan neither as told this is a waste of time in ms so if my symptoms are suggestive of ms why didnt they just bypass this and go straight for the mri as this is where it is going to lead anyways and they talk about saving money etc when this would end up costing more i really cannot get my head around the whole thing
i just wish they could put me through the appropriate testing etc as i am getting a bit sick and tired by now of the whole thing and feel that this is going to be one long journey to even get anywhere
well i think i have said enough for now pleased you are feeling better heartsome and i do hope things continue to improve with you my friend and you can maybe get some more answers and to everyone else take care and all the best and thankyou for reading my post and i would love to hear any of your comments and info is much appreciated
David =====++++++===== David
now here is something else i would like to add as you mentioned antidepressants and would greatly appreciate others comments on what i have to say here
one of the doctors which i had seen down at my local practice not so long ago when i had taken quite bad was not the doctor which i normally see but he seemed very good and i was also told by a friend he was her doctor and she thinks he is a really good doc
anyway after explaining a few things to him in regard to symptoms etc he said to me that when i visit the neuro they will probably put me on somekind of medication to manage the pain whilst they investigate the problem
he said if i start doing that now when you see the neuro it will move things along faster so he said i want you to forget about everything else and start taking these AMITRYPTILINE now when he said that there was a look of horror on my face as i knew that AMITRYPTILINE was an antidepressant and i was not depressed so i quickly said thats an antidepressant
he replied yes AMITRYPTILINE is an antidepressant but i am not giving you this for depression as this has other uses and he said i dont expect it to cure the problem but i think that it may help with whats going on anyway i was clueless as to what this was going to do but he did say it would probably take maybe a couple of weeks to be taking much effect
well you know, the strange thing is that he was right, it has not cured any of my problems and i am still suffering and getting quite bad but this is helping me slightly yes for some reason this AMITRYPTILINE is slightly helping me to some degree
well i dont know what this doctor had thought was wrong with me, but i have since found out that AMITRYPTILINE is also used in multiple sclerosis i am not exactly sure how it works but they say there is something in the AMITRYPTILINE which reacts with the brain i cant really remember off the top of my head my memo is bad at the mo, but anyway i think it helps to some extent with the muscles and it is a muscle relaxant
cant really remember all correctly but if anyone knows exactly how it works and what it does then please get back again much appreciated thought this would be interesting to add and i might even start a new question post on this
i was also told by another doctor over the phone whom i had talked to to carry on taking the amitryptiline as it helps with the muscles and pain she said thats why it had been prescribed to me this was a doctor i had spoken to on my nhs helpline after what that neuro had said to me i was deeply annoyed, so yes she said well i can probably say that you are not depressed and you were not given this for depression but for those other reasons just mentioned and she said to carry on taking them and go for my ct scan anyways as this is normally a first line of enquiry and she also stated that the ct scan would probably be no good anyways and could not rule out neurological disorders but after having that they will have to move things on and probably put me in for an mri other testing etc
well i cannot get back in to see my doctor and explain what has happened etc until the 9th and then i dont know how long things are going to take from there as i have already suffered for over 10 months as it is, i dont really see the point of a ct scan neither as told this is a waste of time in ms so if my symptoms are suggestive of ms why didnt they just bypass this and go straight for the mri as this is where it is going to lead anyways and they talk about saving money etc when this would end up costing more i really cannot get my head around the whole thing
i just wish they could put me through the appropriate testing etc as i am getting a bit sick and tired by now of the whole thing and feel that this is going to be one long journey to even get anywhere
well i think i have said enough for now pleased you are feeling better heartsome and i do hope things continue to improve with you my friend and you can maybe get some more answers and to everyone else take care and all the best and thankyou for reading my post and i would love to hear any of your comments and info is much appreciated
David =====++++++===== David
I am in limbo as well. All tests come up negative, and finally my doc told me the same story about maybe being depressed and not knowing it. I thought he was awful and I was so sad that he did not believe me. I went on the anti-depressant that he recommended anyway, because I wanted to do whatever I could to feel better.
Guess what? I WAS depressed and DID NOT EVEN KNOW IT! I am simply amazed at how great I feel now after six weeks of taking the medicine (Celexa). My symptoms are still there, but my anxiety over what is wrong with me is greatly reduced. I am so much happier than I was.
So now I can concentrate on taking care of myself, and when things flare up again, I'll start over witht the doctors, but for now, I can handle the numbness/tingling/weakness in the hands, etc. The bad dizziness, mixing up my words, heavyness in the legs, etc, etc, etc. are not as bad as they were.
Maybe it is all in my head, but I don't think so. The same is probably true for you. I am a very pragmatic person who is not prone to illness or any of this hoo-ha, so I don't think this is a mental issue.
But, please know that it is possible to be depressed and not know it. Taking care of that might help you feel better, even if your other symptoms remain. Take care of yourself, this is a great forum of knowledgable, caring people!
Guess what? I WAS depressed and DID NOT EVEN KNOW IT! I am simply amazed at how great I feel now after six weeks of taking the medicine (Celexa). My symptoms are still there, but my anxiety over what is wrong with me is greatly reduced. I am so much happier than I was.
So now I can concentrate on taking care of myself, and when things flare up again, I'll start over witht the doctors, but for now, I can handle the numbness/tingling/weakness in the hands, etc. The bad dizziness, mixing up my words, heavyness in the legs, etc, etc, etc. are not as bad as they were.
Maybe it is all in my head, but I don't think so. The same is probably true for you. I am a very pragmatic person who is not prone to illness or any of this hoo-ha, so I don't think this is a mental issue.
But, please know that it is possible to be depressed and not know it. Taking care of that might help you feel better, even if your other symptoms remain. Take care of yourself, this is a great forum of knowledgable, caring people!
Hi Quix, well what can i say i have heard a lot about you and everyone speaks very highly of you, i would be greatly interested in what you have to say and your help and suggestions would be much appreciated, i am in a bit of a sorry state at the moment
i have been unable to do a great deal since all of this started and i do not get out of the house very much as either i just physically cant do it or when i try i just end up really suffering as things just seem to gett so bad
i want to thank you for taking the time to read my post and taking the time to getting back, this really means a lot to me and also everyone else who has gotten back to me and taken the time to reply you are all total angels on here and i am so happy to have met you all,
thanks again to everyone
David.
i have been unable to do a great deal since all of this started and i do not get out of the house very much as either i just physically cant do it or when i try i just end up really suffering as things just seem to gett so bad
i want to thank you for taking the time to read my post and taking the time to getting back, this really means a lot to me and also everyone else who has gotten back to me and taken the time to reply you are all total angels on here and i am so happy to have met you all,
thanks again to everyone
David.
When Quix talks about "hot bed," she is referring to the number of cases of MS in your particular region, as compared to the rest of the world. Where you live, ranks number one in the most cases of reported MS.
By the way, Quix is our retired pediatrician and is absolutely fantastic on keeping us up to date on medical information. She is our resident "den mother," who will become too; your greatest friend. She is a god-send to this group.
Be well David, Heather
By the way, Quix is our retired pediatrician and is absolutely fantastic on keeping us up to date on medical information. She is our resident "den mother," who will become too; your greatest friend. She is a god-send to this group.
Be well David, Heather
A belated welcome to our forum. It was slow over the weekend and Christmas, but we will all get to you. You have heard some good things from Heather and Moki. You are next on my list trying to catch up from the Holidays. I hope to be able to add a little to what you've told us in this and your other post tomorrow night. I am on Pacific Time and about 8 or 9 hours behind you. Do you know that you come from a hotbed of MS?
Quix, MD
Quix, MD
Hi and welcome to the forum. I am a limbo lander myself and understand your frustration. I too was told by an internist that it was in my head and he went so far as telling me that I needed a pysch assessment. He's lucky he's still walking. haha
Heather had given you some great advice and I too say don't give up. I'm not able to give you much advice myself as I'm new to this as well but you need to keep pushing for answers as something is obviously going on. I have had to get not only a new neuro but also a new family doc because I was getting nowhere. I now have a new appointment coming up in the new year, so we'll see. So, don't get too upset by this nimrod of a neuro. He just joins the ranks of weanies. Move on and find someone else.
We are here for you anytime you need us. It can be a hard road and a lot of us truly understand where you are. You may find that you need to make time as your health needs to come first.
Your family sounds really nice, I and my hubby do not have kids but our dog (small horse) sure makes up for that, I am from Ontario, Canada. I wish you and your family the best Christmas ever and a healthy New Year!
Moki
Heather had given you some great advice and I too say don't give up. I'm not able to give you much advice myself as I'm new to this as well but you need to keep pushing for answers as something is obviously going on. I have had to get not only a new neuro but also a new family doc because I was getting nowhere. I now have a new appointment coming up in the new year, so we'll see. So, don't get too upset by this nimrod of a neuro. He just joins the ranks of weanies. Move on and find someone else.
We are here for you anytime you need us. It can be a hard road and a lot of us truly understand where you are. You may find that you need to make time as your health needs to come first.
Your family sounds really nice, I and my hubby do not have kids but our dog (small horse) sure makes up for that, I am from Ontario, Canada. I wish you and your family the best Christmas ever and a healthy New Year!
Moki
HI oh and ooops soz for not leaving the spaces with the vision anall i never had the brains for that, thanks for keeping me right and yes you are right it certainly helps when ya eyes go funny.
Thankyou for such a warm welcome and for responding and the information you have given me and yes from what you have said sounds like a great little community going on here and i am sure i will find this site most helpful.
You must have had a pretty hard time and a great lot to deal with i can imagine over the last 12 yrs you were diagnosed or maybe even longer without diagnosis.
i am just really frustrated at the moment with everything that is going on and wish i could get to the cause of it all anyway so much i could say but have not got the time right now
i am David by the way i have a lovely wife Victoria and two beautiful children Ellie-Mae little girl age 5 and Leo-Jefferson little boy age 4 months we live in the north of England near to the Scotland border.
Goodbye for now Heather and hope this is easier for you to read as it is for me thanks again and take care
David.
Thankyou for such a warm welcome and for responding and the information you have given me and yes from what you have said sounds like a great little community going on here and i am sure i will find this site most helpful.
You must have had a pretty hard time and a great lot to deal with i can imagine over the last 12 yrs you were diagnosed or maybe even longer without diagnosis.
i am just really frustrated at the moment with everything that is going on and wish i could get to the cause of it all anyway so much i could say but have not got the time right now
i am David by the way i have a lovely wife Victoria and two beautiful children Ellie-Mae little girl age 5 and Leo-Jefferson little boy age 4 months we live in the north of England near to the Scotland border.
Goodbye for now Heather and hope this is easier for you to read as it is for me thanks again and take care
David.
Hi Heather thankyou for your response, yes i will stick around and let you know what happens in the future, i have since made another appointment with my doctor to discuss what the neuro said to me, i think my doctor had to fight to get me the appointment and he just seemed a bit peed off that he had to see me i cant understand it, anyway i will go ahead with the ct scan regardless and follow things on from there, i will keep ya posted, first time on here for me and i didnt realise that you could upload a picture and profile etc so i will have to do just that, just to add WOW you are a beautiful looking woman and certainly dont look ya age have a great christmas to you and family from me and family David.
Oh I forgot to mention Rid....many of us here have vision problems. When we post, we all try to use paragraphs to separate what we are trying to convey. It makes it so much easier for us to read posts.
Could you help us out, but posting with separations in throughts? This is one lady that has a very hard time...cause all the lines seem to blend together.
By the way, I have been diagnosed with MS for 12 years. The journey to diagnosis was a weird one...so you are not alone. It's hard to find a good, competent MS Specialist and then find one that actually has compassion for his/her patients. We have a wonderful forum member named Quix, that is a retired pediatrician. She is extremely helpful in helping us sort out medical details. Hopefully she will see your post and respond. She also has MS.
This forum is filled with many "angels with invisible wings." We have one of the greatest groups on the Internet. You will see for yourself...as time passes. The love, the caring, the compassion and even love and prayers are extended by all the wonderful members of this forum. That's why I call them Angels. They truly are a gift from our Creator, in my opinion. They are my cyber family. I am not stretching the truth when I say that I do not how I would get through having MS..without them. They are my heros.... Hope you find the same to be true in your case. I think you will.
Again, welcome....
Heather
Could you help us out, but posting with separations in throughts? This is one lady that has a very hard time...cause all the lines seem to blend together.
By the way, I have been diagnosed with MS for 12 years. The journey to diagnosis was a weird one...so you are not alone. It's hard to find a good, competent MS Specialist and then find one that actually has compassion for his/her patients. We have a wonderful forum member named Quix, that is a retired pediatrician. She is extremely helpful in helping us sort out medical details. Hopefully she will see your post and respond. She also has MS.
This forum is filled with many "angels with invisible wings." We have one of the greatest groups on the Internet. You will see for yourself...as time passes. The love, the caring, the compassion and even love and prayers are extended by all the wonderful members of this forum. That's why I call them Angels. They truly are a gift from our Creator, in my opinion. They are my cyber family. I am not stretching the truth when I say that I do not how I would get through having MS..without them. They are my heros.... Hope you find the same to be true in your case. I think you will.
Again, welcome....
Heather
This doctor did you a real disservice by dismissing your symptoms.
You need to have a thorough exam by a QUALIFIED Neuro and have a brain and spinal MRI, with and without contrast dye. Then and only then, can something be said about NOT having MS.
You should ask your Primary Care Physician to get your scheduled with an MS specialist and get it done as soon as possible. CT scan is worthless in diagnosing any MS lesions in the brain. Only an MRI can find those lesions, if they are there. You have many neurological problems and they should NOT be dismissed.
Welcome to the forum and I hope that you will keep us posted when you get to see a new and more caring doctor. The one you had should be roasted on an open fire. Around here we call it "The Neuro Weenie Roast."
I'm so glad you joined us. I am sure other members will chime in soon or after Christmas. Hang in.....
Merry Christmas to you and your family,
Heaher
You need to have a thorough exam by a QUALIFIED Neuro and have a brain and spinal MRI, with and without contrast dye. Then and only then, can something be said about NOT having MS.
You should ask your Primary Care Physician to get your scheduled with an MS specialist and get it done as soon as possible. CT scan is worthless in diagnosing any MS lesions in the brain. Only an MRI can find those lesions, if they are there. You have many neurological problems and they should NOT be dismissed.
Welcome to the forum and I hope that you will keep us posted when you get to see a new and more caring doctor. The one you had should be roasted on an open fire. Around here we call it "The Neuro Weenie Roast."
I'm so glad you joined us. I am sure other members will chime in soon or after Christmas. Hang in.....
Merry Christmas to you and your family,
Heaher
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